-
Happy Ending
I must be quick here. Baby is asleep in the Jeep. Not to worry, I'm with him, sitting in the driveway as, he was asleep upon returning from errands. Besides, it's a beautiful day here in the Oklahoma City burbs! Window cracked and Dr Hook on the radio...what a life, huh? To be two again!! Anyway, finally spoke to…
-
New Year and scared
I've been checking in on this site since June, when my father was first diagnosed with RCC, which (according to the spread of it) seems to be stage IV (no one ever outwardly told us). He was told he had an 11cm tumor on his right kidney, and also found out the cancer had spread to his lungs, brain, lymph-nodes, and adrenal…
-
Happy NED year
May we each have a Happy NED Year. Icemantoo
-
Being an advocate for a parent who has kidney cancer
If I could get some help from an Urologist; my father was diagnosed back in the 2nd to 3rd week of Nov.2013 of 2 masses in one of his kidneys, and the surgeon does not appear to have any urgency with removing them, despite the fact that my father has been hospitalized for back and abdominal pain the last week of Nov. that…
-
Ready to get this done-surgery tomorrow the 30th!!
Ready, set, go, be gone Tumor! Seems like I've been waiting forever. Drinking my magnesium citrate..yum! How long can I expect to be in hospital? Doc said 1-3 days? Oh how I hope he can do this lap incisions & not open. I had abdominal lap incisions before, but mostly above navel. I did very well post surgery. But I also…
-
Caregiver - Husband diagnosed stage 4 clear cell RCC
My husband was diagnosed in March of this year with Stage 4 clear cell RCC. He had 2 rounds of Sutent which worked some on round 1one. He had a radical nephrectomy in July to remove the tumor, kidney and ended up taking his spleen, part of his diaphram, almost half of his pancreas -- Now he is undergoing IL2 for the…
-
more and more test
Well since last post on here i have been sent to a onc who only takes care of bone cancer patients and he said on ct scans I brought with me he didnt see hardly anything to make me have all this pain in my hip. He said I surely was sore in all the hip area. THe hot spot on pet scan showed on iliac creat. I go tues and have…
-
real or imagined?
I went in for my scans today feeling good and confident. That faded real fast! Upon being taken back, the tech asked me if I'd ever had a reaction to contrast before and I told her I had not. I told her I was not suppose to have contrast today and she said yes you are, that's what the doctor ordered. So, I asked her to…
-
Here we go
When I went to the doctor last week to get my nephrectomy staples out, I told the doctor that I would be worried a lot more and seeing him a lot more for every twinge or ache or worry. So the last couple of days I have noticed a very bitter taste in my mouth. It has been very busy of course the last couple of days and at…
-
had 1st oncology appt today
Finally, seven months after neph, I saw an oncologist today. Tomorrow, I go for ct's of abdomin (he said he'd make sure the technician gets the lower lobes of my lungs as well) and pelvis. I couldn't be more pleased! He was something else, I tell ya. Very personable yet professional. He told me he'd have my results by…
-
CT scan report
My mother in law gave me her medical report from CT scan with and without contrasting. There really isn't a whole lot of information in it other than it's definitely not a simple cyst and is probably complex. There's no information on size of lesion or other diagnostic information. As far as treatment, the recommendation…
-
Mother in Law and a complex cyst
My mother in law gave me her medical report from CT scan with and without contrasting. There really isn't a whole lot of information in it other than it's definitely not a simple cyst and is probably complex. There's no information on size of lesion or other diagnostic information. As far as treatment, the recommendation…
-
When does the surgery pain end?
I assume my pain is from the nephrectomy and the lung wedge resection, rather than things glowing. I am 18 months post nephrectomy, and 11 months post wedge resection. In some ways, the pain is getting worse. At times, I feel like I can barely walk (who knew how much the admomen moved during walks). Am I special? Or have…
-
Help needed
Hi all, I'm not sure if I am using this site correctly? I have posted previously and also commented on a topic. However, I have received no replies etc. I am currently on a drug trial using sorafenib, having had a nephrectomy in August last year. I am keen to share experiences with others using that drug, which I believe…
-
Back from Seeing my Surgeon!
Apparently my local Hospitals review of last weeks scan was both correct and incorrect. I do have three new growths but they are not on the kidney. They are above the kidney and below the liver, they have a blood supply and in total are just over 2cm. They are not cysts! and they have grown since September! My Surgeon…
-
Thank you!
