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Kidney Cancer

Archives for October 2014

Wishing all a Happy Haunting Day ... Early
Have to say that this Halloween is "special" since it's been a helluva year. You see, it's my b.day (yes I am a witch - cackle cackle). And in the year that has nearly pass, I was put on HBP meds, had a stroke in my eye and...had an open partial in March. But even so, I have survived. Nearly back to my normal self - or…
IL-2 failed; starting Votrient
After two weeks of IL-2 in March and one week in August 2014 my last two scans have shown some progression so we are not waiting around anymore. Doc prescribed Votrient and the nurse was able to get a month's supply to get me started so I took my first two pills last night. He is tapering my dose up so that week 1 I do…
How did you find about metastasis after the surgery?
Hello I had an emergency radical nephrectomy after they diagnosed a 10cm rcc in my right kidney. The tumor was confined to the kidney and no metastasis was shown in CT, chest x ray, surgery and pathology result. Also nothing to worry about in an ultrasound one month ago. (no lung and bone CT yet) my next abdomilan and…
google-developing-pill-detect-cancer
http://www.wired.com/2014/10/google-developing-pill-detect-cancer-diseases/
update from all my tests
First time I have posted in awhile as I have been waiting and doing all my scans. On kidney they done Ultrasound only as I had already had abd ct 2 months earlier and everything looked ok. Had EGD scope of stomach and on biopsies came back on path report that there was cell changes from last year. Doc only said will have…
CT Scan Results - What do you think?
I know every three months I bother you all with my scan results and what you think my doc will say. The reason is because you all have been right every time! I would like to know your opinion to see what I am up against. For the few remaining spots, everything was the same as last month - unchanged - no growth except in…
Are metastasis and recurrence different?
I was diagnosed with RCC (T2B) with no metastasis and had a radical nephrectomy two months ago, now my questions are: 1) Is there a difference between metastasis and recurrence or are they the same? 2) With your own experience in my case (10 cm, confined to the kidney, cystic Eosinophilic rcc, grade II, no metastasis) how…
Weight loss and improved creatinine level
Up until recently, my husband's levels were 1.5 which was exacty what they were post neprectomy. Kept measuring that way. Today, after 30 pounds of weight loss (due to intense cardio and some moderate weight lifting, and eating appropriately) the decreased to 1.3. I'm not sure if the weight loss is related, but if you are…
Sutent
Well, no longer part of the Clinical Trial and will be starting Sutent on 11/4 and looking for feedback on what to expect/side effects. Also curious how long after I start taking the pills (50mg) that I should expect to see on the onset of these side effects--if any. DB
Husbands upcoming full nephrectomy
Hi! I'm new, scared, nervous and have lots of questions! My husband (only 43 yrs old) was recently diagnosed with RCC after finding a large mass (13x 12x 12cm) on his right kidney. Surgery is scheduled for this Wednesday. The surgeon is planning on starting laparoscopically knowing there is a possibility of switching to…
Bloating/gas pain 5 weeks post open nephrectomy
I was able to manage the constipation and had a good bowel movements the last 2 days.......but this morning after a good poop my stomach hurts similar to having a gas pain or being bloated.........Constipation and bloating are 2 different thing right? The problem is after this morning I couldn't drink or eat again anymore…
need your help for my RCC
I am a 36-year-old woman, I had a flank pain two months ago which let to an emergency open radical nephrectomy with a very good recovery. then the pathology result showed it was a cystic Eosinophilic renal cell carcinoma, size 10cm and grade II furhman system.other information in pathology test are: 1) the tumor is…
University of Michigan or west Michigan area
Does anyone see a RCC oncologist at University of Michigan or somewhere in west Michigan? Thanks Cindy
Checking back in.... MRI results are great
It has been awhile since I checked in here, and I wanted to pass along the good news... The third MRI brain scan has been released to me, and in my words, there is nothing new in my brain... come December 24, it will be one year since the brain surgery to remove the met there. Since I got my first ever Harley ride in late…
It's Official
It was clear cell. Stage T1a. Furman grade 2. Margins are clear. I'm 2 weeks post a radical nephrectomy and feeling great. Back to work light duty on Monday. I'm one lucky gal. Scans in a year. One more post op appointment in 6 weeks. This whole thing has been crazy. Time to move forward.
It has been one year. UPDATE: One year, all clear!!!
