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denial
Hi guy's need to vent a bit, my Oncologist ordered a PET scan for May, and my Insurance company denied it! There reasoning was it's looking for evidenced of disease. Hello!!!!!!!! Just don't make any sense. I had no symptoms to begin with only a cough, when dumb luck found my NHL through a routine PET scan, not to mention…
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Update
Just wanted to offer a quick update. My husband has DLBC Non-Hodgkins Lymphoma. I should say HAD! He recently had a repeat PET scan after his 3rd R-CHOP treatment and there was no sign of cancer. We are very Blessed. Initially, his cancer was in his left tonsil and a few surrounding lymph nodes. He will continue treatment…
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Hi everyone...I'm new to the site but not to fNHL...
Hi everyone, I'm new to the site, and so glad that I've found, what seems to be a very supportive group of people. In 2010, I was diagnosed with fNHL, stage 2. I went through the 6 month treatment, and I'm now on maintenance Rutuximab (2 yr. treatment.) I had treatment # 5 on Wed. I feel awful. I don't know what to do, or…
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Anyone heard from Carol - cbpgill26 ?
Has anyone heard from Carol - cbpgill26 ? I sent her a private message today also.
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Possible Breast Cancer 12 Years Post Hodgkins
I was diagnosed with Stage IIA (bulky) Hodgkins in 1999 at age 19. Completed 12 weeks of Standford V Chemo and 20 treatments of mantle field radiation to the chest and neck. My thyroid failed immediately and I have been on meds for that for almost 12 years. I've had a few side effects such as heart palpatations/fluttering,…
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bald again
well i'm without hair again, which really does'nt bother me, it will grow back what really bothers me is the fatgie that i that i can,t deal with. i can,t stand just sitting around. blessings denise
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Advice Needed
My brother has had a relapse of HL stage IV and will begin a clinical trial of LBH589 one week prior to starting ICE. Can anyone offer advice of how best to prepare, what to expect and questions to ask drs? Thank you so much in advance!
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Getting an auto stem cell transplant in few weeks and would really appreciate some feedback
Hi Im mike (34 years old) and have been battling diffuse large b cell lymphoma for about 8 months. Did four rounds of R EPOCH and 5 rounds of Hyper C VAD. Great outcome, 98.5% of the cancer is gone. One lymphnode is still showing signs of cancer. After speaking to my doctors we have agreed to a Auto Stem Cell transplant. I…
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So confussed.....
My partner has stage 3 Large Cell Lymphoma a very rare form that on 3% of the world is diagnosed. She is currently in remission. We felt a lump under her left arm pit. She had a PET scan yesterday and it was clear. What worries us is her symptoms. She has gone from 192 to 168 in a month. She is itchy, achy all over and…
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"Server is down with too much load"
I've been seeing this error a lot lately. CSN was pretty much unavailable all day Sunday (Easter). I wonder what kind of chemo regimen the server is on? You think it needs a shot of Neulasta? Sheesh :) . Hugs, Jim
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Thinking of Sue
Hi Sue, Just wanted you to know that I am thinking all good and positive thoughts for you today. Hopefully you are done with your Rutuxin and have met with your Onc. I'm sure you will be super tired tonight, so let us know how your doing when you are rested. You are in my thoughts today and always. Hugs and love, Lisha
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Onc appointment
Hi All- Have oncologist appointment in one week. Have fatigue,swollen nodes and leg bruising, and intestinal symptoms. When I saw him 2 months ago he said I need treatment and said he would probably recommend Treanda. The problem is they cannot treat me until my intestinal bacterial overgrowth problem is cleared up. I've…
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Primary Mediastinal Diffuse Large B-Cell Lymphoma + R-EPOCH
I have a family member who was diagnosed with Primary Mediastinal Diffuse Large B-Cell Lymphoma. He completed his first two treatments of R-EPOCH, and had a PET scan right before the 3rd treatment. The mass has shrunk significantly, but it was not completely dead, as we had hoped. There was still a small amount of "glow"…
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Wondering
I had a scan Feb 3, and it all seemed fine. However the last three to four weeks I seem to feel a small lump under my chin on the left side. But feel it when I put my fingers on it and when I put my head down. I have been in remission after Zevalin in 2011. But I dont know if it is anything. I dont know even if I should…
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back in the hospital again
well here i am back in the hospital, my plateletts are low and my nose would'nt stop bleeding my plateletts are dowm to 11000 and now i found out my nuetrphil white count is 0 i hate to be in the hospital and i can't wait to go home or at least go for a walk
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Folicullar NHL REPLAPSE
WELL GOOD EVENING EVERYONE; My wife has a relapse of fillicular for the 3 rd round now. We are in a very early stage. The Doc says theres no new clinical trials that look promising for cure or remission..We ve decided to take a watch and see approach for now.. We want to see how fast it is growing, so we have put off doing…
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needs explaination for pet scan results..
Original ct shown large lobulated soft tissue mass in anterior mediastinum (11.4x8.4x10.9) And the pet scan result shows after 4cycle of abvd.. « focal fdg hypermetabolism in seen in a hypodense lesion(1cm) at anterior mediastinal mass (measuring 3.2x2.1cm). The rest of this mass and another soft tissue mass in the aortic…
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Post Radiation Issues
I am new to this site but am very interested in what everyone has to say.As my 16th anniversary approaches from my horrific battle with non-Hodgkin lymphoma I am looking for some answers to try and relieve my constant cough and breathing issues. At the age of 29 (1995-96)I had Stage IV type B large cell non-Hodgkin…
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should i happy or sad
Hi buddys..i juz completed abvd 6.2 which mean 12 times of chemo..i felt my whole body system haved change..nw awaiting for pet scan in a month time..what i scared is will i get a report that shows no evidence of lymphoma cells or still have lymphoma cells activities. Feeling very tired and depression at the same…
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platelets
does anyone know the normal range for platelets? mine are 35.000.i seen ny onc today and he talked to the onc whi will do the transplant, and he wants to use the allogenic and if a doner is not found then a autologous. blessings denise
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Worried!
I am so worried. I was diagnoised with diffuse large B cell lymphoma (bulky stage 2)in December 2011. At that time the mass on my lung was 15.5 x 10.5 cm. Since then I have had 5 chemo treatments and I also had a CT scan done last week to see how things are progressing. My doctor told me that he was sure that since I had…
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Diffuse large cell B lymphoma
Has anyone survived a tumor on the orbit of the eye that was Diffuse large cell B lymphoma? I would appreciate a comment. I am petrified. Just diagnosed. with Diffuse Large B Cell Lymphoma.
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there,s no place like home" click click"
i am home from the hospital and the rice was'nt as bad as i thought it would be, i feel weak but not sick my head has started itching and my scalp is tender, i guess its time to get the scarves back out, i don't like the wigs and the hats are to big. i feel like someone much stronger than me has thier hand on this.…
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Anyone know of COBRA assistance available?
Hello everyone. Big hugs and warm wishes coming your way. I've been researching and haven't come up with much so I thought I'd toss it out here for responses. I am not able to return to work yet and though my company has been more generous than most (my insurance at the employee price was extended a year past the date my…
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CT results
Hi Guys, I got my scan results in the mail today and as far as I can tell it looks like everything is ok. A few new findings: Vascular Anatomy shows Altherosclerotic calcification of the aorta and iliac vessels without aneurysm..scattered vascular calcification. This wasn't on my last scan a year ago, so I don't know what…