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Nivolumab ( new official generic name for BMS936558 - MDX-1106 )
Just was told by John's Research Nurse that that BMS936558 or MDX-1106 finally has a name Nivolumab (generic). News on investment prospects: Bristol-Myers Squibb/Ono Pharmaceuticals’ Novel Immunotherapy Nivolumab Will Earn Sales of Nearly $400 Million in 2021, According to Findings from Decision Resources…
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Just wanted to say hello......
Hey Friends, I am guilty of not coming here very often anymore, but think of you all often and just wanted to drop in to say hello. A big warm hello to Fox, TX, MNGirl, Gary, Raj, Rae-Rae, OLG and many others, (Sorry for those I missed!). I am hoping and praying you are all doing well. How is everyone? I hope you all had a…
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New to site - Questions re high dose steroids
Hi all After 2 1/2 years navigating the turbulent waters of mRCC I found my way to CSN. I hear you all are a great group and might be able to offer some suggestions for me. Hubby is currently on BMS936558 + Votriet trial. Responding well to the meds but hit a snag in Oct when he developed pnuemonitis. Took a while, and…
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Funny bonz...
As I was lying in bed pondering the problems of the world, I rapidly realized that I don't really give a rat's hiney. It's the tortoise life for me! 1.. If walking is good for your health, the postman would be immortal. 2.. A whale swims all day, only eats fish, drinks water, and is fat. 3.. A rabbit runs and hops and only…
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Tivozanib – Coming soon another New Drug in the arsenal to fight Kidney Cancer
Posted November 28 2012 AVEO Oncology and Astellas Pharma Inc. said it has received approval from The U.S. Food and Drug Administration for filing the New Drug Application for Tivozanib. Tivozanib is an investigational compound with proposed indication for the treatment of patients with advanced renal cell carcinoma. The…
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First 6 month test results are in..
Just a little update and some good news..My results are in and all is fine. Dr says no more tests needed all is clear. So now it's onto living my life again and dealing with some heart issues like my CHF and some gastric issues which are just getting under control again, I hope. Got my finger crossed on that one. So it's 1…
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What's New in Kidney Cancer?
Hi Everyone, I got this link today via social media. It looks very interesting and I thought I would share it. It's subtitled "A Patient-friendly Summary of the 11th International Kidney Cancer Symposium." I've browsed some of it and I'll be reading a lot of the articles. I hope it's helpful to all.…
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Prognosis
I had one of my husband's family members want me to talk to the doctor and ask for a prognosis for my husband. His doctor has been wonderful and has said he will tell us as much as we want to know. I know I can't ask the doctor this in front of my hubs but do any of you suggest I call the doctor beforehand and ask? I know…
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Low-dose aspirin daily...
Given that aspirin is an NSAID... those of us with one remaining kidney should technically avoid it however I was told by my specialist to take one daily (81 mg) in order to prevent heart disease. It has also been shown, at least in a few studies, to have some cancer benefit. Does anyone else here take an aspirin a day and…
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Toast at 6pm
To all members of this forum, this evening at 6pm, raise your glass and share a toast to "us". We have all made good friends, shared our highs and lows, and felt each others pain. Here is to the positive, effective, influence we have given each other. To us, I toast to a happy Thanksgiving. Let us remember those who are…
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Screening
This finding should lead to better targeted spending? http://www.cancercompass.com/cancer-news/article/42839.htm?c=nl20121121#comment2055
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Partial or total nephroctomy?
Hi, I was diagnosed about 2 weeks back with RCC and the size of the tumor on the right kidney is about 4.8cm. I have met two surgeons - one recommending the radical procedure and the other has given me the option of choosing between partial/radical nephroctomy. I have no other problems and both surgeons believe the…
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NEED HELP TO PAY FOR MEDICINE?
I searched but did not see a link or information for this so I am posting it here. I hope this has not been posted before. Please read this info. It shows how you can get help to pay for medicine. Look for the company who makes your meds at the bottom. But please read the whole article, it has a lot of information.…
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Does anyone know how well a CT Scan can image your lymph nodes?
