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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for July 2012

Oh Crap!
Hi all my dear sweet friends, I felt that the title of my post is very appropriate. I have tried to log on, but of course this site was full of issues. Seems to be my sort of luck lately. Anyway, I'll try to fill you in before the site goes crazy again.. I had a long chat with the Doc this morning. He was able to answer…
Problem with website
Anyone else have/had this problem: 1. Getting a "FALSE SETT" message at top of page 2. I worked around 1 above but site is not displaying images. Showing with red background: The directory files/images does not exist." I couldn't login to the site my usual way from a bookmark but I found another link on the web that let me…
Limited news
Hi All Well I finally heard from the Doc. It was a very brief call with limited info. he said that he will have all the details in the morning. Sigh.. This is what I do know, There is a tumor 17cm and a few smaller than that. That's it. This is what he said. He did not have time to talk to the radiologist today and only…
Chemo Today
Hi Everyone, I have my third infusion today and tomorrow. Bendamustine. Don't know if my doc is adding Ofatumumab or not. Won't know until I see her one hour before the infusion. I am not looking forward to that- can cause weird infusion reactions. Anybody had it yet? But hopefully it will cause a longer Remission- which…
Quick update and prayers needed
Hi All It's been awhile since I've given any sort of update. I'll make this brief, since I don't have all the info yet. I had an emergency Doc visit yesterday afternoon (monday). I am getting a ct scan in about 8 hours. I have a tumor that has become so large in a short amount of time, that it is visible. Seems like it was…
Treatment plan
After meeting with my normal onc, we're going to do Rituxan and see if I respond to it. He talked about doing once a week for 4 weeks and send me for a sonogram or pet scan in a couple weeks to see if it's responding to it. If not, they'll add bendamustine for 6 months. I think that would be once a month, with rituxan…
PET scan
My Oncologist did a PET Scan. Lots of bright red lymph nodes. Today I freaked out on him because he told me he would have to take the node from my abdoman, which would put me off my feet for wo weeks. He then told me the bright red nodes might just be an infection. Is he just feeding me crap to calm me down or is there…
onc visit today
Well I go at 9:15 this morning to meet with my regular onc. I am hoping to come away with a better understanding of my options and a direction that makes sense. The transplant doc I saw last week wants to type me for a donor, as he said it could take quite a while to find a match. I really don't want that if I have other…
new to this board and freightened
Hello all I am Lynda and i am a 2 year survivor of ovarian cancer. I have continued to have blood isses since chemo. i was told yesterday that a test came back positive for a t cell gene rearangement, which i am told may be lymphoma. i get a ct scan next week. can somone tell me a little about lymphoma? i am freightened nd…
Chemo & Teeth Problems
I've just finished my 3rd chemo treatment (R-Chop) for B-Cell Lymphoma. I had a filling fall out on my tooth (no pain) a few days ago and went to the dentist with onocologist's ok. It was on a baby tooth that was just hanging on and I will need it pulled. I got a "consultation" appointment with the oral surgeon Monday,…
new here just diagnosed nhl +
7 parotid gland tumors now 10 still fighting hmo Medicaid for help diagnosed so far with non hodgkins lymphoma on third biopsy .waiting for pet scan possible lung involvement but pulmonary function test so bad drs said I would die on table .not sure if its sarcoidosas or cancer so pet scan is only hope.I suffer from…
My scar aches
I was wondering if anyone could give some insight.... In February I completed 6 r-chop chemos. Pretty much paid it no attention even though I hat very second of it I wasn't going to give in. Thought it was a pretty good attitude at the time. Docs have said that everything is looking good but I live in fear of this bloody…
Happy July 4th !
Happy July 4th everyone ! With all my heart, I hope and pray our celebration of "Independence" will herald continued and permanent freedom from cancer for all of us! I'm still visiting my friend in Muskegon, Michigan and have enjoyed myself while here. This area for the most part has missed the heat wave - the weather has…
power back on
I've been MIA because a nasty storm knocked out our power for 5 days! We had bought a generator after last years hurricane, so at least we had some power..... a lot of trees came down but minimal property damage. Clean up is going to start soon. Like my wife said we survived cancer twice so we can get thru this! Vinny
Rituxan Maintenance
I just wanted people to know that I had my first Rituxan Maintenance treatment and all went well! I feel great! Don't fear it! Live on, all of us survivors!!
New thread for DaddysGirl/fathers SCT discussion
I started this new discussion for DaddysGirl. The old thread was getting too hard to pull up. Here is her last post concerning her father. Love...Sue (FNHL-2-3a-6/10) July 3, 2012 - 1:25pm DaddysGirl... going to keep it short I going to keep it short I appreciate all the messages above VERY VERY much and all the thoughts…
hi everyone
i hope everyone is feeling ok. i have a question for anyone that has state insurance do you ever feel like you sre treated diffrent, as an example about 4 weeeks ago i was at the cancer center for over 3 hours which was there fault and then someone else came in and had been there fo about 30 minu and her clothes said…

Lymphoma (Hodgkin and Non-Hodgkin)

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