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Bleeding on neck
Does anyone have any advice on how to deal with bleeding on the neck? My husband finished his proton therapy yesterday and he has an area of his neck that keeps bleeding. It forms a scab but we have been putting neosporin and a non-adherent bandage on it at night so he doesn't get blood on the pillow. During the night the…
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Transition from PEG to "real" food
I have really been struggling with the depression and anxiety lately, which doctors and everyone here has assured me is normal. One of the things that I KNOW would make me feel better is getting off this dang feeding tube. I know I shouldn't push it, but it would make me feel so much more like I'm headed in the direction…
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Constant Cough
On August 5th. I had a tumor removed from the base of my tongue near my epiglotis. I have had a constant cough since the surgery. Has anyone else experienced this situation?
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Tongue reconstructive surgery
Well, it's been 4 months and I'm still struggling with my tongue. It's apparent it won't get much better now that it's healed. I can't envision having my tongue tied the rest of my life. Has anyone had post surgery reconsruction of their tongue? Mine is tied down to the left and is having a significant affect on my speech…
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Week two post treatment feeling blue
Tomorrow will be two weeks since I completed treatment and I'm feeling blue. My energy is slowly coming back, although I nap at least once a day. Still not eating other than tube feedings because of pain, but starting to feel like it's a possibility. Had a lot of nausea last night and today (threw up tube feedings) and…
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week 4 and 3 to go
Hubby started this journey by saying, "I have to start in order to finish." He has finished week 4 and is surprisingly good. He does have a lot of mucous and dry mouth at night that has him up a few times, and naturally he is increasingly tired. He reports throat pain, but is only taking acetimetaphin right now. He has a…
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Scary message from rad onc after the CT and mask-making
I just had my mask made 5 days ago. As you all know, they do a CT scan at the same time. Well, I got an email message from my rad onc early this morning, stating that he saw a number of lymph nodes on this week's CT scan that he thought may be wise to further investigate with ultrasound, and possible biopsy of the nodes,…
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Bone Scan Wednesday
I do not work because of Cancer side effects. I had stage 4 sqamus cell carcinoma with 7/8 of my tongue removed and a secondary in my neck. I had a double neck dissection with cancer in my neck. I had 6 surgerys along with Cisplatin and radiation. Something my doctor thinks Cisplatin makes my joints hurt so bad i take 90mg…
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Dysphagia Post - throat (hypopharyngeal cancer) radiation treatment
All, By God's grace, my father is cancer free for past 6 months. He completed his stage 4 throat (hypopharyngeal cancer) treatment 6 months ago, which included 3 rounds of neo-adjunct chemotherapy followed by chemo-radiation (33 radiations). After radiation, he is aspirating when he tries to take in liquid and solid food…
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New primary or ulcer after radiation?
I finished radiation early June and things were healing quite smoothly. A little over week ago I noticed something new and it wasn't like the blistery ulcers from food that I had been getting several weeks ago. This only slightly hurts if I push on it with my finger. I called my surgeon immediately and she recommended that…
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prostate biopsy
Some of you may know that I was diagosed with prostate cancer in 2013, it was the lowest grade possible and had not progressed up to my last biopsy last year, tomorrow I go for my annual biopsy, absolutely no fun, so keep me in your thoughts as it is very uncomfortable. Denis
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Opinions about weekly chemo. Yikes!
