Lymphoma (Hodgkin and Non-Hodgkin)
Discussion List
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Looking for advice
i have been unhealthy for awhile now with no answers. I had an ultrasound done of lymph nodes in my next a few weeks ago and the results showed enlarged, dense nodes. The doctor wanted a CT with contrast but because of stage 3 renal disease my nephrologist will not sign off on the CT. Now my doc wants me to wait 6 months…
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Maybe premature, but worried for my dad
Good afternoon all. It feel strange to be posting here. I hope no one minds- my dad had a biopsy done yesterday on an "inflammatory rind" surrounding his Abdominal Aortic Aneurysm. We originally were doctoring because my dad has terriblepain in his hip and leg and has bad circulation in his right leg. They can't do a stent…
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Work or SSI/ disability?
Hey everyone, I was wondering how many of you decided to Stop working and file for disability when you were diagnosed? I hav e diffused large b cell non Hodgkin lymphoma, and have had multiple people suggest that I quit work. Currently I am on fmla. It's almost up. My problem is I love working. I couldn't imagine staying…
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Stem cell treatment
Hi, i have diffuse large b-cell lymphoma. I have had 6 rounds of r-chop. After pet scan showed it's still there I received rice treatment (2 rounds of rice chemo). Last year doctor recommendied stem cell transplant but I didn't want to do it. because I declined the stem cell transplant doctor put me on maintenance chemo…
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Blood clots from port after chemo cessation
I came into ER for swollen and red face. Tests: KEG, x-ray of neck and chest, CT of head and chest and ultrasound of right shoulder and arm. Findings: right venous subclavian blood clot. Put on Hepiron drip overnight. Port removed following morning and kept overnight for observation. Will be on blood thinners for 3 months.…
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Husband being treated for follicular lymphoma
Hello everyone. This is my first post here. My husband has been diagnosed with follicular lymphoma stage IV. His neck, arm pits, stomach, groin and bone marrow are all affected. His lymph nodes were not severely enlarged but his spleen is 21 cm. He lost 20 lbs being unable to eat much because of enlarged spleen. This was…
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Does Abnormal Lymph Node Ultrasound Mean Cancer?
I went in for what I was hoping would be my last appointment for my lymph node. I had an ultra sound done that showed my lymph node was abnormal, and will be scheduling surgery on Friday to have it removed for biopsy. I had a CT scan done two weeks ago that they said everything looked normal, so I was kind of surprised to…
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Subcutaneous Panniculitis-Like T-Cell Lymphoma
I am searching for someone who has the same kind of non hodgkin's as me. I have Subcutaneous Panniculitis-Like T-cell lymphoma stage 4a. This is a rare cancer and I have not been able to find much information on this disease let alone anyone who also has this.
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Mees line on nails or toenails?
Has anyone had these on their fingers or toes before diagnosis? I thank anyone who can respond as I have been to and ask many doctors if they know anything about these and they really do not. Thank you
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New Oncologist
A couple of weeks ago I had received a letter informing me that my oncologist was retiring at the end of August. So yesterday at my Rituxan treatment I had my last meeing with my oncologist. She is a wonderful woman and I am going to miss her. However she did point out that I have only 1 or 2 more treatments left for the…
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Weird worried
Hello , I had some concerns about my enlarged lymph nodes Here is myhistory I have a chronic epididymitis/orchitis in my left testicles that comes and goes not permenant and I have had a permenant enlarged right groin node that is normal I think bean.shaped small soft smooth pretty movable , and.once before.I had a swollen…
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AITL
April 27, 2012 I was diagnosed with stage 4 AITL went through the chop regiment then in October I did my stem cell transplant. It will be my 5 year mark in November and I have been as healthy as can be the whole 5 years ( some bone aches ). I was wondering what others with AITL think as far as relaps. Do you think it will…
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Unsure, Uncertain, ready to buckle seatbelt
Hello everyone, I've been reading this forum since April, when I discovered my NH Follicular Lymphoma has returned. 8 years ago (2009) an encapsulated tumor was found in my abdomen (was having serious pain and vomiting for a year then got bowel blockage). This tumor was removed, Stage 1, no chemo, no radiation, nothing.…
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URGENT! Help please!!! Relapsed/Refractory NHL ALK+ ALCL
My husband is 23 years old. He is active duty military, we have two boys ages 4 & 6 years old. He was diagnosed with stage 4 anaplastic large t cell lymphoma alk + last October 2016. He started CHOEP, did 6 rounds and showed great response. Unfortunately 4 weeks later after his last treatment, he relapsed. He started…
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"Stars"
Open Question: What are these "star ratings" on posts now ? Are they from CSN, or added by the writer ? I see them occassionally "backfitted" on to older posts, that did not have them when originally submitted. I find them tasteless and inapproppriate myself, a gimick. max .
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i need an urgent help
Please what is the process for diagnosis of stage 3 nasal lymphoma and/or a description of the treatment and a summary of the costs involved? Any idea will be appreciated.
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Can Someone Diagnose Me Please?
Hey Everyone! My name is Catherine and I'm 28 years old. 2 weeks ago I went into the doctor's office to have a cough that just wouldn't get better and a collection of cyst/wart-looking red bumps that started on my feet and slowly started growing on my upper legs looked at. The doc dianosed the red bumps as Mullescum…
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T-Cell Lymphoma patient education forum, Honolulu, Hawaii September 2nd, 2017
The T-Cell Leukemia Lymphoma Foundation is conducting a patient education forum in Honolulu, Hawaii on Saturday, September 2nd, 2017. It will be presented at the Waikiki Beach Marriott from 8:30 AM to 2:30 PM. As always, registration (required, but free) is easily done online. A continental breakfast and lunch are…
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Lymph Nodes Enlarged
Breast cancer survivor past 5 years after mascetomy of right breast, one node positive, chemo. Last week I was told that my lymph were enlarged. Today during needle biopsy, they said cortex was thickened. I have not felt well for a while. I still get chemo drug Zometa every six months. I also take synthyroid which I have…