Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Kidney Cancer

Archives for June 2016

Fourteen year Ultrasound
Had my 14 year Ultrasound today. Get official results next Monday. For what its worth the tech said the small "cyst" they have been following on my other kidney for the past 13 years is a "nothing". Plan to barbequet a Filet Mignon next Monday in case Uncle Ned stops by. Maybe add a beer for refreshment (I don't drink…
clothing for after surgery
Hi all Trying to get things settled before my surgery on 6/29. I'm wondering what type of clothing you found most comfortable after the surgery? It will definitely be hot and humid here. I 'm thinking tshirt dresses maybe the easiest? tshirt and shorts? Any advice would greatly be appreciated. Update: I am having a…
Looking for info
I want to first say that I have not been diagnosed with kidney kr any other type of cancer. I had an ultrasound last week for my gallstones. The images get posted to my radiology account so I can view them and I saw that I have a spot on my kidney that measurements were taken of. Now I know this could be a cyst. I would…
Updating Bio Information
I'd like to make a plug for keeping your bio information up-to-date. Please take a moment and do this. It can save all of us a lot of time. You, when posting, you don't have to repeat all your history. The rest of us can go read about your condition and history without asking lots of questions. It's just an all-around good…
Checking In - Hoping Uncle Ned Has Time for Me
Is this uncle Ned stuff getting old yet? Lol. My quarterly scans coming up on Monday. Won't get a result until the following Monday. Would love uncle Ned to stop by. I'm glad he can be in multiple places at once! Something strange has happened since my last scans and this one. I've actually stopped worrying and obsessing…
Failed both Votrient and Opdivo
I am hesitant to post this, because, once I do, it becomes real. Had my three month scan after starting on Opdivo and my cancer has progressed signifcantly - to my liver, to my back deltoid muscles, to the soft tissue in my left flank, extensively in the chest lymph nodes and there is some shadowing in the left temperal…
Not enough Platelets
89, need 100 (I think these are thousands). How do I get them up? All suggestions welcome
Anyone else?
Anyone else think we stand, stumble or sit on the edge of a whole new world of cancer treatment and prognoses. I dont know about you, but I'm feeling incredibly lucky.
New to CSN on (Kidney) Collecting Duct Carcinoma
I have seen several of the same people on both the Cancer Survivors Network and Kidney Cancer Association blogs. I'm throwing myself in concerning my husband. He was diagnosed with kidney cancer in November 2015. After a kidney biopsy it was more specifically determined to be a collecting duct carcinoma with metastases to…
CT results
Appt went well!! Scan showed decrease in lower lung left lobe tumor from 1.2 cm to .7cm with Sutent. . Oncologist brought up surgery to remove it. All blood work was great! Any thoughts on this surgery from those who have gone through it?? All prayers, positive thoughts and good wishes were so appreciated!
18 months scans
Just received my 18 month scans results, NED, no changes from last scans 6 month ago. The lungs nodules did not grow. Liver to watch cause it's a little fatty! I love the good news! Cheers to all of you! Dave
Opdivo Ct Results
Hi Everyone good results on Opdivo after 5 years NED. I have being on Opdivo for 6 months. "There is no evidence of recurrence or metastases''. I have an infusion every 2 weeks ( no side effect to mention). I live in Tasmania (Australia) A brief history. 2011 August right nephrectory tumour 1) 110x70x85 tumour 2)…
New here
Hi my name is Kerry. I'm a 47 year old female. I'm recently diagnosed as of a month ago. I have a 3-4 cm mass on the back center of my left kidney partially sticking out. I am still in shock. I have been in a funk since I found out. We found it while during a ct for my appendix the beginning of April. MRI confirmed the…
So far so good
So, the 16 week scans show stability. Both lung mets that they follow are exactly the same... 11mm and 19mm. Opvido is holding. I agree with Footstomper, because there are no side effects, it seems so unusual to feel this good, and be stable too. We escaped the Sacramento valley heat, and are at Winchester Bay on the…
Scaring myself or something I should have checked?
Hi all, I had left neph last July, stage 1. I Have noticed on some FB pages that a few people were DX with a pulled muscle that later was found to be RCC mets. I was DX with a pulled muscle in my back, it was extremely painful until I stopped excersizing, used a hot water bottle, and took muscle relaxers for a few days. It…
Blood in urine >a week after partial nephrectomy
Hello everyone - You have all been so great as emotional support, and I can't tell you how much I have appreciated it! Now I need to tap into your medical knowledge/experiences. By all accounts, my partial nephrectomy (May 23rd) went well, and I just had my staples taken out yesterday. Everything seems to be healing well,…
Scanxiety!!!!!
Ive been on 3 rounds of Sutent and anxious to see if it's helped with tumors in lungs. I have CT scan Friday. This is my first experience with this. I'm not doing so well... Thoughts of gloom and doom have crept in. I'm lucky to have appt Monday to get results so won't have to wait long. Trying to put on that positive face…

Kidney Cancer

Discussion List