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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for April 2012

Carol's first day of chemo....
Hi Carol, Just wanted to let you know that you are in my thoughts and prayers while getting your first round of chemo. It's a big day, but I'm confident everything is going to go just fine! I hope you are resting peacefully from the pre-meds. Much love...Sue (FNHL-2-3A-6/10)
LRF
Hey, I got an E-mail from the LRF yesterday as I am sure a lot of you did. It says there is a person diagnosed with blood cancer every 4 mins.You notice I said DIAGNOSED. How about the ones that are not diagnosed and never will be? Do the math here.Thats 131,400 people a year. And the numbers are rising.They are not…
Checking in...
Hi All, I have been thinking of you all and miss you bunches. I have had a real difficult time getting on the site lately, today was much better. I feel okay, mostly. Coming out of my fog a little. It's still so hard. Getting ready to resume the "oh so much fun" Dr visits. I hope to get out in my garden more, now that we…
New T-Cell lymphoma treatments on the horizon
This applies specifically to Peripheral T-Cell Lymphomas. At treatment Monday, I was advised by my clinical trial/study nurse that a couple of new combinations are being worked on by Fred Hutchinson: Specifically, I-CEOP, which will combine Istodax (Romidepsin) with Etoposide, vincristine, prednisone, and…
MERRY WINNER
Mary, I know you do not post as much anymore.Sometimes we just have other things to do in life and get busy. Would like to know how things are going for you. John(FNHL-1-4A-5/10)
T-Cell Lymphoblastic Lymphoma in an 'old lady'
Hi Just joined this site in search of someone like me. I was diagnosed with Stage 4 T-cell Lymphoblastic Lymphoma last fall. I've been through my 6-month induction treatments and now have about 16 more months of maintenance treatments to complete. As I understand it, this 'version' of cancer typically hits young men - not…
New Riddle - easy I think ☺
Full of love, caring and vigilance I read and post on CSN with diligence. To provide an ear or advice, I'm never too busy. I love my little miracle who rhymes with dizzy. Who am I? ☺
A new riddle
Have a great day everyone! Riddle: (I didn't get it and felt a little stupid when I got the answer - if I had a dollar for everytime I felt stupid, I'd be pretty wealthy by now;)). Forward I'm heavy, but backwards I'm not. What am I?
Brought this to the top for Carol....she needs our support.
April 24, 2012 - 10:03am Today the onocologist begins. new All of my stuff has gotten here from MD Anderson and I will find out what they are going to do to me here for treatment. Sounded gruesome when they spoke of it in Houston. I am battling a rotten bladder infection on top of it all. I feel like throwing in the towel.…
+ Problems with this site :(
I'm going to vent here... Grrrrrrr... Lately, I feel like I'm contantly fighting with this website. I know it's free and how valuable it is to us and I'm thankful we have it. Lately (past 2-3 weeks), I'm having so many problems getting on or staying on the site. It constantly drops me right in the middle of posting or…
wondering about Donald
Just wondering how Donald51 is? I hope he is still in remission after getting the Zevalin like I did. I have always looked to see if anyone relapsed at all after receiving the Zevalin. I pray for everyone on here. Hilde
I am home
Well I am home, i feel really tired. My onc is out of town and the fill in did'nt feel like i needed more red blood cells they are at 8.8 i feel tired and i keep freezing. my white cell count has already started dropping so tomorrow i go for bloodwork and a nuelasta shot still feels good to be home. blessings denise
my dads passing
my dad was diagnosed with t cell non hodgkins lymphoma in November. On April 12, he lost his life. This has been the hardest thing I have ever gone through. i miss him so much and think its not fair. Every chemo treatment went fine. One week after his last treament he was sick. Four days later he died. Sad and confused
mabey i will go home today
i have my fingers crossed, first i was constipated now low red blood cells ,but,the doctor said after i get the red blood cells mabey i could go home today. I hope so these beds hurt my back and i always miss my daughter. blessings denise
Riddled with Riddles (another one) :)
