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To RCC survivors & families: your input appreciated
I’ve been a lurker here starting 25 days ago when my DH received the report from an MRI (for an unrelated issue) that a 3.6 cm mass on right kidney was “suspicious for RCC.” The rest of the MRI was “unremarkable.” Since then, the following has happened and I could use some input: DH was referred by his GP to a prominent…
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Mdx/ sutent trial
I finally get to start the mdx 1106 / sutent trial in the morning. I've been waiting to get the opportunity to try this since march, but have been held up by several things. The trial was delayed by 16 weeks longer than expected start date. Then my cancer went into my thigh and surgury was done, they inserted a rod for…
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Good Test Results
I can't brag about a new grandson, but my most recent Dr. appt and test results were good. My internist has now stretched his appointments to 6 months from every 4. But still do oncologist and his tests every 3 months. Anyway...Liver function OK-with only 1/2 to function. The one kidney doing well; Creatinine was 1.5 and…
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On a Happy note....
Introducing my new grandson (Declan joseph) born on August 14th at 9:53am .. 6lb 7oz & 18/4 inches long.. it was love at first sight!!!!! I am down in Philly with my daugher and son-in-law and new grandson as I type.. I dont want to leave but I have to.. 4 hour drive back to my home. I have my first cat scan on Wednesday…
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Brain MRI
I'm 5 months post op from a partial nephrectomy. I'm considered stage 1 but I've been having some new symptoms so my primary doctor is sending me for a MRI of my brain. I'm a little nervous but I'm used to all the doctors always saying I'm fine so I just figure it's nothing. Does the MRI of the brain include the whole…
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Nephrologist appointment
I had my first, post-surgery Nephrologist appointment this morning ( FULL NEPH 07/17/12 ). My latest bloodwork showed a GFR of 67. He said that for a 50 y/o male that number isn't much lower than someone with 2 kidneys. Is this right? He gave me NO limitations. I can take aspirin, too. He said a high protein diet to lose…
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Diag. 10/2011 t2a,n1,m1 Finishing 3rd round Sutent 8/17
Been gone awhile from here.Feeling good but still trying to come to terms with all of this. Just finishing up my Sutent and preparing for PET Scan..Bone Scan and what ever else scan! Been rough at times.Except for my dog,I live alone. Family is 800 miles away in Tacoma,Wa. I had to stop taking my meds. on Friday due to the…
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Clear Cell RCC - Another Recruit
Hi, I am finding it hard to get this post started. To know what to say. To introduce myself and write something that describes how personal and unique the past two months of my life have felt. Yet the more I read through this board, the more I see that this is a journey walked by so so many before me. So many familiar…
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Changing Dr's....and when is it malpractice?
I am really venting here. I have been with the same primary care physician for 14 years. About 8 years ago, I mentioned my concern about kidney cancer: my dad had it, and my paternal grandfather died of it. My physician basically said, you have no other risk factors, and dropped it. Three months ago, a tumor was found…
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Votrient side effects
My wife was surprised to be diagnosed 10 weeks ago with Renal Cell Carcinoma that starting with a CT scan for her back problems. After a diagnosis in Houston She had her left kidney, left adrenal gland, lymph nodes and a mass in her abdomen removed, she also has multiple spots on each lung. After a six week recovery from…
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Renal Cell Carcinoma Confirmed
The biopsy confirmed RCC today for my wife Holly. Kidney is coming out on August 23rd. Thanks for all of your continued thoughts and prayers. God is good. Tom and Holly
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Recovering from radical nephrectomy
Male, 55 years old. Had my left kidney removed on 7/24/12 withy 9.5 cm tumor and am doing very well. It was the "larger" surgery where there was a big incision and doctor had to remove part of a rib. I am, however, doing quite well. In fact, only a week and a day later I returned to work (desk job) and had very little…
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LONDON 2012 OLYMPICS
Is anyone on the western side of The Pond following the Olympics? If so, what do you think of our show? How have we done? Are you enjoying it? All of us on these threads can do with all the feel-good factors we can find. I've had some real highs watching the sports I used to most enjoy competing in - weight-lifting, rowing…
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stage 4 renal cell carcinoma
My mother fell and broke her humerus in Sept 2011. Due to that fall, the Dr's found stage 4 renal cell carcinoma kidney cancer. They removed her right kidney and gave her a prosthetic left humerus and shoulder. She recently broke her right hip (didn't fall). The tumors grew so fast that when she turned, her hip broke. She…
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Pazopanib vs Placebo 54 week study
Anyone else in the Pazopanib 54 week study. I am sure I am doing the right thing by entering the study. At least I am being watched closely. I have not had any real side affects so does that mean I am on the placebo? My husband seems to think that just because there are side affects it doesnt mean I will have them.…
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Pfizer/ Torisel Drug Trial - Update
http://www.fiercebiotech.com/story/pfizer-strikes-out-phiii-study-kidney-cancer-treatment/2012-08-10
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Yet another Newbie
Hello everyone, I first wanted to thank you all for your help, I have been circling your boards for about 3 weeks now and all the information that you discuss has been very inspiring and has made my short journey thus far easier to deal with. A quick little background. I was sent for an ultrasound to find out why I was…
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Surgery things to consider
Just reading my husband's radiology report and it seems all of the mets they found are at surgical ports. He had radical Nephrectomy Jan 2010 for 10.5 cm RCC performed Laparoscopic surgery with one big abdominal incision at the end to remove the kidney.Since the cancer was not in the lymph nodes I think all the spreading…
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scared for husband need help!!! collecting duct cacinoma mets to lungs...
