-
Here we go
Well today's the day, hopefully it won't be too bad though I think I'd rather be out fishing with sue. I'll keep y'all posted
-
Today is "Hugs Day" ☺
Hey, I know "Mama Sue" has gone fishin' but we can still "holler" right? I'm declaring today "Hugs Day" so hug someone you love - or hug me. I never get enough of them - LOL. Aaron, good luck today with your first infusion and please touch base with us when you feel up to it. Lisha, how ya doing today? Liz, what's going on…
-
can't stop crying
Today and the last month I have been crying daily. I am working from home now , because working as as ICU vet tech is not something I can do while I am on ABVD and dealing with HL. My relationships I have with with my sisters are falling apart. I feel like I can't face the world. I was so strong, I am strong. I don't…
-
Hello to all!
Hope someone remembers me? I don't have the time right now to go through all of the posts so allow me to just say you are all in my prayers. Feeling anxious right now...I go for a recheck scan tomorrow(I know many of you can relate). I will know the results by tomorrow afternoon and hope like crazy the remission is…
-
So much better!
The miracle of good expensive drugs. I now have another anti nausea med along with the new one from a few hours ago. So far so good. NO nausea, and just minor discomfort. I talked with the onc tonight. They are both trying their best to get me in on Tuesday. She didn't want to promise after what happened on Monday, but I…
-
Evening update
Hi All Just thought I would update everyone. Looks like Tuesday will be the big day. It's going to be a long time from now till then.. Still dealing with the increasing pain and nausea. But even that is hopefully going to have a little improvement. The triage nurse upped the pain meds to fast acting liquid morphine and a…
-
3 years clear!
I have been cancer free for 3 years this month!!! That is one of the reasons I started my fitness and health journey, I never want to go through it again, I hope no one ever has to. If you want to get fit and healthy I would love to help. Exercising, eating right and taking care of yourself is important to prevent cancer…
-
need input
i am feeling feeling scared about the allo transplant i could have it and die from host versus graft desiese or keep having chemo and mabey have more time i don't know which way to go i would be appreciated blessings denise
-
Happy "Port Day" for Aaron
Hi Aaron, Just wishing you good luck on your port install today. A little awkward at first, it will soon become your friend. It will also make great "show and tell" for the kids and others too ;) . Hugs and positive thoughts, Jim DX: DLBL 4/2011, Chemo completed 10/2011, currently in remission. :)
-
How many we're diagnose with Lymphoma shortly after
Flu Shot?
-
Better evening
Hi All No new update as far as the surgery day and time. Still hoping that I'll hear it's on for Thursday. Onc only does surgery on Tue and Thur. Today was quiet and very uneventful. Thank goodness. The only negative is the pain. I think the last hour or so is the first time since I woke up that I don't have really yucky…
-
Searching for answers
Hello Everyone, I hope no one minds that I am only a "possible" case. I have received some strength from you already and it helps me to keep pushing my doc for an answer. First my symptoms (Dec 2011): pain in back around left shoulder blade that hit me like a blow along with nausea. The back pain dulled to an ache within…
-
New to this site- Hello and my story
Hello everyone, I was diagnosed with Hodgkins Lymphoma back in April of this year 2012. I am a single 30year woman who lives in Austin, texas Back pain, 103.5 fever took me to the emergency room. I had a kidney infection. At least that's what the er doctor told me. I knew something was not right. I had never had a kidney…
-
R-Chop - the results are in...
Hello... My husband was diagnosed with CLL (age 40) in October 2011 which transformed into Large Diffuse B Cell Lymphoma in February of this year. He has completed 6 rounds of R-Chop at the end of June. He tolerated treatment very well and was feeling pretty good until recently when he says his head feels weird. He just…
-
Surgery CANCELLED !!!
