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Possible kidney cancer
I had CT scan Wednesday and learned Friday that there is a soft tissue mass (1.2 x 2 cm) on my left kidney. Tried to schedule an appointment with my urologist for early this week, but he is on vacation. The earliest they could get me in was Friday, so I switched to a new urology group. Have appointment tomorrow at 10 a.m.…
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Improvement After Two Cycles of Sutent
Mike had his first set of scans after two cycles of sutent. We were hoping for at least stable but got even better - improvement! No new mets and reduction and healing in bone met, and improvement in all others. Now we can breathe again for a couple of months. Hopefully sutent will continue to cause improvement. Thank you…
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Good luck Pauley13
Hi Crystal, Wanted to wish you all the best with your op on Monday. We will all be thinking of you:) you will do just fine!! Just think about getting it overwith, all this worry will be behind you at last. You have a great holiday to look forward to, maybe a bit of pain, but stress free!! what could be better!! Djinnie x
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Question of the Day!!
guys, ok im not freaking out but i was wondering how long it may be til you felt symptoms of something else or could it just be all in the mind? when i had my initial ct scan and they told me about the kidney he just said the good news is that is is no where else!! would anything have shown up then if it was there even if…
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This discussion board
The activity in this discussion board seems to have dropped a bit recently. Maybe that means everyone is too busy living and they don't have time to post! I hope everyone is doing well and has a great weekend! BLKJAK
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im back :-)
hi all well i am back and i look like a big fat italian grape!!! i missed you all xxxxxxx eims
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Well 4 weeks later I get post-op results
Recently had the DaVinci Partial done to the left lower kidney. Never actually believed that because of the stat of the 2 to 3 cm tumor usually being 70% malignant pre-op, that I would have cancer. No one in my entire family history ever had cancer. Why would I be the ultimate unlucky loser. Turns out I was for no reason.…
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Creatinine Level
My blood came back last week with high Creatinine levels while on Sutent 50 mg and Nivolumab. is 1.6 really high? They gave me 2 liters of fluid by IV and wanted to make sure I drink at least 2.5 liters of water every day. anyone have high levels and have them come back down?
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Need help coping - post surgery
My first post, so I'm excited to join the forum! I found out that I had a 10lb cancerous tumor on my left kidney back in February. It was completely unexpected and I had no prior symptoms. Blood in my Urine led me to get a CT Scan which revealed the tumor. 2 days later I was in a 5-hour surgery and suddenly it was all…
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So...what to expect??
So partial is less than a week away, with a million different thoughts in my head...hoping you guys can help me out with what will really happen. Your own stories about pre-op to post-op...when I wake up will i have tubes comeing out of me (i know i will have urinary cath), will i be on oxygen, will i be in alot of pain?…
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Biopsy on Wed. June 26.
Hello everyone. Its been a little bit since I last posted but I still check the site almost daily. I had a kidney mass of 2cm detected in March and suspected to be RCC and its been a roller since. I recently went to University of PA Hospital Pearlman center on June 16 and saw Dr. Guzzo. He scheduled me for surgery on July…
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Two week update
Well, it's been two and a half weeks since my laparoscopic right nephrectomy. Follow up with the surgeon this past Wed. was really good. He told me the pathology report was good, confirmed what they were telling me all along. Surgery was successful and the little nasty guest was removed and I should be fine. I was turned…
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Thank you Everyone
Thank you everyone for all your help over the past several months especially (and I know I will forget people because most of you guys use screen names) Darron, Texas Wedge, Nanosecond, Alice, Mg 1957, Gairim (who for some reason reads the same stuff I do when I should be working), GSRon. I am Alive, Icemantoo, Toilman &…
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Fatigue, stomach pain ?
I am almost 6 weeks postoperative. Partial via Divinci robot. I have a desk job, so have been back to work on and off for several weeks. Seems like around 2pm I sorta "run out of gas" and usually head home for some bed rest. I do keep reading the it was major surgery, to give it time, etc. In addition to walking x2 a day,…
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anyone here with kindney cancer with mets to small intestine
My husband began bleeding rectally three weeks ago. It was off and on till thurs when it became much worse. We both left our jobs and headed to ER. He was admitted ASAP. We told them of his past kidney removal due to caner in 2006. He has been scanned every year without fail both lower body and lungs and has had…
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Scan results
Well I have my scan result - not great but also not surprising. 1. The lytic lesion on L1 has increased in size and there is some soft tissue bulging into the spinal canal. Immediately referred for an MRI which I also had today. Possible referral to spine surgeon for surgery. She did tell me however tell that it is…
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Care and feeding of the head...
