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NED today :)
Hi Everybody, Got results of my Chest, abdomen, and pelvis scans today (all without contrast). My first scan was 3 months ago and surgery almost 8 weeks ago. My oncologist said he ordered these as a post-surgery baseline. I'm looking for opinions on a few things. A couple of these are for MedScanMan and the rest to…
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Wishing You All A Great Weekend
Here in Canada we have Labour Day on Monday. Whether you have a long weekend ahead or not, I wish you all a peaceful, and relaxing weekend, filled with family, friends and the things that bring you joy. Live in the moment and make every moment count. God bless you all. No matter how good or bad life gets, each of you has…
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Happy Friday...
Burma Shave REMEMBER THESE ? ? ? > > For those who never saw any of the Burma Shave signs, here is a quick lesson in our history > of the 1930's, 40s, and '50's. Before there were interstates, > when everyone drove the old 2 lane roads, > Burma Shave signs would be posted all over the countryside in farmers' fields. > They…
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ccRcc diagnosed 08/03/2012
Hello. I have been reading the posts here for a few weeks as I try to get a handle on this whole Renal Cell Carcinoma thing. I was diagnosed August 3rd with a large mass on my left Kidney 10cm, and ever since then it's been a confusing ride of tests, guesses, and assumptions. I have been trying to learn everything I can…
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How does MDX-1106 work?
I've been asked to explain how MDX-1106 works. I will describe this process in simple laymans terms. As a result it may not be entirely scientifically correct. But the idea and concept are close enough to share during casual conversation. MDX-1106, also known as BMS-936558, or anti-PD1 is a natural human monoclonal…
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Post-nephrectomy annual follow ups?
I had a radical nephrectomy Aug 30, 2010. I am coming up on my second anniversary! I'm in a slightly odd situation, doctor-wise. My wife works in an MRI center, and we found the mass on my kidney, as I was being a guinea pig for them to tweak their MRI protocols. The radiologist at her MRI center told me to get it checked…
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Sarcomatoid
I had my tumor removed on 8/8/2012. It was 11x12cm in size. I was told it was a rare form of Sarcomatoid type cancer. Not sure of what's next. I see oncologist in 2 weeks.
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surgery
I will be having lap partial neph in am at 730 just asking for your thoughts and prayers. when i get back home I will update. Thanks so much for your encouragement.
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MRI question for MedScanMan (non-cancer related)
I apologize for posting this here because it is not related to kidney cancer, but until I talk to my doctor, I don't know what forum to go to. I promise I won't keep posting here on this topic. I'm hoping the scan man can help with one comment on an MRI. When I mentioned some "weird" events to my Oncologist, he ordered a…
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Tumor located in the 'collective area' of the kidney & PNX nodes....
As most of you know I'm 6 weeks post surgery. I had a full Neph that was 5.0cm. I received a great path report. Stage 1, grade 1 w clear margins. As I've been continuing to educate myself & learning as much as I can from all of you, as well as, reading, etc, I've come across some very limited information regarding tumors…
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Does color of tumor matter?
I am one week out of a partial nephrectomy on my left kidney. I have not gotten the results of my pathology report back, but my doctor said the tumor was abnormal to him because it was "black" in color...and he had not seen that before. He told me he did not know what it meant. Has anyone else had this happen? How was the…
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Mild hot flashes
I'm four weeks post partial nephrectomy for a 4.1 cm tumour on the right kidney. Staged T1b , no evidence of any further spead on CT. ( diagnosed incidentally during an ultrasound for possible gall stones )Will have the pathology in a weeks time. Everything post op is fine healing wise, strength recovering day by day. ( 55…
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Liver metastasis
My sister was recently diagnosed with mRCC with lesions in lungs and liver. I've been reading up on this quite a bit and was initially feeling positive as I learned about all the new drugs/treatments available. However, I've recently come across several items on the internet that indicate those who have liver metastasis…
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Update: Surgery over... all that's left is the healing
Hi all - My surgery happened Monday (8/20) and I came home yesterday (8/23). Had a rough few days because of my reaction to pain meds, but got past it. Apparently pain meds and me do not mix. Now I am home and all that is left is the healing. Doctor said the cancer was stationary to the kidney and there were no margins. I…
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Successful Surgery Yesterday - Thank you!
