Lymphoma (Hodgkin and Non-Hodgkin)
Discussion List
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NHL and HIV
Hello everybody; My name is Liz, I'm 35 a mother of three kids and a wife, I was recently diagnosed with NHL after 20yrs. of being HIV+...My Doc told me to watch and wait to see what my lymphoma does since it is affecting my spleen...he wants to wait since starting chemo can make me weaker and put me more at risks for more…
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Happy Birthday Sue!
Dearest Sue, This night owl wanted to be the first to wish you a very wonderful and happy birthday. Wishing you many joys, large and small. Happiness today and always. Enjoy Enjoy Enjoy Continued good health and negative scans. Happy Birthday Love, Lisha
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worried
I am a 20 year old healthy male that has trouble with my lymph nodes in my right groin area. It was noticed two months ago as I had horrible pain in the area and fever. I did have a couple beer's the night before. Doc thought I had a infection in the leg and I had a ultrasound done and surgery was preformed to drain the so…
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Chronic joint pain following Chemo.
Hi Folks, I had a year of Casltleman's Disease before being diagnosed with Hodgkin's Lymph. I had several blood transfusions, surgeries, and five months of Chemo. Following Chemo. and getting off months of Predisone... I now find that I have constant joint pain and Edema. It is the joint pain I want to focus on here. My…
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para-aortic lymphnode cancer
para-aortic lymphnode cancer is it classed as terminal and anything anyone can tell me would be very welcome
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Early Diagnosis Questions and Testing
Hi All, Many thanks in advance for reading this and taking the time to share your insight. I recently noticed a few strange symptoms that mirror lymphoma (swollen lymph nodes after drinking alcohol, slight nausea, and two recent evenings of night sweats). The alcohol effect is usually very noticeable (24 hours after 2-3…
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Another Question
Is there anyone out there who has experienced headaches after all treatments are finished? Yesterday my daughter had to go to the doctor for a headache. He treated her for a migraine. I do trust him, but I was wondering if this is something that someone else can relate to. She finished abvd in March and radiation in…
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36 year old mother with no answers! just want to know!
Can anyone explain what their eye tumor looked like? when i pull my right eye lid up and back i have a fatty/fleshy mass that pops out. there is no pain but i can feel it at times and it does seem to get bigger. My symptoms for the last 3 months have been,my eye,tired, 25 pound weight loss, skin lesions,itchy skin, hair…
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Survived 2 cancers , possibly have another one , im freaking out !!!!
Hello to everyone , my name is Sebastian , i just turned 30 on Thursday September 22 , as i child i was diagnosed with leukemia ( ALL ) ive been in remission since my bone marrow transplant in 1997 , in 1999 i had a suspicion cell removed from my body , the doctors told me it looked like a super early detected cell that…
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Results
Got great news from the oncologist today! Positive theraputic response with significant interval decrease in size and near complete resolution of abnormal metabolic activity in upper abdominal lymphadenopathy. Basically the cancer is gone. He wont call it a remission yet because there is still a little activity but he said…
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Got stabbed today
Doc walked in the room saying Complete Remission! I love those words :) Then the nurse stabbed me with a flu shot. My arm is killing me :) I am headed back to work tomorrow, wish me good luck! Take care, Beth
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Thank you God
I feel totally blessed today. My scan was great and no activity. My husband and I went out to dinner and I drank 2 rasbrry martinis. I don't drink really but they were wonderful.. I thought I would dance on the table after the first drink but I ate lots of bread. Thank you for all my well wishes. I feel like a new…
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Bone Marrow Transplants and low immunity
Have long term survivors especially had issues with reduced immunity and if so what were your symptoms? Just wondering. Thanks. Blessings, Bluerose
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Good luck peeps!!!
Just want to wish everyone good luck with scan results today! lizzy will be here any minute and then my day is off and running with taking care of her. She's a cat napper, which usually takes place in my arms, but I'll check back on the computer later today and will be expecting to hear "ONLY GOOD NEWS"...I'm sure! Love to…
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It's KICK-Butt Scan Day !
Good luck today on your scans/results and to anyone I may have missed out there! JoanieP dixieGirl anag21
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Gaseous smell?
