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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for July 2011

Hope to find an answer here
Hello All For the last 3-4 weeks i have been having soreness under my armpits. None of the doctors can feel a swollen node. The pain seems to change intensity. Some days it's worse and some days there is less pain. I also started to have a swollen lymph node in my neck 3-4 days ago. I went to doctor again and he said that…
My grandmother
hey guys, I really need the help and support of those of you fighting this thing. I take care of my gma shes 75 and she was diagnosed with 3rd stage t cell lymphoma and the doctor suspects it to soon reach stage four. she is scheduled for a bone marrow biopsy soon and she is terrified.I hope that nobody gets offended for…
Lisha
I have been thinking about Lisha these last few days. I was hoping each day when I sign on to see a post from her. I know she was in Texas at MD Anderson. Lisha, if you see this post, try and let us know how everything is going. If you are busy, that's OK. I just want you to know I think of you very often, and send you my…
Follicular Lymphoma/R-CVP Experience
Hello, I am 39 years old and I was diagnosed with non-hodgkins follicular lymphoma, stage IV. I am going to star my treatment (R-CVP) soon and I would like to hear some of your experience with this type of chemo.Any advice and comment will be greatly appreciate it. Thanks!
Follicular Lymphoma is back
HI to all. I'm new here and will give you some of my background. I'm 74 years of age. In 2001 I discovered a large lump in my stomach on the right side. I had retired and thought I was getting fat. No so. I had a large tumor. After all the test I was given 5 treatment of CHOP. After test I was given 3 more treatments of…
Janelle, colonscopy
I am submitting a new post because of it's importance. I did respond to your original post, Janelle, but I am starting a new thread on this procedure. ------------------------------------------------------------------------------------------ Dear Janelle, I too, can't believe the doctor punctured you during a routine…
Yes!!!!!!!!!!
A heartfelt hello to all and hope this finds everyone as well as can be and hanging in there. I went to The Mayo Clinic yesterday for a recheck and it was confirmed that I remain in complete remission. I now have a 6 month free pass!!! It feels like I've been carrying around 1000lbs for the last few weeks and now I am…
Mantle Cell Lymphoma and Guillian Barre
My husband was diagnosed with Mantle Cell Lymphoma. At that time his thumb and first two fingers were getting numb and the doctors talked about Carpal Tunnel. It then progressed to the whole hand and then his feet. After many test they diagnosed Guillian Barre. He had five days of IVIG treatments with slight improvement…
Follicular NHL at age of 33
Hello everyone! My name is Monica and I was diagnosed with follicular NHL a month ago. I have stage 4 and my treatment is chemo (Rituxan) 6 times for 5 months every 3 weeks. I would like to hear from people who had or has it. How is your experience and feelings. I'm very positive and my faith keep me strong! I have…
Hi I was diagnosed in May 2011 ,2 weeks after having my 3rd child
I was diagnosed with stage 2B Hodgkins ,I have been a nervous wreck, but I kept pushing them to start treatments asap, by the time my 6 week maternity leave was up I had several ABVD treatments and was wearing a wig.(wasnt exactly the maternity leave I planned).The sales reps that come in the office at my work will say "oh…
Web cast RE: children with lymphoma
July 26 Living with Childhood Cancer: Pediatric Leukemia and Lymphoma web chat The Cleveland Clinic 12:00 p.m. ET For more information, visit clevelandclinic.org We've had some newer and younger folks on the board lately. I ran across this last night and thought I'd post it for anyone who's interested. Kellie
Taste changes after Chemo
I am about 2.5 months removed from my last Chemo treatment (R-EPOCH) and am still experience funny tastes with certain foods (eggs, some meats depending on how they're cooked, popcorn, etc.). I know that three of the drugs in that regimen have taste changes as a side effect (Cyclophosphamide, Doxorubicin, Vincristine). I…
What the heck???
Hi guys, Wow...I tried all day to log in to CSN and couldn't get connected. It just now let me do it...(9:50 Pacific time). Has anyone else had a problem today? Anyways...just wanted to let you know we are leaving on vacation tomorrow morning and won't be home until Aug 6th. I'll have my laptop with me, and will check in…
white foamy sticky mucus