Blame John (Cobra) and Denise (Scuttlebug) :) . ================================================ A sharpshooter hung up his hat and put on a blindfold. He then walked 100 yards, turned around, and shot a bullet through his hat. The blindfold was a perfectly good one, completely blocking the man's vision. How did he manage…
Anyone had c-diff?
This is my 3rd bout with c.diff in the past 2 months - has anyone else suffered from this malady? I'm back on Vancomytin and pro-biotics. I read today in the medical section that chemo patients have more chance of getting c.diff.
heres another
i stand on a high hill and have only one eye,what am i? have fun
how,s this one
probally easy, as i was walking i seen a man if i say his name i'll be the blame i've said his na me five times ( go for it )
Brain Twister or not???
OKAY...Lets get serious for a little bit. Its driving me crazy. "Brothers and sister I have none,but this mans father is my fathers son" Who is it? There is an answer but I can;t figure it out.
I need help
Hello all, I can't believe I still don't know what I should know. Anyway, I wanted to post 2 paragraghs from the radiologe site. I am unable to do so. Therefore, I will post 2 separate posts. I believe I have had only pet scans since I was dx in Sept 2009. I thought I read at one time, there is a combined Pet Scan and Ct…
PET approval
Hey guy's, just an update, I got approved for my PET Scan, my doc did a lot of fighting for me! Having it May 1, day after we get back from Florida, lol. Vinny
The Thymus
I recently had a CT scan (instead of my normal PET scan) and it was noted that the Thymus had decreased considerably in size. I know very little of this gland except that it is large when you are a child and shrinks as you age and this is where the T-cell and B-cells originate from. I have Follicular NH Lymphoma, not…
more chemo
i'm back in the hospital for round2 of rice, this is the worst treatment i have had so far. my date for the consult at wvu is may7th i hope i have some good news this time. my daughter is back home, she has to go to court on the 25th, the stste took over go figure don't they don't they do what they want. i,m praying for…
In the Hospital
Just an update. I finished my 6 treatments of R-chop for MCL. My oncologist odered a CT scan and they wanted more so they ordered a PET scan which showed cancer still in the groin. He handed me off to Dr Phillips at the Wilmont Cancer Center in Rochester because he is the doc doing the stem cell transplant. As I type this…
living with Follicular Lymphoma 5 years
I saw my first physician with pain in my left side in 2007. The ultrasound revealed my spleen was swollen. My doctor said spleen's do that when a body is fighting off infection. I asked if I could see a specialist and she said that wouldn't be necessary. I found another primary and after my gallbladder was taken out I…
living with Follicular Lymphoma 5 years
I saw my first physician with pain in my left side in 2007. The ultrasound revealed my spleen was swollen. My doctor said spleen's do that when a body is fighting off infection. I asked if I could see a specialist and she said that wouldn't be necessary. I found another primary and after my gallbladder was taken out I…
living with Follicular Lymphoma 5 years
I saw my first physician with pain in my left side in 2007. The ultrasound revealed my spleen was swollen. My doctor said spleen's do that when a body is fighting off infection. I asked if I could see a specialist and she said that wouldn't be necessary. I found another primary and after my gallbladder was taken out I…
Thanks for helping me decide.
I am one of those singular posters who does not return. I was diagnosed with MCL on 12/23/11. I completed my fouth cycle on the 13th of April and the Pet scan showed no sign of the cancer. Still feeling pretty lousy from last weeks treatment. I was drawn to this site like that moth Jim described to a flame. So confused and…
Bendamustine/Treanda
Hi All, Went to the Onc yesterday and I am going to have Bendamustine. No Rituxan with it because of my bad allergic reaction last time. So next I have a couple of tests to get through and then if they come out okay we will proceed. Oh boy. So for those that have had Bendamustine- details please?! I have read about it and…
carol
Hi not forgotten you jimwins will tell you all. This computer overwhelms me. I told all about me and I am now at MD Anderson in Houston. lol

Lymphoma (Hodgkin and Non-Hodgkin)

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