I finished my chemo treatment (R-EPOCH)on May 13. For quite some time certain foods tasted quite funny - eggs, some meats, popcorn). I've noticed that has started to go away, but now I constantly smell a gaseous scent. It is the same smell that you typically notice in your garage if the door has been closed for a while.…
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Got CD of my pet scan today
From what I can understand from the report is great news. No signs of new activity. There has been regression of the area where it was!! Yipee!! Will find out for sure tomorrow, but I couldn't help but look at it. NOW the disk is stuck in my computer.... Oh well. It's happened before and eventually it spits it out LOL
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Radiation for Follicular Lymphoma
Hi you guys, Has anyone received radiation for follicular lymphoma? I received R-CVP in 2010 with complete remission, it was followed up with Zevalin In July 2010. One year later and I have a walnut size tumor in my groin. Dr. is recommending radiation. I have an appointment with the radiologist on Friday, the 23. I'm…
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Thanks
Hi All, Thank you for your kind and supportive words. I am feeling better today and have had some good sleep. Cancer for me is like a roller coaster ride. I would not chose to get on the ride, but now that I am, it can be very scary. Mostly I try to just coast along and enjoy my life. But then there are the times when I am…
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Scans
I get my first PET/CT scan on Thursday since starting treatment in August! I have two cycles of chemo down and this will determine my progress and how much more treatment I will need. I am super nervous but really hoping to see that my cancer is melting away!
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PET scan
Hi It's been a year since my last PET scan. It's Wed. with results this Thursday. My mind is imaging all sorts of things. I am pretty upbeat but I am becoming anxious. I hate feeling that way. I am not ready to be sick again. I love feeling good and being normal. Sorry I am rambling. Joanie
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I cannot process anymore, can you help me
Hi All, It seems like the only thing I talk about with you all is the emotional and difficult part of my life lately. I have debated all weekend about sharing more sadness with you. I am so ready for some happy in my life. My family seems to not want to talk or be supportive. They really just don't get what life with…
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Out of Jail :) Thank you all
Just got home from cycle 5, one to go. Bouncin' from the prednisone but okay otherwise. I just wanted to say thanks to the wonderful and supportive people on here. It's meant so much to me. You're all in my thoughts and positive wishes. Jim
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911 / Toxic Dust
Hello everyone, After being diagnosed with FNHL Stage 3 / Grade 1.5 and my Onc stated to me that I was probally exposed to something TOXIC in my life. I told him I was detailed to 911 WTC for a couple of days for search and rescue operations, he stated that was too early to tell at this point. After I knew where I was…
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Got the results of Ultra sound..
Hi guys, I called my doctors office this morning and the nurse told me the ultra sound showed NO cancer in my right breast. She said my doctor will go over the mammogram and ultra sound results in detail with me on Sept 27th when I go in for my physical. So...that was wonderful news and music to my ears! We were without…
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Lost battle with tcell lymphoma :(
Last week my Uncle Ray lost his mostly silent battle with an extremely rare form of tcell lymphoma. We need to fight for more research on these rare forms of cancer. Please help my family and I in the fight by donating to our Light the Night team. We have dedicated the rest of our lives to fighting (we have lost 6…
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follicular cancer
Hi, My name is Corinne and I am a 51 yr old woman who was diagnosed a year ago with Non-hodgins lymphoma. After 6 months of chemo ( with no change ) my oncologist took a wait and see approach. In the past month I have been finding swollen lymphs in my cheek, shoulder neck, and being very concerned was catscanned again. NOW…
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Computer issues
My computer is dead at home. Supposed to be getting hooked up again next Monday the 19th. I hope everyone is doing well and hanging in there! Will catch up with everyone next week I promise!! Take care, Beth
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Ouestion?
Does anyone have any information if it's commom for NHL to have a recurrance in the breast? I got a call last week telling me a spot was found on my right breast after my mammogram, and now I have to go in the morning(Thurs) for an ultra sound. They said when they compared last years mammogram to the new one,they found a…
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What happened?
I tried to post a comment on the thred we had going about the actor,but when I clicked on submit, a knowtice popped up that said.."the URL cannot be found". When I went back to the discussion board the thred had been completely removed. Whats up with that? Sue (FNHL-2-3A-6/10)