my husband was diagnozed with collecting duct cacinoma on his kidney which now mets to his lungs a few weeks ago...they took out his left kidney and the tumor that was attached to it about 2 months ago...he should be starting VOTRIENT soon...to get rid of the mets...anyone useing this drug? and how is it going? i would…
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Genetics, Cancer, and our kids
I am just curious how others handle this: Talking to your children about the specific risk of cancer. As I have posted before, on April 30, a CT Scan checking for the cause of my abdominal pain (cause was probably gas) found a 6 cm mass on my right kidney. The kidney and tumor were removed 6 weeks later, and it was a Stage…
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Oncologist
I had a question for the experienced folks on this site. I have Kaiser Hospital insurance and they have been great on keeping me informed and I love my doctor. My question is my doctor is an Urologist and is continuing to follow me after my surgery for the next five years. Should I be followed by an Oncologist for future…
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New here.Need some advise.
I posted our story on a different post, but short version is - my husband was stage 3 RCC and after 2.5 years cancer reoccurred with 3 distant metastasis in the abdomen.He had chest CT Thursday, but his oncologist never called with the results. It seems we have to wait until his visit on 8/15 to find out if there is…
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Another new member
Hi, just thought I would introduce myself. I just found this site. I was diagnosed with Renal Cell Carcinoma in early April and had surgery at the end of April. Everything went well as far as that goes. The alien autopsy as I call it did not go as well. I had a 7.5 cm growth that extended into the fatty tissue but not out…
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Does anyone know anything abot this trial- IMA901 in Patients Receiving Sunitinib?
Hi, I am new here. My husband was diagnosed with stage IIIA clear cell RCC in 2010.He had nephrectomy on his right kidney and there were no mets in the lymph nodes. This month the CT scan found 3 distant metastasis- in his abdomen, near his liver and in the removed kidney cavity. We are still waiting on results of his…
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Grapefruit-sized mass found - contrast CT scheduled for Monday
So, my 44-year old DH went in for a chest x-ray due to recurrent (4+ mos) cough on Thursday. They scheduled a follow-up chest CT on Friday due to some minor atelectasis. Chest CT showed no cancer in the lung but showed a grapefruit sized mass in the vicinity of his kidney and adrenal gland. Dr. said that the mass was…
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BMS93558* Votrient trial (formerly MDX 1106) John's 12 week scan
I went with John to his doctor’s appointment yesterday and I brought up his thyroid/medication levels and questioned his need to stay on those meds. The oncologist agreed it was reasonable “to stop the medication for six weeks and see where we are at that time.” So John has one less drug to take for now. He also had a CT…
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Wondering if MedScanMan is still on duty? :o)
I've been reading your posts and it seems that you are going to be very popular around here! Thanks for giving your time to answer so many questions. If you have time I was wondering if you might define a few terms for me. I am scheduled to have my right kidney removed on August 20th and I am curious about a few of the…
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Cyst in normal kidney
I had a partial nephrectomy on 6/18/12. I am now cancer free :) . When they did the ultra sound, they discovered the cyst in my left kidney and a mass on my right kidney. Was more concerned about the cancer so I never asked about the cyst, don't even know how big it is. I'm guessing that the cyst won't turn malignant, but…
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Other Side Of The Coin
Hi…..I just recently came across this site and have spent hours reading your posts. What a wonderful place you have here. Strangers helping strangers. Strangers becoming friends and a community of survivors entwining themselves in the lives of others, with one overwhelming theme……………………to help. Although my case has had a…
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regarding renal vein/artery
I posted this a while on another thread as I need some help for someone though i'm not the patient. Few basic details of the person with RCC : stage 1, tumor size 4.8, clear cell, grade 2, location: mid-pole I need a few more info regarding the CT scan details which are as follows: What do you mean by: "The main renal…