Yes, It's really true. I cannot believe it. I have pulled myself together after a major major meltdown and a long nap. I cried myself to sleep. The Hospital and the cancer center each have operating rooms. The cancer center rooms are used by cancer patients and kids from the childrens hospital next door. This is what I was…
-
Surgery Tomorrow
Hi All I just received a call from the nurse. She said that I am wait listed in for surgery tomorrow. They will call later with the actual time. Okay, I am now Terrified! Oh myGod, this is really going to happen. I want to run away, far away. I am so scared. I don't know if I can do this. I'll post again in a little while.…
-
From the mouth of babes
Hi All Still hanging in. Having lots of moments of okay and then tears. I wanted to share something my youngest granddaughter, Fynn said to me last evening. We were walking to my car to get some left over sparklers to light before I went back home, and out of the blue, she asks me if I am scared to have surgery. This is…
-
Welcome Whitney (whitneytheartist)
I'm posting this as a response/copy to Whitney (the artist) who made her first post in response to the article I shared with everyone. I thought it would be better to open a new thread to welcome her. Paste: Hi Jim, Thank you so much for posting that wonderful article. Wow! I was diagnosed three weeks ago with Large B Cell…
-
I feel it
Hi All I want you to all know that I really do feel the love and support coming from each of you. Reading your words to me, gives me so much hope and courage. I feel surrounded by your strength. I can do this. For me, fear is a very strong emotion. My outer self can appear to be strong but the inner self has a lot of fear.…
-
Sharing an article
I received an email today from a friend who referred me to this article. Though it may be geared for the "newbie" to cancer, I think it has insights/thoughts worth sharing for all of us here. I think most of us will identify with his words. He was diagnosed with Leukemia at age 27 and wrote this piece from "the other side…
-
CT scan results - what fresh hell is this??
I guess I've been in denial about my medical status for a month or so. After 8 sessions of Rituxan, my platelets were up to 160 and I was feeling well. My hematologist had me go in for a followup CT scan "just to see", and I did that last week. The results are pretty scary. The hematologist knows that I want the actual…
-
Scuttlebug11...Denise..how are you doing???
Hi Denise, Hope all is well, but would feel better if you popped in and told us how things are going for you. :) You are in my daily thoughts and prayers sweetie. Much love...Sue (FNHL-2-3a-6/10)
-
Who is a patient at City of Hope?
I currently have Hodgkins Lymphoma. Was on a clinical study but had an infiltration in my lungs so it's stopped for now but hope to get cleared to go back on. You are the first I see in a while that just has HL. EVERYONE here has NHL. I am glad u are in CR. HOPE TO BE THERE SOON been battling since 2009
-
Reality
Hi All Well, I have had my first reality check and meltdown. I thought I was doing so good at keeping my mind focused on details and everything else. The quiet of the night is so hard. the brain starts whirling and it hits. Today we tell our daughters. This is going to be hard. I hate to bring them any type of fear or…
-
Home with answers and a plan
Hi All Happy Friday the 13th Well I am home. My little appointment turned into an all day many departments type of visit. First, I LOVE my new Onc and her attending Onc. They are both amazing and so far are the perfect fit for me. This is a first, to meet two new Docs and right away think they are the best. This has never…
-
FNHL strategy to deal with symptoms.
After being tired and fatigued for 3 years I finally elected to have a periaortal lymph node extracted for biopsy. DX was follicular lymphoma. It also showed up in my bone marrow which put me at stage 4. Since I had no large tumors in my PET scan, we elected Rituxan mono therapy as a starter and to "save the big guns for…
-
No DX, just looking for answers....please
I had papillary thyroid cancer follicular variant in 2010, thyroidectomy in 10/10, RAI in 11/10. I've alway had a parotid gland on the left side that has been screwy since the RAI, but it's in my cheek. Ever since my survey 19 months ago, I'm still getting bouts of hoarseness, breaking out in hives, (I carry benedryl spray…
-
Happy to sign up with Cancer Survivors Network Hodgkins
I was diagnosed with Hodgkins Lymphoma in March 2011. Just signed up today. I noticed just looking at what some people posted. It has made me break out my paperwork and get a little more involved in my disease. Although I am not a survivor yet I have just achieved complete remission (CR). Thank God. I still have to get a…
-
2nd cycle
I am wondering if everyone's side effects generally stayed the same with each treatment?? I am really hoping so but not getting my hopes up. I had my 2nd cycle today and have started prednisone again....arghhhh I hate that stuff
-
On the fast track
Hi All Just a brief update. I talked to the cancer center and was told that the first appointment was on the 27th. I received a phone a little while ago, and they have fast tracked me in to see the new onc tomorrow morning. Wow, that is really moving along. What a week! Monday saw my reg Doc, Tuesday had the scan,…