-
Strange topic
Good afternoon, everybody! I have a question for the group. Today I renewed my driver's license and was asked if I wanted to continue to be an organ donor. "Absolutely!" was my response. But, I started thinking...I've been diagnosed with two (three if you count basal cell carcinoma (skin cancer)) different types of…
-
New Member - Intro and a Big Question - Searching for the Meaning of Life
Hello. I'm new to the forum. I'm a 47 year old female who was diagnosed with renal cancer October 23, 2018 when an incidental finding was made on an MRI I had for a back injury. Thank goodness for that. I spent my birthday getting a CT scan of my abdomen and a chest X-ray done. Luckily no mets or anything of concern aside…
-
Lung nodules , when to worry ?
In 2 weeks I will have my 2-year scan after my partial nephrectomy... it has been a ride of emotions... I am still very scary every time I am facing this situation. In my last 2 scans, they are mentioning the presence of very tiny lung nodules but "benign": 7/31/19 Lungs and airways: Central airways are patent. Stable 3 no…
-
Ultrasound or Ct
EditEd. I need Prayers and advice my 21 year daughter is having some night sweats and back pain. I am scared! The doctors refuse to do a CT scan. They said it was to risky for her age. I told them my history, but they still only would do an ultrasound. It was all clear thank GOD. But I’m still worried we have no answers.…
-
Opinion on treatmenr
I have Chromophobe kidney cancer that has come back in my abdomen. Anyone out there have experience with treatments?
-
Waiting for Surgery (!)
Hi there. I just joined. I'm 44 years old and found out a few weeks ago that I have a solid 5 cm mass on my right kidney that appears to be localized, no metastases. Surgery is scheduled for Jan. 30, in 13 days. The plan is robotic surgery, the doc says he wants to try for a partial nephrectomy, but because it's located in…
-
Shoulder Pain 16 months post partial nephrectomy
Hello all - I had a partial nephrectomy in October of 2018 for RCC on my right kidney. Everything went well and I have been feeling great overall, however, in May of 2019 I began feeling pain in my shoulder. I attributed this to overuse due to weight lifting and exercise etc.... The pain would come and go so as it worsened…
-
Checking-In
Hello all - it's been awhile so I figured that I'd check-in. Happy New Year! My two-year post bilateral partial nephrectomy appointment was in December 2019. The renal ultrasound showed something "suspicious" on the left kidney...so a CT abdomen/pelvis was ordered. CT confirmed surgical change only, just scar tissue.…
-
Help with New Pathology Results
Hi all, About 18 months ago I had a partial nephrectomy, removing about 3/4's of my right Kidney. At that time after the kidney was removed and the mass( I believe it wass 5.7cm ) analyzed the pathology report showed findings consistant with oncocytoma, non-malignant. My specialist has been keeping an eye on the other…
-
Face flushing
Hi everyone. I have oncologist appt next week but gave been having bad face upper body flushing. Honestly is worrisome. I think I remember having before my surgery. Had hysterectomy in late 90's so not that. I'm 4 years out but insurance refuses ct scan This time. Said not needed. Anyone else get this with reoccurrence?…
-
Happy New Year!
Hello all. I haven't posted in a long time - sorry about that. I recently saw that Painter Girl (Ann) passed away a few weeks ago - so sad. We both started our cancer journey around the same time in March of 2018. I have been on Cabo for over a year now and the tumors have decreased in size and nothing new. I had SBRT in…
-
Newly diagnosed Stage IV
My husband had an emergency Nephrectomy in 2018 to remove a 22 cm tumor along with his right kidney and adrenal glands. The pathology report showed the tumor had rhabdoid and sarcomatoid qualities, which meant it was aggressive. There was a positve margin on the vena cava. After his surgery, he's been having abdominal and…
-
17th PET/CT Scan
Been living with stage IV kidney cancer for 6+ years now. Just had my 17th PET/CT. New progression in soft tissues. Dang. So, Cabometyx out; Lenvatinib/Everolimus in. I was on Cabometyx for only 6 months. It was tough: I lost 35 lbs, dropping from 170 to 135, making me weak and unsteady. I'm looking forward to the short…
-
!0 years on Csn
In order to refresh my surgigal coping skills and help the nerbies I had ny Prostate out on 9/30. ON New Years eve I was told if I did not have my gallbldder out by the ebd of the year, I would die. I spennt New Year's eve with my surgeon having an open. She was a nice date. Will write more. icemantoo
-
Hi everyone! Forgive my absence! Happy New Year!
Hello old friends and newbies! Wishing that the new year brings all good things, mainly health, love and peace! I dont come here often lately but CSN is very present always on my mind. I feel like Im living very very fast this last 10 months, Its difficult for me to even write a long message and make sense so forgive me!…