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Ovarian Cancer

Archives for August 2010

Treatment is hard
I had a rough time with my last round of chemo. I felt sick since second infusion and after the third infusion I basically could not get out of bed. I called my doctor after four days in bed and when she saw what shape I was in she sent me to the ER across the street. After the usual barrage of tests I was admitted. I…
The death of my mother
Todays date: August 21, 2010 My mother was born April 19th 1954 in Damascus, Syria. She met my father in Syria in 1976. He was a Swedish military officer working in the Middle East for the UN. They had a classic "love at first sight" moment. My father went back to Sweden but they kept in touch. My mother joined a group of…
A Poignant Thought
From the Inspire board: The ovaries that have led me to this dismal point in my life are the very things that gave me the best blessings of it as well.....
Back from vaca
Hi ladies, i just returned home from a great vaca, and although I have checked in a bit, I did take a of vaca from the boards. Had a lot of family time, and enjoyed the cooler temps of the Northwest. I went back to see my doc yesterday, had labs, will have a CT tomorrow, and probably back on chemo next week. It will be the…
Swollen ankle and foot
Hello ladies It is about 2 days that my mom's left ankle is swollen.In the begining it was red,tender and red.There is a spot which looks like a bruise and it hurts when you put your finger on it.It is getting better and today it is not red or warm just her ankle and foot is still swollen.I googled the situation an found 2…
ovarian cancer telephone survey
I thought I'd pass this along. We are writing to let you know that a research group will be conducting a telephone interview with patients and caregivers of patients who have been formally diagnosed with ovarian cancer and are currently undergoing, just underwent or are about to start chemotherapy. The research group is…
Anyone Taxol resistant? This might be of interest....
The UK's Telegraph (8/17, Adams) reported, "At present the chemotherapy drug paclitaxel, also known by its brand names Paxol and Abraxane, is often prescribed to shrink ovarian tumors by stopping cancer cells dividing," but "some ovarian cancers are resistant to such drugs, known as taxanes." Now, researchers "believe they…
More cancer humor.....laugh and the world laughs with you - until you get cancer, then the world bar
Another post from those fun-loving ladies over on the Inspire message boards.... For my first treatment I took a Xanex and a Vicoden. I am not big on meds but I was terrified. The nurse asked me what I had for breakfast, I told her Xanex and Vicoden, she said I needed to have something more next time. I said, "OK, next…
new report: Functional Role and Prognostic Significance of CD157 in Ovarian Carcinoma
This research results is particularly hard to understand, but for those of you who have or want to have tissue assays, especially those with serous ovarian, it may be useful. (Please post if you can interpret this in layman's terms; this is a HARD one to understand): Functional Role and Prognostic Significance of CD157 in…
So far so good
Yesterday I went for my last infusion of Doxil (8). My main concern was the CA125 (it is like this obsession. I have to know the number.) I had a fear that the number went up. But it stayed the exact same as last time. It is 30.6 I guess I thought since it jumped last time that it was going to jump this time and I was…
Bonnie Update
Tuesday, August 17, 2010 7:48 PM, CDT Sorry there haven't been updates but I have been waiting to see what is going on. Her temp seemed like it broke late yesterday and she thought she would maybe go home tomorrow. This evening it has started to spike again. They are treating her with antibiotics and fluids but they have…
Another funny....
This was posted on Inspire.com by a lady in Australia. She gave this letter to her doctor just prior to her surgery. You have to admire her sense of humor. Dear Professor Michael & Team, Having perused your very impressive C.V’s I reckon you are more than up to the job, however I thought it prudent to put forward a few…
Rising CA 125
Hiya everyone. Just been for my 5 month post chemo check up. My previous CA 125 was 34 but it has risen to 71. I was soooo upset and disappointed. I was feeling so well. All other blood markers are good (liver, kidney etc) and I have no sign of any ascites. My docs don't want to see me again for another 2 months and have…
Bonnie back in hospital
For those who don't know through the Caring Bridge or FB: Hello from Michelle, Just a quick note this morning to let everyone know Mom is in the hospital. Randy took her down to the U of M last night as she was running a temp around 104. They admitted her and are giving her antibiotics and watching the temp. Will update as…
lump biopsy
I recently underwent a biopsy for a lump on my neck the size of a walnut. It just showed up over night, but is in the approximate location of a "hot spot" that showed up on my last CT. we did a biopsy which came back clean: all tissue looked necrotic; dead. we are assuming it is/was a lymph node that got taken out with the…