On the one year anniversary of my husband's diagnosis with kidney cancer, he will be attending the service for his childhood friend that passed away after a lengthy battle with cancer. It is all so bittersweet. I am so grateful for the gift of getting to keep my husband, but the scanxiety and fear of the unknown is the…
CT results now what?
I have been a snowbird for the last 3 years and found out I had cancer while in Florida. I had a partial robotic nephrectomy in March while still in Florida. We aren't going to Florida this winter so I had my 6 month scan done here in Michigan and got the written results today. The results show 6 less then 5mm nonspecific…
CT Scan results
Hello all, I just want to report that I got an "all clear" result from my scan. Very happy news. The lesion on my liver was stable. I was stage 3 grade 2 when I had my 13 cm tumor removed via nephrectomy last December. The doctor said he wants to start monitoring me by ultrasound now. I argued a bit with him (I know that…
Sutent to Afinitor?
diagnosed with stage 4 RCC. Started with sutent and after 2 rounds ct was done and kidney tumor stayed the same and mets in t11 and t12 remained the same but tumor in t4 grew slightly. Doc now starting afinitor? Any thoughts???
mass on kidney and lesion on spleen
My husband was just told he had a small mass on his left kidney. 2.5 cm in size. The urologist says it has all indications of being cancer and that a partial robotic nephrectomy is best option. After the urologist saw the MRI he told us that there is a small lesion on my husband's spleen. The dr now wants him to see a…
Trial Update
Well had my 12 week scan and got bad news. New site is present which puts me out of the trial. It is a node in the chest and is about 2 cm in size. The other 2 nodes that had shrunk have grown back to their original size. The thyroid is still smaller then when I started as are whatwas found on my right lung. Someo fthe…
Papillary Renal Cell Carcinoma Type 2 Metastases
All, I wanted to give you an update on my advancing cancer diagnosis, to inquire about possible benefits of any medication suggestions, clinical trials etc. In addition it is my hope that others in my similar condition read about my story and learn how to fight with their own battle against our evil nemesis. 10-20-14: UNC…
Scan done, news not good.
I received the results of my bone scan yesterday and the news wasn't good. Along with the hip bone met that I was aware of they also found two ribs and the femur invloved also. It sounds like this will preclude any surgery to the tumor in my kidney or the removal of the hip met. The doctor I spoke to at UCLA where I am…
NCCN Guidelines for Follow Ups after a Partial/Radical Nephrectomy for Stage 1-3
We've had a number of posts/questions about what is appropriate followup after a partial/radical nephrectomy for Stage 1-3 RCC. You may access the National Comprehensive Cancer Guidelines yourself as a patient/survivor. If you go to the website, it will appear as if the site is for physicians only. However, if you go…
Stage 4 MRCC
I was diagnosed with Stage 4 Kidney Cancer with metastasis to the lungs last Jan. 27, 2014 and was given 6 months to live.....Miracoulously my 13cm tumor on the right kidney shrunk to 6cm and had a right radical nephrectomy last Sept. 18, 2014......P the metastasis to the lungs have almost also resolve completely prior to…
Relevance of negative margins in a full nephrectomy
Hi everyone, I was just wondering something: When a full nephrectomy occurs, what determines "positive" or "negative" margins? Perhaps I just don't understand the concept, but how is this determined if the entire kidney is removed? And, what, if any, is the benefit of "negative margins" on a radical neprectoamy if the…
Up coming CT SCan concerns
I'm going in for my one year check-up and CT-Scan. Someone told me the contrasting agent is not good if you only have one kidney. Anyone lnow if that's correct??
To those Newly Diagnosed - Pay Attention
Hello - I have posted here before, but I am hoping that those newly diagnosed will learn from my experience. I have learned that I did not handle things well. Live and learn. I found out a year ago that I had RCC. My tumor was small and my doctor assured me it was no big deal at all. Almost like it was not even a real…
Crazy Question
I have an open radical on 8-11 and I still have a lot of numbness in my stomach which I understand is normal. But is it normal to always feel hungry and never full even after eating a full meal?
RE: New to group
Hi! I'm new to the group - 63yr old female who had a left nephrectomy on July 26, 2014. My cancer was found through a chest ct scan. Had a chest xray and saw some nodules in right lung. I had some left back pain which I later learned was muscle pain - so really no symptoms to confirm kidney caner. After ct of chest , they…

Kidney Cancer

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