Hi All..! Time for me to post on my latest "Care and feeding of the (my) head"... So one of my main interests or is that obsessions, is having my bike race on the IOM. I have been going almost every year to the IOM since 2000. And last weekend was crunch time.. I did 3 all nighters in a row.. needless to say Monday I was…
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I survived my first chemo treatment!
I survived my first chemo treatment.....but..... Yesterday was a comedy of errors. I was told to be at the Kellogg Cancer Center by 8:45AM for blood workup and then chemo treatment to begin at 9:00 which is my standing appointment on every Tuesday. My husband and I arrived at 8:30 because I can't stand being late. After…
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The Politics of Kidney Cancer
As far as I know kidney cancer is a strictly nonpartisan equal opportunity disease, but you wouldn't know it from reading various websites of the Kidney Cancer Association (KCA). While the organization does much good work they post virtually every day to articles from The Heritage Foundation or Forbes or other right…
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First Pet Scan Negative!!!!
After day of worry, had my 1st PET scan today as well as a chest CT. both negative, no spreading. My case still goes before Tumor Board tomorrow and one of the surgeons is the head of the cancers centers all arond the county, im very relieved and confident right...on a "high" for first time in awhile. next scan not for 3…
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Collecting duct
Did anyone have their tumor in or halfway in the collecting duct? There really isn't any research out there on it...
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Appt with surgeon tomorrow....
My appt with my doctor after all the ct scans, ultrasounds, and biopsy....what questions should i ask?? i know i will forget when i walk through the doors so i am trying to put together something tonight...trying to prepare for everything...thanks in advance.
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Tumor Board ?
My oncologist is presenting my case to a Tumor Board on Thursday. I believe he just wants to have my case looked at by other professionals and that this is a good thing. I am 5 weeks postoperative, with Grade 4 (with small % sarcomitoid aspect) but only a Stage 1. The surgeon said he "got it all" and it was clear cell.…
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RCC with mets to lungs
Well, I have officially joined!! Mass R Nephrectomy in August 2011. It had punctured vena cava and i started to bleed out slowly, emergency surgery to remome R kidney with 7cm tumor. Tumor was not attached to vena cava but had punctured it, vascular sugeon (and Kidney cancer surgeon) removed kidney and stitched vena cava…
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Further scan coming up
I am having a CT scan tomorrow and will see oncologist for results on Friday (Australian time). Getting a little (lot) nervous than any previous scan I have had due to last scan in March revealing metastatic disease and getting scared there will be more little nasties rearing their ugly heads. Just putting it out there for…
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Sarcomatoid?
My surgeon says path report showed small % of my 4.5 tumor was sarcomitoid. He referred me to oncologist who says, like surgeon, that he thinks they "got it all" but has ordered Pet/CT scan for Wednesday 6/19. Oncologist says the sarcomitoid aspemothered my tumor makes him "nervous" and that is why he ordered PET. Anyone…
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Sarcomatoid?
My surgeon says path report showed small % of my 4.5 tumor was sarcomitoid. He referred me to oncologist who says, like surgeon, that he thinks they "got it all" but has ordered Pet/CT scan for Wednesday 6/19. Oncologist says the sarcomitoid aspemothered my tumor makes him "nervous" and that is why he ordered PET. Anyone…
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Update-Kidney Cancer Treatments
Great news evereyone, I am clear for right now!! My new visit will be in October, but right now I am 4 months closer to that 5 year mark! Thank you everyone for the prayers and words of encouragement. This is like talking to family members that know exactly what I am feeling! Feeling wonderful today! I do apologize for…
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Bye for 10 days!!!
well all i am off on hols for 10 days so i won't be on here but keep that candle burning for me!!! ill miss you but i promise i will have lots of good food and wine for all of you....you all take care of yourselves and i will see you when i get back.. eims x
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Pet Scan Anxiety!
New member. 66 year old, male. Had partial via robotic surgery on May 13, 2013, which removed 4.5 tumor. Pathology report says Grade 4, Stage 1 sarcomatoid RCC. Father died of same disease, but mine was discovered early because of a freak fall in the woods. Have seen oncologist and he ordered Pet/chest CT, which is set for…