PPC and Recurrence
I have been wondering if any of our teal warriors have had a recurrence of PPC... If so, what has the line of treatment been? Thankfully, I have been in remission since finishing my chemo in December, but I can't help but think about it returning in the future. It seems like with ovarian cancer, it can be managed with…
Your laugh for the day....
From one of America's truly great women.....Maxine MY LIVING WILL Last night, my husband and I were sitting in the living room and I said to him, 'I never want to live in a vegetative state, dependent on some machine and fluids from a bottle. If that ever happens, just pull the plug.' He got up, unplugged the Computer, and…
Round III
My wife received the discouraging news that after 3 months of very slowly rising CA-125 counts on the heels of 1.5 years of remission, they found a mass in her lower pelvis area (5 X 8cm). Scheduled for consultation next Wednesday where they've hinted we'll be counseled on chemo options. Linda has already done…
An incompetant doctor
Not sure if I have shared this with you all, but I went to see my GP (primary care doctor) with 4 minor issues. The people in my health practice know me very well and also knew and respected my late mother. Whenever I go in they always ask how I am and always fit me in for short notice appointments. So I am very happy with…
No signs of cancer!!!
My Mom went to her Dr today to get the results of her "head to toe scans" as she calls it. Well we got great news, NO SIGNS OF CANCER. She was diagnosed with ovarian cancer stage 3a on February 23, 2010. She had 6 rounds of chemo. Her Dr did want her to have monthly chemo for a yr, but after talking to Mom further the Dr…
Awareness
Hey everyone! On January 17, 2011 I will be a 5 year survivor! It took me 4 years after going through OC to realize that I wanted to help bring awareness to this dreadful disease. I am as of now in the midst of working on a personal website called Hope Heals as well as joined the Pepsi Refresh Project last month. My idea…
Take a break from thoughts of cancer and chemo
Thought I'd share this short youtube video of 2 little brothers, Charlie and Harry. Poor Harry experiences the full spectrum of human emotion in about 56 seconds while his baby brother sits on his lap: playful joy, pain, fear, panic then back to happiness and joy.…
3 days left 2 tell ur or loved one's story QVC OCRF Ovarian Cancer Awareness
Please enter the QVC OCRF Recognize the Disguise contest. Have fun posting your picture, and choosing your disguise. It's all in fun to increase awareness of Ovarian Cancer symptoms. http://apps.facebook.com/recognizethedisguise/ My Sphynx cat has a funny YouTube video supporting the Recognize the Disguise contest…
Cancer versus Carcinoma
Ok ladies...dumb question time. Is there a difference between "cancer" and "carcinoma" ? My pathology report states "Stage 1A Grade 2 Clear Cell Carcinoma". I realize Stage 1A is what we all hope for and it's not a question about that.....I just always wondered if there's some significance to "carcinoma" versus "cancer".
Ovarian Cancer patient blogs her way thru treatment and life
I came across a blog that is maintained by an awesome OC survivor. Her name is Jayne. http://shoppingkharma.blogspot.com Be forewarned, however, that this woman, who just turned 40, is fighting Recurrent Ovarian Cancer. She has had multiple recurrences, and many different types of therapy. She did Avastin quite some time…
Any question, fluid buildup
Good morning to everyone and all you "Teal Warriers". I have put a few questions on the discussion board and have received great feedback. I am due to have my surgery on 8/24, complete hyterectomy and omentum removal, my pelvic mass is 12cm appx. size is a volleyball, and irregualr in shape. I am going to an…
Doxil Fatigue?? Anyone have it? How did you deal with it?
Hello everyone. Mom and I going in for her 2nd infusion of Doxil tomorrow am. She has great counts and no foot/hand syndrome but she is experiencing extreme fatigue.... She says her head is fuzzy and she just doesn't have any get up at all.. She is not depressed or even disheartened, just wanting to have more oooph..has…
My book signing went well
My book signing went very well, is there any way i can upload pics here so you can see the pics
Abdominal Ascites / Gemzar (gemcitabine)
Hi, My mother has stage 4b UPSC ENDOMETRIAL cancer but is experiencing major ascites which we have been told is more common in Ovarian cancer so we are hoping to find some information on this board. Her doctors are switching her to Gemzar (gemcitabine) which is apparently more common for Ovarian cancer as well. If anyone…
What I found Funny
Just spent 2 weeks in Southern Calif in my hometown. I ran into an elderly woman who had been my Sunday School Teacher. She is now 80 and could not place me until my mom reminded her who I was. She apologized and then said "Don't ever grow old, your memory and everything else goes". After I left, I laughed till I cried.…

Ovarian Cancer

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