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Happy Father's Day
Happy Father's Day to all the Dads out there.....have a great day. Eims x
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Oncology?
Hi all, I had an incidental finding of a complex mass on my right kidney, "likely RCC", in early May, while working in OH. I immediately flew home to Oklahoma thinking I would see an oncologist but was instead advised to see a urologist. I'm 2 weeks post-op following a radical nephrectomy. A partial was not an option given…
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Slimming World!!
Ok guys, I joined last week...needed to shift a few pounds and all I can say is that I love it!!! Is anyone else here doing it? It's not really a diet its just healthy eating but the joy of it I am never hungry woo hoo which is a bonus!! I even went out and bought a bike too......I am losing the run of myself but I want…
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Slimming World!!
Ok guys, I joined last week...needed to shift a few pounds and all I can say is that I love it!!! Is anyone else here doing it? It's not really a diet its just healthy eating but the joy of it I am never hungry woo hoo which is a bonus!! I even went out and bought a bike too......I am losing the run of myself but I want…
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newbie caretaker needing some guidance
Hey all, first off I want to thank all of you that have posted your stories on this board. It has really helped me the past few weeks. My mom was diagnosed with breast cancerin 1999, she had a double masectomy along with a tranflap. Those were the hardest times for my family seeing how I was only 9 at the time. This year…
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New member. 4 years post nephrectomy, new nodule
Hi everyone. I'm a new member. I found out incidentally in 09 that I had an entire kidney full of a tumor. No symptoms. Had CT for years of headaches when tumor found. Removed with Davinci robot. Graded 3Tb bc it had already begun growing into my renal vein. The type is very rare and called chromophobe type. Apparently,…
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One week post op
One week has passed (eight days to be exact) since my surgery, laparoscopic right nephrectomy. I am happy to report that aside from struggling a bit to get up from laying flat on the couch I am doing better than I ever imagined to be at this point. This was my first experience personally with surgery of any kind and as you…
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Update - Kidney Cancer Treatments
I had my PET/CT Scan with contrast done last Friday. It was a really bad day, whatever could have gone wrong went wrong. We arrived at Georgetown Hospital at 9:20 am and left there at 4:40 pm. The best part of the day was that all the test were finally able to be done. My last scan was in March with no defintative cancer…
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Great news
Wow, I got fabulous news. For six months I have been told I probably have kidney cancer, 95% certainty. Underwent a partial right nephrectomy six weeks ago and a very tough recuperation. Yesterday was my six week check up and the path report. I felt sick. After waiting forty five minutes, he finally called me in, I sat…
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Not ready to check out yet
My ENT doctor ordered a CT of the chest because of some upper resperitory issues I was having. A few days later I get one of those familiar calls from the nurse that the doctor wants to go over my CT results with me. Asking questions of the nurse was hopeless. Anyway I got a copy of the report and it seemed normal to me .…
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My first 6 month checkup...tomorrow!
Well, it has been just a touch over 6 months since they took my right kidney. Recovery went very well and I have been running 5x a week for a few weeks now. I am thinking about it a bit (the checkup that is) but I am not really nervous or scared. I need to ask my doc a few questions about lifestyle. I just want to get it…
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I have to ask . . .
I am now four weeks post surgery. The first three were great, all things considered. I've been judicious about exercise . water, meds, staying in touch, and working on getting myself back together. For the past 5 days, I feel as though I have run into a depression wall. My wife tells me she misses my smile and my jovial…
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Incision Area
Hi Everybody: My question is just a curious one. It has been 7 weeks since my laproscopic radical nephrectomy. I am a small person...109lbs, yet my incision from naval down is still very puffy which prevents me from wearing my regular clothes. Does any one know if this will eventually go away, must I exercise that area…
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Questions about staging
Hi again everyone. I went to the dr on Monday and he said 80% chance it is cancer. I go tomorrow for a bone scan and chest x-ray for staging. Is it common to stage before surgery and the tumor has been diagnosed? What other staging tests should I have if it is cancer? Of course, surgery will be scheduled soon for a partial…
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Working/Job Search while dealing with smRCC
Medically, I have no evidence of cancer at the moment. However, I have pain from both my Naphrectomy and the wedge resection and am receiving care for the pain. (it is pretty severe at times). Professionally, my buisiness area is severely impacted by cuts in the federal budget. My company is contracting, eople around me…
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tomorrow - 1 year anniversary....