Does adding weekly 40 mg. Cisplatin to rads just enhance the radiation side effects, or does it add some side effects of its own? I'm post-surgery (June 30) and waiting to start rads in the beginning of September. Here's the thing. The major cancer center in Baltimore where I had my surgery allegedly presented my case to…
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New member with obturator
I posted yesterday 8/24 but can't find my post so will try again. Does anyone have an obturator, and what can you eat with it? I've had my final obturator since Jan. 2016 but am unable to get beyond a soft diet. Still have some mouth pain and am on opioids, low dose. I'm also working with a swallowing therapist, doing…
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New Caretaker
Greetings everyone, I haven't posted earlier but I sure have been reading this forum for a couple of months. My husband had a small "dysplasia" on inside his cheek that his ENT decided needed to come out and was certain it was nothing to worry about. Imagine my surprise, make that nightmare, when he came out after surgery…
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Checklist for general practitioner
For those of you who follow up with your general practitioner....this links to a useful list your doctor should be aware of. It details some of the issues specific to the side effects from treatment of head and neck cancers. http://dribrook.blogspot.com/p/americancancer-society-key.html Barbara
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Arnicare Gel for Throat Post-treatment
Me Again with a Suggestion you CAN get. 2 wks ago was cleaning out my Medical Supply Cabinet. Low and behold found an old tube of Arnica that both my husband & I used from eye surgeries 8 years ago. It really helped with the swelling, pain, and reduced the back eyes dramatically. I can't believe I forgot about this All…
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mucoepidermoid carcinoma
Hello.... I would like anyone to get in touch with me that has/had the same thing i have....mine is in the base of my tongue...i can't see it but if you stick your finger down my throat you can feel it...(i didn't do that myself the dr did :-)) Anyways i have a lot of q's please & thank you
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Which oncologist to manage post treatment care
My husband has HPV+ oropharyngeal cancer. Primary tumor in left lingual tonsil with two lymph nodes in neck effected. We live in Utah but he is on his last week of proton therapy plus weekly Cisplatin at Scripps in San Diego. My question is who should be in charge of monitoring him when we return to Utah. This journey…
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New member with obturator
I'm a new member who has an obturator. See my CSN space for more info. I'd like to talk to others who have an obturator to ask how you manage it and what you can eat with it. I'm almost 2 years post-treatment and still dealing with mouth pain, taking pain meds. I haven't been able to move past eating smoothies, blended and…
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New Member
My husband had his 8th Rad today for stage 3 tonsil cancer. Anything he can do to prevent mucositis and so forth. Is drinking lots of water, salt and baking soda rinses and mugard. I am very nervous about what is to come in the near future! Trying to head anything off if possible!
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Introduction
I am from Southern Illinois. I am 64 years young! My wife and I will celebrate our 40th anniversary in Dec. My wife is a survivor of oral and breast cancer. Her initial diagnosis was in 2005. She is my hero! In early July I was diagnosed with stage 2 squamous cell at the base of my tongue. I was revered to Siteman Cancer…
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Hearing loss
Before hubby started treatment his doc did a hearing test on him (just in case). During treatment he had super sensitive hearing, but not what you'd call "loss" in any sense of the word. It wasn't until after he was nearly done and afterwards that we began to discover that he had 30% loss. At the time it wasn't high on our…
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Still getting sores?!
I finished rads on June 30th, about 7 weeks ago. I'm making good progress on recovery but noticed that I'm still getting sores popping up on the sides of my mouth towards my throat. They are not large and don't really hurt. They're just annoying when I eat. They seem to appear and reappear in the same spots. How long does…
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At The Concert
I had stage 4 tongue cancer with secondary in my neck lmphnodes. They removed 7/8 of my tongue and replaced it with my thigh. My wife and another couple went to a concert to see my wifes favorite band REO Speedwagon. My wife does not do well navigating from the seats to the concession stand plus she wanted to see this…
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week 3
Hello all....to those finishing up rads/chemo...CONGRATS!!!! I am really happy for you. Hubby finished week 3 of radiation and week four of the eribitux. He has been swishing, swashing, spitting, swallowing, and rinsing, as well as rubbing creme on his face. Woke up this morning with pain (just like ya'll said he would)…
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Chemo week three tomorrow
My husband is in the Siteman Cancer Center program which includes Cisplatin and Abraxane every three weeks for nine weeks. On the weeks he does not have both he has Abraxane only. The side effects thus far are body aches (Back and legs mainly) and fatigue. Legs also ache, but we think it was because his sodium level was a…
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Just finished first clinical trial treatment this week
I had HPV+ SCC in my left tonsil and soft palate (Stage IV) in 2014, and had HPV+ SCC in my right lung and lymph nodes (Stage IIIa) at the end of 2015. Both times I had chemo-radiation, the first time with cisplatin and the second time with carboplatin+taxol. The three month PET scan was all clear, but at my six month PET…
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5mm Lung Nodule
In July 2010 i had stage 4 cancer on my tongue and lymphnodes in my neck. I had surgery to replace 7/8 of my tongue and a double neck disection. Along with chemo and radiation. On August 16th my left ribs was hurting behind them. I was tirder than i have ever been. Also i was having problems breathing. With my shoulders…
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Louisiana The Great Flood of 2016
Photos of our Neighborhood 1 day after the flood Hi everyone this is a video of Avies Knoll where I lived for the past 17 years, stop the video from playing right at 808 and look to the bottom left side you will see my White Truck and the Green roof on my work shop. We did ok and did not get flooded but everyone else and…
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Just checking in:
Hello to all, It has been awhile since on the board but just had my annual CT of head and neck with dye this week and NED!. All clear at year 3 having had SCC BOT stage IV HPV16+. I never take feeling good for granted. Had a lovely lunch with Phrannie when in Montana, She is amazing. Youngest daughter getting married in…