I'm looking to better understand how well a CT Scan w contrast can see the lymph nodes in the body. I'm sure someone on this list has some understanding of this. I was speaking to a friend [ offline - yes I do have a few of them ] and he asked the question. Made me start to think. That's not a question I have asked. I know…
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Happy Thanksgiving
As Thanksgiving approaches and I take stock of all I have to give thanks for, my friends on this Board are near the top. John’s cancer diagnosis was made a little over a year ago, and the past year has been full of ups and downs. But through it all, you guys have been here to listen, to give advice, to wipe away tears with…
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follow up - to CT Scan
As some of you know I had a very good 3+ month, post-surgery, CT Scan & Blood Work this past week. The one issue I have never asked herein, does anyone think I need a 2nd opinion on the pathology, which I never did receive, nor was it ever recommended by my original Dr. ? The reason I ask the question - I have spoken to a…
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First Scan
Hi, i have been visiting this forum since mid June. Never posted before, but have been praying for you all ever since. My mom just had her 4 months follow up ct scan, the result says she has small nodules in the lung, the biggest 4mm. According to her initial scan, these nodules were there and remain unchanged. So, my…
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RCC Ribbon Color
Since there are ribbons for cancer awareness, I was curious as to what is the ribbon color for Kidney Cancer. I did a quick search and saw that green or orange is for kidney cancer. What color is most known to be the ribbon color for kidney cancer?
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CT results 11-2012
From my 4 month, post-surgery, CT Scan. Stage 1 , Grade 1 - path report after surgery. CT - 11.14.2012 IMPRESSION: 1. Status post-right nephrectomy without evidence of recurrent mass within the right renal fossa. 2. Within lower-pole left-kidney, a simple cyst is again noted, 1.13 x 1.46 3. No evidence of retroperitoneal…
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Anyone heard or have thoughts about Therasphere?
RCC Stage IV has now moved to Liver. Affinitor may have stopped working but other spots have stayed about the same size so doc still trying out Affinitor. Hopefully MDX is a possibility down the road. The Doc has my Dad signed up for Therasphere where they shoot glass beads into the liver and they attach to the liver walls…
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EVERYONE Diagnosed with Kidney Cancer should listen - AUA Renal Mass Webinar (Part II)
http://www.youtube.com/watch?v=CLpixs3yvZQ&feature=relmfu
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Has anyone ever heard of Virotherapy?
http://www.news-medical.net/health/Virotherapy-What-is-Virotherapy.aspx http://www.news-medical.net/health/Virotherapy-What-is-Virotherapy.aspx
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Patient and Survivor Conference
For West Coast people-or travelers, there is a Kidney Cancer Association Conference on December 1, 2012 at Cedars-Sanai Medical Center in LA. Regisration and Cont. Bkfst from 8-9 and is adjourned at 2. Go to kidneycancer.org for more info. Or search for Kidney Cancer Association of America. Speakers and panels on: Role of…
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Kidney cyst and adrenal adenoma in RCC survivor...
Hi and thanks for putting up with me as usual... After having renal cell carcinoma and radical nephrectomy on my right kidney in 2000 my recent CT scans have turned up a 2.0 cm adenoma on my left adrenal gland and a 1.0 cm cyst on my left kidney. Obviously being a cancer survivor these findings freaked me out at first but…
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ARE THESE SYMPTOMS ANYTHING TO BE CONCERNED WITH
I had my right Kidney removed and the surrounding lymph nodes in December 2011 and due to financial reasons and doctor leaving the area havent seen any doctors since April. I have been having pain in my back where the kidney would have been and it runs down to the buttocks area which I assume is just something that is…
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Vitamin D
There appears to be a correlation (but not necessarily causation) between Vitamin D status and Renal Cell Carcinoma. Just wondering if others on this forum have found that to be the case and if you are currently supplementing? I found out that I was deficient after my bout with RCC and have been taking a high dose everyday…
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The time has finally arrived.
Hi all, just to let you all know that I finally go for my radical nephrectomy tomorrow (12th). Its been a long 4 months and I am still extremely anxious about the surgery, but have taken heart from what others have had to say on this forum. Thank you all for your support, it has been appreciated. I will post again when I…
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Kidney constant dull pain
Hi everyone! Figured since I hadnt been on here in a few months I would check in. Been doing fantastic these last few months. Almost 9 months after having the tumor and grade 1 and 2 removed I have been all over the USA traveling, got a work promotion and have an awesome new boyfriend. The only thing that worries me is…
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I'm new to the group
I went in for an MRI to check for spinal stenosis when they found two spots on my right kidney. Went back for an ultra sound and then a CT. Decided to have surgery on Oct. 4 2012. Opted for the davinci (robotic) surgery which is quite amazing. The doctor sat at a console approximately 10 feet away from a six arm robot to…
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New scans
I had my most recent scans and they showed stable disease, not exactly what I wanted but I will certainly take it. My next decisions are to maybe have surgury on my leg and put a prosthetic femor bone in the place of my broken one, this may or may not disqualify me from the mdx/ sutent trial that I am on. I've done a lot…