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Hope This Helps Folks Get Past a Bump in the Road
Saw this at the health campus yesterday and I enjoyed the message and wanted to share it.
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We lost a very special member yesterday, 12/29/19
Hello all. I have not been here for a while but some members from here are also in a FB group. Our member known here as Phrannie, on FB as Jackie, gained her wings last night. I am pasting the post from her family so the info is correct and not miss stated. Phrannie was a great person, always positive and straight forward.…
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Tinnitus
Hello to the group, it's my first post. I am 4 months post treatment for HPV+ SCC in the left tonsil. I also had one lymph node on the same side excised which was how the cancer was discovered. Fortunately, the cancer was encapsulated within the lymph node. I was diagnosed as Stage I with the new staging system. I did 33…
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Treatment Update
Just a quick update. I am starting radiation treatments tomorrow Friday the 27th and if I don’t miss any I will be done Feb. 7th 2020. They are avoiding as much as possible my old radiation areas and my throat, spine, mandible, etc. and just trying to do what is absolutely necessary to give me a good outcome and not cause…
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Chyle Leak
Hi. Has anyone here ever seen expereience a "Chyle Leak" after a Neck Dissection? Had my Neck Dissection surgery on 12/10/19. I had 20 lymph nodes removed and they showEd no active cancer! I had chemo(3 cisplatin) and 35 radiation treatments on left side for Stage IV Oropharyngea, HPV 16. I've been placed on a 2 week…
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A Christmas Blessings Invite Post For All CSN Folks
To join on this post and send Christmas Blessings and Thanks to H & N members or anyone else you may have on your heart. Or you can just say what you are thankful for during this Christmas season. I want to thank my wife #1 as she watches over me and takes care of me, knows when I am weak and strengthens me, stands by my…
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Anyone use medical marijuana?
Two years after my surgery for BOT HPV-related tongue cancer, and a full neck dissection/took 63 nodes, I'm dealing with chronic neck discomfort. Been examined thoroughly by my ENT, surgeon and radiation oncologist, had a CAT scan and multiple larngoscopies, no one's been able to ID any malignant cause of the…
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Checking in
Hi all I'm a long timer which possibly makes me a senior citizen of this website. (Everybody has to be sonething) Yesterday was my ten year anniversary of a full neck disection and today I return to the University of Pennsylvania for a yearly check because last year the **** showed up in my right lung. I see a lot of new…
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Worried that I have neck/throat cancer
Hi Everyone, I am looking for some help or possibly some guidance/insights (apologies for the long post but I would greatly appreciate any help): -My troubles started about two months ago when I woke one day and felt a bit of soreness on the right side of my neck under the jaw (it's really hard to describe the feeling…
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Neuropathy
I completed treatment (35 radiation, Cisplatin and 5FU followup) back in June. I'm still experiencing Neuropathy, in my forearms, hands and feet. My Oncologist said it should start fading in 6 months - and I'm getting close to that, now. But, I still have the numbness. It isn't painful - just irritating. I'm able to lift…
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Tongue tiec
I had surgery for SCC a and now I'm tong8e tied.
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ROLL CALL 2019 - CLOSED, CLOSED, CLOSED!!!
PLEASE READ ROLL CALL 2019 Fourth UPDATE November 26, 2019 All H&N members are welcome! Roll Call is dedicated to the memory of HAWVET (JOHNNY) who’s curiosity to know and to share a little bit about members of the Head and Neck Form inspired him to start and run this thread (2008 thru 2014). Thank You. ROLL CALL…
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Radiation follow up
Treatment post-operation of the lymph node that was not encapsulated but had gotten outside of the lymph node. They call it Extra-capsular Extension. They removed the lymph node, some muscle, and a jugular vein. It was also on the carotid artery and they were able to peel it off. They are recommending follow up radiation…
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Taste & Saliva
One of the big questions I had after finishing my treatment for HPV 16 tonsil / lymph node cancer was when I was going to get my taste and saliva back. I had 35 rads and 3 high dose cisplatin treatments. For me, this was one of the hardest things I dealt with. I would look thru these threads all the time to see the…
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Pills that cannot be crushed for Feeding Tube
Asked 2 Pharmacists, one w/CVS, if the meds I am on are okay to crush, mix with water and shoot into FT. One did not know. The other thought one was okay, but another one he didn't. So, I did some searching. ismp.org/recommendations/do-not-crush ismp stands for Institute for Safe Medical Practice. The one med I was told by…
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Only 2 rounds cisplatin
My husband only had 2 rounds cisplatin due to hearing problems developing. Completed all 35 radiation treatments without interruption. Anyone else experience this? We were told only about 50% complete all 3 due to side effects.