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Test(s) news
It's been a hurry up and wait past couple of weeks. Had my yearly CT and they saw nodes in the thyroid gland the Dr. wanted checked more. Had an ultrasound of the thyroid, and yes the gland is enlarged and there are solid and semi-solid nodes. Next is a nuclear scan of the thyroid; but since I had contrast dye during the…
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One week post surgery-What now?
Exactly one week ago at this hour, I was getting in a car with my wife, daughter and sister to head for my DaVinci Surgery. I had a 2.5 cm mass on my left kidney, (found by accident) which turned out to really be close to a 4 cm mass post surgery. I have gone through most of the post surgical issues I have read on these…
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Anxious. Again.
I had my 3 month scan on Monday. Yesterday my Dr. calls to tell me he doesn't have the images yet, but the radiologist report sees something in the liver. The dr. says it may be from the surgery, (I had a bit of my liver taken along with my right kidney) in that it would be unusual to find this just 4 months after surgery.…
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Low GFR?
I haven't been here in awhile, and I've been trying to catch up with everyone. Hope and pray you are all doing well. Since I was on last, I had an upper endoscopy which was normal( seeing a GI dr. to finally find out the cause of abdominal pain which prompted all the testing which found the kidney mass) and I've had…
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Phantom pain
I had my left kidney laproscopically removed on July 16, 2011. I thought that I was recovering nicely. I have returned to work(desk job). Right after I returned I felt like I had a pulled muscle at my incision site. The pain got worse. I attributed it to wearing jeans too soon, so I went back to wearing dresses and skirts…
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Kidney Cancer Survivor writes Inspirational Autobiography (A Higher Calling)
I have lost both kidneys, ureters, bladder and a lung due to cancer. I wrote an inspirational autobiogrpahy. If you need a pick me up you can purchase my book at www.xlibris.com/SLMenzel.html. God Bless Everyone who suffers from this cancer. I am on dialysis three days per week it is no fun. However, I am still alive to…
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Pain after surgery
Ok guys. I have some questions about pain after surgery. I am 12 days post surgery and was just wondering if anyone has experienced what I am going through now. In the right kidney area where my tumor was removed it has started to ache terribly the past day or so. It has pulled a bit when I walk around however it didn't…
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follow up
My follow up with my oncologist was today and I am happy and blessed to report that the mass has reduced in size, my lungs are "exceptionally clear", nothing looks suspicious and I should be coughing that furball up soon. I am good to go for another six months. Rae
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post surg
Well found growth on left kindey.Had partial removal 40 percent to be exact.Surgey was bad spent a week and half in hosp. every thing went wrong .But I am alive now as i read all the post somehow this has not changed my life .I had no real feelings going into it or coming out.I know it sounds strange.I hope that everyone…
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Frustrated daughter of kidney cancer survivor
Hi everyone. It's been a long time since I posted here. My mom was diagnosed with kidney cancer 2 years ago and had a radical neph. At the time the doctor said they got everything they could see and he sounded pretty encouraging even though he said her cancer was much more aggressive than what they had anticipated. In the…
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More recovery questions
To those of you who have been through this, may I ask a few more questions? I am now 10 days post op, robotic partial laparoscopy. 1. My incisions are itching like crazy! I know this means they are healing, and it is good, but is there anything I can do? Cortisone cream maybe? Or just leave them alone? 2. Discomfort - I…
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23 Yr Old getting open radical nephrectomy - Any advice?
Hello everyone, This past summer I have discovered that I have an unclassified malignant tumour my right kidney. All of the specialists that I have seen seem to be baffled as to exactly what it is. The only thing they know is that it is malignant, but have no other information. Even the way the mass has formed is extremely…
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surgery recovery
Hello I just made a post so I guess I'm joining the crowd after learning lots from this forum the last four weeks. I had surgery for hlrcc (hereditary leiomyoma renal cell carcinoma) at NIH four weeks ago---it was an open partial nepherectomy and removal of my lymph nodes in the kidney area. I'm finding the recovery plenty…
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Nine pound weight gain overnight? First time on this board..
My Mom has kidney cancer and a MASS on her pancreas, unbiopsied. She gained nine pounds overnight! She is on water pills....anyone heard of this? I am at MDA fighting my on cancer (anal Squamish cell). I am her normal caregiver and it is hard to know these problems and not be there to help.....no choice this time though.…
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Had surgery Friday
Just an update - my surgery was Friday, DaVinci robotic laparoscopic for a 3cm tumor in my left kidney. The surgeon was able to remove the tumor and keep the kidney, it took 28 minutes (he had told me the time limit for clamping off blood flow to the kidney is 30 minutes). The whole surgery took 4 hours. I don't remember…
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got email from him
I got email from him last night. It's a partial removal, and everything went well. He said it's very painful. Now I am waiting for him to tell me when I can go to see him, and the most important, the pathology report. Best wishes to all.
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RCC in Left KIdney During Pregnancy
Hi, I am 25 years happy living girl from INDIA, I have been diagnosed with RCC in left Kidney during 3rd month of pregnancy ie on 6th April, 2010. After continuous discussions, Confusions and fear of loosing my child i got operated on 3rd May 2010 during 4th Month of pregnancy. The operation was successful due to great…
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Boyfriend is having a surgery today
My boyfriend is having a surgery today. He has a 2.3cm and another smaller one in his kidney. They have been there for at least 7 years, and started growing recently. The Dr said there is 80% chance that he has the cancer, but nothing will be sure until the report comes out. Due to some arrangement, and current situation,…
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6-month follow up
Everything was good. However my liver showed to have some cyst on it. What does this mean? They have not recommended me to a liver doctor.
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Pathology Report
A while ago I asked a question about the meaning of these two items on the pathology report. No one responded, which makes me think that no one was sure what they meant or maybe they didn't want to alarm me. This is my layman's understanding of these two items now. On my pathology report, both of these were indicated as…
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6 month scan done
They did a six month scan on my wife and found a 1 inch mass where my wife's kidney use to be We are devastated at the moment. My wife was diagnosed with stage 2 chromophobe kidney cancer. It was an 8 cm mass. Her lungs were clear.
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Pity Party
Hello I guess that I'm having one of those days, and I told myself who better to understand than you guys! I was diagnosed with kidney cancer when I was 46, almost two years ago. I had the kidney/tumor removed. Been following up every three months. Recently found a small lesion on my remaining kidney. Doctor plans to watch…
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I am new here and thank you all who posting here
I am glad I found this place. Although I am not the one who got it, but my boyfriend will go through surgery in one week. The Dr didn't say what it is, and he has been monitoring it for 7 years, and no symptom at all. But since it started growing recently, they suggest to remove it. We knew it is coming 3 months ago, but…
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hlrcc
Hello I just posted on an old post about hlrcc cancer (hereditary leiomyoma renal cell carcinoma). Are there any other hlrcc people out there? I'm being followed by NIH and just had surgery 2 plus weeks ago for a small tumor. It is such an aggressive cancer that NIH removes any suspected tumors. They also removed my lymph…
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Rcc/COPD
I was diagnosed as stage 1 rcc of the clear cell variety. It was removed with a partial nephrectamy and was Completely encapsulated. Since then my testosterone Levels have fallen out , and after coming up with a cough That couldn't be cured I was diagnosed with COPD after a pft test . My concern is could this be Rcc in my…
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T1a survalence type and frequency?
Hello everyone, I am going to be going in to see my urologist to discuss survalence type and frequency for a T1a tumor that was removed laproscopically. I wanted to get feedback on what others have been told survalence type (chest x-ray, CT, US, MRI) and frequency (first year, years 2-5, and beyond). Any information would…