I found this group when my husband was diagnosed with stage 4 renal cancer; at first, he was told "maximum one year, lucky if you make it to Christmas". a summer day turned upside down. I read about the Mayo Clinic and other cutting edge treatments from all of you. i learned that stage 4 was not a death sentence and then…
-
Merry Christmas and Season's Greetings
I know that the big day is getting close. I wanted to get this message out while everyone has a minute before the craziness hits. I would like to wish you all a very Merry Christmas, Happy Hanukkah, and Season's Greetings - hoping your holiday is filled with warm memories, laughter and love. May we all be blessed with good…
-
Renal Cell Cancer
My husband is facing surgery in 2 weeks. In 1998, he was diagnosed with Renal Cell Cancer, he had his left kidney removed. This past January, Renal Cell Metastasized to his spleen and pancreas...we were told it was very rare for this to occur. April of this year he had his Spleen, Gall Bladder, Tail of the Pancreas and…
-
Happy Holidays
I haven't been on in awhile. Busy traveling to visit family and also for work, and just haven't found the time to pop in. Just wanted to say hello and wish all of you improved health and peace in the coming year. Wish I could say my cancer has been out of my mind. The good news is that there's no evidence of mets still.…
-
Itchy Hands?
does anyone out there get really itchy hands particularly at night??? just wondering x
-
Pathology Report on Arnold
Well today was the day to make the trek to Hamilton to see my superstar surgeon for the pathology results on Arnold Size: 13 cm X 10 cm X 9 cm.....apparently Arnold was on steroids! lol T3a (or T2 - see explanation further down in my message - nothing is every straight forward in this life of mine!) N0 M0 Renal Cell…
-
Here I go again!
Hi All, Cyber knife treatments are all done, just waiting for the hair to fall out now. Promised grandkids drawings on Mawmaws head available soon. MRI was wonderful, no more mets in the brain! But, having pain in right leg hoping and praying no bone problems. Cat Scan scheduled for 12/31 and we are hoping and praying for…
-
Metasis TCC and Chemo theropy as first step with cisplatin and gemcitabine new drugs
Dear All ,My dad is 54 and is detected with TCC cancer having lump nodes in kidney and lesion in liver and neck and nodules in lungs . Doctor suggested chemo gemcitabine plus cisplatin 1.6 gm. for 2 days and the for day 3,4,5 inj Ancount 300 Mcg. Is this the right way for such a cancer or .. its better to have the kideny…
-
Naming your tumor???
Ok, I saw on a few posts that some are naming their tumors. I decided why not? Maybe that would help me deal better. Sooo, mine is Stewart (who is my favorite minnion on Depicable Me) I know....probably silly but I love those little guys. I told my daughter who is 19, she thought it was funny and loved it. She went and…
-
Newbie: Ipilumaab and Nivolumab
I am a newbie to this site but unfortunately not a newbie to cancer. Up until about 3 months ago I proudly stated that I was a three (3) time cancer survivor. I had Skin cancer in 2006 with surgery to remove a chunk of my chest. Kidney cancer in early 2008 with surgery to remove left kidney and renal gland, followed up…
-
Feeling Very Strange Today
Hi everyone, well its exactly 1 year today that I was told that I had kidney cancer and I feel very weird about it all. Its been a rollercoaster of a year and I am grateful I am still here. My mind seems to be playing games with me at the moment and I just keep thinking its going to come back even though I get lots of…
-
Everolimus - anyone have info or experience?
A friend of mine informed me of a drug trial and I was curious if anyone here had experience with the trial or had thoughts on it. The Everolimus drug trial is for kidney cancer patients who have already undergone surgery. http://clinicaltrials.gov/show/NCT01120249
-
Not the Christmas Gift I was expecting from Santa!!
I was admitted into hospital yesterday for severe abdominal pain, this culminated my having a scan with contrast. I had only just had my six month scan back in September, which showed a clear result on my kidney. Anyway! yesterday they were unable to determine the cause of the pain but they did discover a new 1.7 cm tumour…
-
YAY!!!! That is all! Just YAAAAAYYYYYYY!
Nodules in lungs are stable.
-
encouraging results from sutent
It has been a challenging year and the many hurdles that all on this site have crossed is a testament to the "never guit" mindset of the survivor and care giver. I am fotunate enough to share the results of our first scan on sutent. All three nodules in the lungs have shown interval response to therapy with decreased size…