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Spindle Cell Neoplasm?
The preliminary biopsy results of the core biopsy done last week popped up on my portal as "Spindle cell neoplasm" and that it was being sent to a dermopathologist for a consult and results would be updated. I'm guessing I'll hear from doctor in the coming days. Everything I read is just confusing because it doesn't seem…
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Immunotherapy
Getting a little ahead of myself here but interested to know; Has anyone with a similar diagnosis to mine, ie: a tonsil yanked and a swollen lymph cut out (awaiting whatever chemo and radiation is forthcoming) ....anyways, Has anyone had any treatment / experience with immunotherapy either during, before or after the…
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Eating during radiation treatment
Hello everybody. I'm not from the US but I've been lurking here for a while now, searching for answers and information and I found this forum to be quite a useful place, so I hope you don't mind if a stranger joins this board. I have a few, quite urgent questions about nutrition. I've had neck dissection in mid-september,…
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Hello All
...and good luck to all of you. First, my breif history. Had a swelling in the gland / lymph area in left neck (no pain). Fortunately I didn't wait on it too long and after about 4 weeks went to see my regular doc. within 3 weeks of seeing him, I'd had a CAT scan (inconclusive) , seen a head and neck specialist for a…
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Pain after Core Biopsy
I had a core Biopsy done Tuesday on a periaruricular lesion abutting the underlying lymph node. It took well the doctors over an hour but he got a few core biopsy samples and sent it out for flow cytometry. It was a solid lesion, not a cyst as he first thought. I forgot to ask him about paim as it was numbed for the…
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Happy and Blessed Thanksgiving
To all here on the forum. May your blessings be many. I know they are you just have to count them. Feel free to add to this to send thanksgiving well wishes to all our members-Take, Care-God Bless-Russ Live in the present You may always be looking ahead to the next exciting thing. But when you do that, you can miss out on…
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HBOT & Extraction
Hello, all I just wanted to share with you all that several months ago I had a tooth (Molar right side second from the back) get sore and my jaw swelled up a bit. The dentist referred me to an oral surgeon due to my cancer treatment for extraction. Upon seeing him he recommended HBOT therapy of 30 treatments before…
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2 1/2 year checkup done...
...and all is good - chest x-ray, bloodwork scope and physical examinations. The only comment of any concern was from the hematology oncologist who said that my neck was a little tight and to keep after the daily stretching because "You don't want to let that slip away". No scar tissue anywhere, inside or out, and…
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Hello, and wondering about laryngopharyngectomy and non-curative treatment
Hi everyone, I'm new here. My husband was diagnosed in February 2020 with hypopharyngeal cancer, stage IV. He's been through chemo and radiation with Erbitux, which has shrunken his tumors but according to the 3 month post-treatment PET scan we just had, not enough to get rid of all the cancer. We've been told that his…
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Delays in CT scan wait time
Hi everyone, Hope all is well. So my dad had his routine (annual) CT scans for chest and head/neck last Friday. His appointment was on Monday to go over the results. But something weird happened. The results for the chest scans were there, but the neck CT hasn't arrived yet. The oncologist said the head/neck CT is reviewed…
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Ultrasound Tomorrow
It all started 5 months ago. Symptoms of having a raw throat, whitening of my pharynx behind my jaw line, increased anxiety, an ulcer that hasn't gone away located behind my left bottom wisdom tooth, right ear pain, pain surrounding my larynx and in the bottom of my jaw, all leading up to having a hardened buldge on the…
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Rads' Gys confusion/discrepancy?
An 11 year and 7 month Nasopharyngeal Survivor, unknown Primary, I have the final report from the Rad Dr. and her IMRT facts. 56 Gys from the chin up 60 Gys to top half of throat 68 Gys to bottome of throat So, how does this relate to the number of places that get "zapped" with Rads/session? I had a co-worker get zapped…
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Swallowing and gagging years after radiation?
Has anyone experienced subtle swallowing diffculties... or more like chocking on food/gagging while eating years after finishing treatment? It especially happens when I talk or laugh while chewing. I finished high dose radiation and chemo for head and neck 3 years ago. I had different types of swallowing problems…
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Healios
Has anyone tried Healios Or manuka honey? I have read some very very positive reviews on both with almost everyone that have used them. TIA
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Side Effects
There are some little known, not so rare side effects that they don't tell you about. First is fairly well known - Thyroid, you have just deep fried your thyroid, its NOT happy, the Thyroid numbers going up, are not good. Second - Baroreceptor - Didn't know you had that did you? We all have Baroreceptors, on our carotids,…
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HBOT Complication Has Anyone Ever Experienced This?
I have been taking HBOT (Hyperbaric Oxygen Treatment) in preparation for having a tooth pulled to avoid complications and the possibility of osteoradionecrosis (ORN) since I had 2 previous radiations in the H & N area. HBOT treatment started on Sept. 14 and I was to receive 30 treatments and then have the tooth extracted,…
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Recently diagnosed, mucoepidermoid carcinoma
Hi all, i'm a 31y/o female new to the forums here and I just recently had a parotidectomy to remove a 1.5cm cyst just below my ear. I received the pathology report which ended up being a low-grade mucoepidermoid carcinoma. If anyone else has experienced this, how was your treatment? I don't know what is going to happen…