My husband was diagnosed with t-cell Lymphoma june of this year.He keeps spitting up this white foamy sticky mucus.He said its coming from his stomach.Doctors said thats not a commmon side effect of chemo.They put him on an antacid but doesnt seem to help.Has anyone else had this symptom and did anything help?
white foamy sticky mucus
t-cell lymphoma
Rash
Since my son started chemo, he has developed a rash that covers nearly 80% of his body. It's pretty severe (he complains of an intense burning and pain). Niether his oncologist or his dermitologist seem to be able to determine what caused it, but there's been no mention that it is related to his lymphoma or the chemo…
Yes!
I went for my first checkup with my onc and it was great. I don't have to go back for 2 weeks and I get to have my power port out too! They don't use it for blood draws so no need to keep it in!
POG Group - ALL Surivor - Long term chemo brain
I was diagnosed in 1995 with Acute Lymphoblastic Lymphoma Large T-cell, Non Hodgkins. I was involved in a study of chemo sessions, nothing experimental just dosage and time intervals. I have been suffering from Chemo brain for years and it has progressivly gotten worse. College was tough and life has gotten tougher. It is…
Radiation
My daughter is going to be starting radiation next Monday. The doctor called and said that he will be using IMRT. He explained that this is the best choice for her. She has Hodgkin's and the PET scan showed a small spot left in her chest & neck. Does anyone have any information on this or may have had this type of…
Trouble with low lymphocyte count
I have a history of NHL and was treated with R-CHOP 2 years ago. I now have a low absolute lymphocyte count of 540 cells/mcl with normals being 850-3900. I also have anemia with hemoglobin of 11.8. My oncologist does not know about these counts because he was not copied on the results. I have never had a low lymphocyte…
wrong diagnosis
hi my name is stephanie i was wondering is there any way that you could be diagnosied with hodgkins lymphoma and it be the other non hodgkins. the reason i ask is becuase the symptoms im having and i have a tumor in my bone. in the bone marrow and everything i research on about that brings me too non hodgkins. i was…
Ommaya Resovoir
I WAS DIAGNOSED WITH LYMPHOMA IN SEPT OF 2009 AND IT WAS INDOLENT BUT STAGE 4. IN jANUARY OF THIS YEAR IT MOVED TO LARGE B CELL AND BECAOME AGRESSIVE. AFTER 6 1/2 R-CHOP TREATMENTS THERE IS NO SIGN OF CANCER IN THE BLOOD OR SPINAL FLUIDS BUT NOW THERE IS A SMALL MASS THAT HAS APPEARED IN THE 3RD NERVE OF THE CAVERNOUS…
Low Dose Naltrexone, LDN
Hi everyone, I need some information please. The blood work I had in May 2011 was extremely good. The exception was 2 Immunoglobulin levels. They were just shy of being normal. LDN is a low dose treatment with no side effects to boost the immune system. It was used for MS, HIV, etc. It is also being used for cancer…
Please tell me your experience with r-chop!
I am going to be starting r-chop soon and I am really wanting to hear how it was for everyone. If you have had r-chop please take the time to tell me your experience...
Newly diagnosed with FNHL of the GI Tract
Hi. My name is Keith. I am 50 years old with a 16 year old daughter, 12 year old son and a wonderful supportive wife of 23 years. I was dx in May 2011 with FNHL in the GI tract, Grade 1, Stage 1E. I have a small tumor inside my small intestine, located in the terminal ileum. It was found by accident during a colonoscopy. I…
Drs. Visit
I am back on the the same medicine that i was on in the beginninng for the thrush. but instesd of taking it for 5 days i take it for 14. blessings denise
Martha
Hi Martha, I was just wondering how your second day getting the rest of your first treatment went? I hope all went well and you are getting some rest. Take care...Sue (FNHL-2-3A-6/10)
thrush
I have had this crap for almost 3 months now, i see the doctor in the morning, i have had the medicine pill form and 3-4 bottles of nystain my tounge really stings and its hard to eat i've lost about 20 pounds because of it i'm beginng to think its never going away. blessings denise
Lisha
Hi Lisha, Just checking to see if you have come home yet, or still in Texas at MD Anderson. Keeping you in my prayers dear friend. Much love..Sue (FNHL-2-3A-6/10)
Got my release today!!
The transplant docs released me today back to my reg onc for followups. I am a happy camper. I called and left a message for them I need to see him next week but haven't gotten the appointment yet. I also don't have to be on the neutropenic diet any more YEAH!!! I am having a salad tonite, with unpeeled tomatoes and…

Lymphoma (Hodgkin and Non-Hodgkin)

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