Hello everyone, My wife Holly had a successful laproscopic kidney removal yesterday. The surgery went very well and she is recovering. The surgery lasted approximately 90 minutes and she is expected to come home today. Thanks to everyone for all of the thoughts and prayers. Tom and Holly
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Interleukin 2 here I come!
Well on my last scan I was stable. No growth and no shrink. So I have gone through all the test to qualify for interleukin(Stress, lung, MRI of the brain) and past. I will go in the Hospital on the 20th of September for my first round. I am looking forward to having this and also getting it over with. Any tips are greatly…
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Cancer by country & type....
http://visual.ly/cancer-epidemiological-overview-malignant-neoplasms
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Cramps
Anyone else here experiancing muscle cramps around the incision area.I am 10 months out and i am still getting what feels like a leg cramp in my stomach area close to where the large incision is just above my waist.
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Looking for a surgeon in the Dallas or Houston area
Hi, I usually post in the Esophagus Cancer discussion board but I have a friend looking for a surgeon for her mom. Her mom was diagnosed with Renal Cell Carcinoma. She lives in the Dallas area and is looking for a surgeon. She also has family in the Houston area so either location would work. Please let me know if you have…
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Diagnosed with Renal Cell Carcinoma
I stumbled upon this page while doing internet research on the condition I was diagnosed with last week. I never, ever thought I would hear the words "you have a 2cm mass on your kidney that we think is cancer and we'll need to remove it," in my life. To say I am scared is the understatement of the century. I maintain a…
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MDX-1106 part 6
Well, here we go. Of course, there is a refresher for old, and a synopsis for new. March 2011 led to a left radical nephrectomy. I was 59 years old, physical therapist. For years,( and I mean 40+ years) I weight trained 4-5 x a week. Ran 3 miles every other day..... By the end of the year, I was loaded with mets. Lungs,…
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Blood Pressure and KC
As you know my RCC was discovered as a result of investigating BP variances over the last 6-7 months. I met with my cardiologist today, who continues to monitor my BP and cardiac performance. He is confident that my BP will be better regulated and even return to normal once the tumour is removed. Good news is my Heart rate…
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My Scan
I had my first scan today.. (three months after my surgery). I have been so anxious about it forever so I was a bit disappointed that no one could give me any answers today. I was told, "you have an appointment with your urologist on the 30th and he will talk to you then" WHAT??? Im not waiting till the 30th to find out my…
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New to Kidney cancer.
Hi , I have recently been diagnosed with RCC. I have a 4 cm tumour in my right kidney and my specialist has told me that I need to have a Radical Nephrectomy to remove the kidney. Whilst I am coming to terms with the fact that I have Kidney cancer, I am struggling to come to terms with having to face a major operation. I…
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Green Tea....
FYI.... http://www.businessinsider.com/a-chemical-found-in-green-tea-makes-tumors-vanish-study-finds-2012-8
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Mr Scanman give me a wink please
Hi mr. Scanman just a quik question about the different types of contrast,i am wondering how many types there are and if any are less binding to our organs making them easier for our lone kidney to flush out,thank you and i look forward to hearing from you.
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Chewing the cud-from an older study
At the time of Dx in 2006, I assembled a volume of information about the new topic in my life-Kidney Cancer and surviving. Recently, I was purging some of it, and refiling monographs and items to retain. I came across an article co-authored by my urologic/oncologist/surgical specialist when he was at UCLA, "CA-A Cancer…
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Info on Mucomist/Acetylcyst dosing
When I saw my internist earlier this week, we were discussing the frequency and types of CT and/or Ultrasounds& Xray. Yes, I have pre and post hydration-very necessary to flush the contrast dye thru the remaining kidney. He then asked about mucomist and I said that has been prescribed for the day before and the morning of…
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Blood test could guide treatment for kidney cancer
A potentially valuable new development - typically, with this disease, apparently come up with by chance, while looking for something else! http://www.dukehealth.org/health_library/news/blood-test-could-guide-treatment-for-kidney-cancer
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Kidney function....or is it time to get a new Dr?
I am two months out from a radical nephectomy. Before the surgery, my creatinine was .85. I went is for my standard three month blood test (A1c, cholesterol and panel). the good news is my A1C dropped disgnicantly, from 7.1 to 5.7 (and my weight dropped 30 lbs). But he was very concerned about my Creatinine level. It was…