Tomorrow is my 1 year anniversary [ 06/12/2012 ] where I received the call from my Internist's office that she needed to speak with me that afternoon [ I had a CT scan - long story as to why ]. I remember her telling me, "these things are sometimes benign'. She even called a local surgeon and asked of he could do a…
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Am I the only one...
Am I the only one here who has not had surgery for Kidney Cancer? I have a 2cm growth and my team of oncologists thought it was better to leave it alone and start me on Votrient immediately. I have Stage 4 Kidney Cancer as the lymph nodes tested positve and I have a spot on my liver and lung. No tests were done on the…
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Scared
I am new to all this, just diagnosed with Clear Cell Renal Cell Carcinoma Grade 2. I have spent so much time reassuring my family that all be ok, when i actually i am scared to death. My tumor is a little under 3 cm on the upper lobe of my left kidney, i dont know what to think or do. i see my dr June 19th to plan for…
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new to kidney cancer (caregiver)
I am a caregiver to my mom (bestfriend) recently diagnosed with stage 4 renal cell cancer that has gone to the bone. She started on Votrient 2 weeks ago and her side affects are horrible vomiting, diarrhea, unbearable nausea,very weak and her blood pressure is going up mouth sores are just starting...she wants to stop the…
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Uh-Ohh, I Became a Test Mule Today
Hello again everybody. It certainly seems like I've become a lurker here again, but truth be known, I'm being held captive by the medical community, here in Los Angeles. (See my thread under New Kid on the Block). In a nutshell, (for the uninformed), I had left side radical Nephrectomy in July 2012, IL-2 last November, and…
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Husky Throat??
Hi all I was just wondering if any of you had a very husky voice after the op?? I keep thinking that can happen after such a long anesthetic?? Anyone else had this? Eims x
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Anything new?
I've been off on my motorcycle for the better part of a week. Did I miss anything? Welcome new members. Great friends and info here. I see that there has been much interaction. Also glad to see this post is self perpetuating. Let's hear it for nivolumab trials. I hope everyone can benefit from the current research. Love…
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chat room
hi all i was wondering if anyone else had a problem accessing the chat rooms? i can never get in eims x
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Oncology Questions
Below is a copy of what I posted in another thread. Just got to thinking about oncology. Do I need to see an oncologist before surgery? How do I go about finding an oncologist that specializes in RCC? As the uro surgeon I will be seeing also does clinical trials, should I still get a second opinion? I've noticed some of…
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Question about Size
Hello Everyone. 38 yo Male and a member of the club with a question about size. Seems my tumor was small 2.5 (Ct scan said 3.9). The pathology also said Stage 3a with renal sinus invasion and grade 3 (with the majority being grade 2.) My doctors seem to be giving me conflicting information. One is telling me that due to…
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Well..... looks like I'm in for the long haul
Went to see my oncologist yesterday and the results from my MRI showed the RCC has spread to my liver. She was seeing tumor experts at a meeting today and they will discuss what treatment I should start with. Her first choice is the IV infusion Temsirolimus since my blood workup suggests this would be the most aggressive…
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Nivolumab-Sutent Scan results
Great news today from the world of Nivolumab/Sutent. scan summaries for my remaining left adrenal gland tumor: 6 weeks scan-up 10% 12 week scan- down 30% 18 week scan today -down 50% Doctor feels like the delayed response is more consistent with an immunity response vs. the Sutent. i just found he site last week and…
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I lurk no more
First I want to say thanks to everyone here who have posted. As a fairly new kidney cancer owner, I had lots of questions, doubts, fears that I found answered, and assuaged by your posts. My tumour was found accidentally by CT for a suspected kidney stone on Christmas Eve. It turned out the flank pain was shingles but in…
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All shot up
An indoor shooting range near where I live made an offer to anyone who has or had cancer to bring their diagnosis to their range to shoot it. I went yesterday and brought my pre surgery report for my kidney cancer. My actual diagnosis is on a CD since it was a CT Scan. I used my Glock 23 40 caliber and put holes in it. I…
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All shot up
An indoor shooting range near where I live made an offer to anyone who has or had cancer to bring their diagnosis to their range to shoot it. I went yesterday and brought my pre surgery report for my kidney cancer. My actual diagnosis is on a CD since it was a CT Scan. I used my Glock 23 40 caliber and put holes in it. I…