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Head and Neck Cancer

Archives for July 2014

Out of the box ideas for Trismus
Hello everyone Brand new to this forum (not brand new the NPC), diagnosed 2008, and 2012, same spot same everything, came back 3.5 years after first treatment with chemo and rads. Took me a good 2 years to recover from the first treatment with minor issues. Second treatment has not been so kind. Everything above the…
Swallowing worsen after 12 yrs
Hi I am a cancer survivor after 12 yrs. I had nashrygeal cancer I. 2002, had radiation, chemo and neck surgery. Had feeding tube during my treatment and had it remove few months after. the side affect from all this treatment was dry mouth but i managed to have food by mouth. Only food I can eat was anything with sauce. I…
Off of the fan!
Long day but good results. MRI at 11, Doctor at 1. Doctor likes what he saw. Tumor is still shrinking. He showed me the comparison of previous scan and todays. Another doctor at 4. The chunck that came out of my upper gum area looks like shrinkage. The area is 'communicating' with the sinus area. I don't know weather to…
need your help-MD Anderson Cancer Center decline my appointment application
Just now i knew the center refused my application of appointment because my current CT scanning and biopsy do not support I have the NPC. However, my biopsy is not good because my swollen node is small and the doc can not get the correct swollen tissue. In addition, my local doctor has small experience on NPC and i am…
Checking In
Friends, it has been awhile and have just been really busy with work and the kids being summer and all. It's been fifteen months since finished treatment and just had my quarterly visit to MDA Houston. All clear and the doc said no need to see me again till Jan! Very please with progress and everything looks great! Still a…
Update my biopsy on NPC
Thanks all of you for your pray. Today I got the biopsy result. The doc found most of blood cells, not lymph cell or cancer cells. Doc told me my lymph node is small and is difficult to get the tissue cells by needle. Doc took 5 times using needle. Doc suggest me follow up in one month if the node is getting bigger. I do…
5th one!
Clean PET/CT that is! A year and a half cancer free now! It took 3 separate treatments but it worked. Never give up. Best wishes to all my brothers and sisters on this board. Keep fighting! AB
Yet another lesion
I've only just got through all my treatment, really, it finished mid-March. Then there was the lump in my neck. That came back "acellular". This morning, I've found another damn lesion on the non-cancer side of my tongue. It looks exactly like how the tumour looked before the **** hit the fan last autumn. It feels the same…
Nasopharyngeal cancer (after radiation)
Hello, My father did radiation for Stage 1 nasopharyngeal cancer when he was 55 (2004). Ever since then he has been having back and neck spasms (severe) to the point where he cant sleep at night. His tongue has been deteriorate as well. Shrinking further back into the mouth and severe numbness where eating/drinking is a…
Very scary moment!
My 17 year old son has a swollen lymph node on the back of his neck. I immediately got him to the doctor to have it looked at....I don't mess around with bumps, lumps and other things anymore!! He felt positive that it was "just a swollen lymph node" but wanted to try to determine WHY it was swollen. The doctor said "let's…
Do I need HBO for an apicoectomy?
Hi, I'm 48 and when I was 28 had thyroid cancer. It actually was diagnosed when I was 19 (5lbs bilateral). Extracted and came back when I was 28 because an internist took me off thyroid for 6 months. Was given i131 and beam radiation in October 1994: Treatment site total dose Oropharynx, bilateral necks, R/L lateral 6840…
IMRT starts Thursday
Hey everyone! Hubby had his PET Thursday and the doctor said: "...PET/CT scan demonstrated considerable decrease in the size and activity of the FDG-avid disease surrounding the upper trachea and the associated active lower neck and mediastinal lymphadenopathy. In addition, the ground-glass opacities within the right lung…
bylateral neck dissection
Hello everyone,well just got out of the hospital for a bylateral neck dissection and have not seen my doctor or talked to him but only once since sfter surgery If i can remember which memory is vague the last thing i remember was that he had gotten all that was there and all lympnodes were clear he removed the old mass and…
Update from ENT
Swelling in cheek from cellulitus is gone but still have a fistula draining. Diflucan and anti-biotics atleast a month. He said sometimes when that infection gets involved with the titanium it can be a bear to clear up. I'm seeing an infectious disease doctor for it. Now that inflamation was down he was able to do another…
Comic Relief
I have been completely dependent on a G tube for about six months now, and I will live with it until this journey is over. I wound up with a G tube because my jaw won't open enough to get a JPEG in, and will barely permit me to be anesthetized. As some of you know, my G tube has been quite an adventure. First, in the…
Hole in Upper Palate / Up-date
Well I go to see my ENT tomorrow so she can check the hole in my upper palate again. Last time she check it, it was the size of a pencil now it is the size of a penny, I am not sure what she will say or want to do, that is what I am afraid of. Oh well just another day in the life of a H&N cancer patient with the gift of…
Another step forward
Went to both my radiation and surgery doctors last week for a check up.Both are happy with the way things are healing.Both grabbed pulled and all the good stuf to see how my thounge was doing.Radiation doctor was glad and surprized how well the swelling has gone in my tounge.Have been able to eat alot better and speak…
Johnnybegood Is Free
In the wee hours of the morning, an unexpected storm raged through and as it moved on, took the storm raging within my child's body. Hers was not an easy death, but she is free now. There is so much to say to each of you, but words will not come now. For the moment, just know that we love you. Love, Karen(Wolfen)
Carcinoma Perifora fossa T3N2M0 of my father
Hi All, After reading these discussions found this site very helpful during this drastic situation. My father 53yrs getting treated with carcinoma periforafossa T3N2M0 doctor suggested for ChemoRadiotherapy.Completed 2 chemo cycle 27 sitting of radiation.Now we are struggling with the bad side effects of Radiation.But He…
Saliva Glands Slow to Heal
Hello everyone, It's been a few months since I've been onboard. First of all I just want to say that you all are AMAZING ! The sincere love and concern that is expressed is so welcomed and appreciated! Thanks for being you! My husband just finished his second PET scan after treatment on July 1st, and his scan is clear!…
Hi all! Prayer Request
Hi all: Got back from Chatt/Nash. on Wed. Was not uneventful trip however! My best friend and I were going to Nash. in her van as we were supposed to bring some furniture back for another friend's daughter who's moving back home for awhile to go to school. Well, when I got to her house on Monday morning since the van had…
Nasal prosthesis help following rhinectomy
Hi, I'm new to this network having stumbled across it while searching for information about a nasal prosthesis. My beau, who is 73, was diagonosed with squamous cell carcinoma in his nasal cavity several years ago and before I came into his life. He had his septum removed and was told all was well. Less than a year into…
PET Scan
Insurance denied PET Scan for next week, MRI is still on. I guess that makes for less scanxiety, Not! Nurse did say MRI would show any problems in head (Matt, John, behave yourselves!)
Surgery Cancelled
Hi, 2 wks ago, I was diagnosed with hypopharynx cancer, stage 2. I was scheduled for a partial pharyngectomy today. Yesterday, the surgeons nurse called and left a message on my phone saying that they cancelled my surgery because my tumor (lesion) is too close to my carotid artery. I am shocked and upset because they want…
Hondoo
Hondoo, you say you can eat anything even a beefburger after it goes through the nutrimixer. What enjoyment do you get out of it, because you can't taste it. I can't taste the ensure drinks I cant even 'burp' so not even a secondhand taste. When you talk about your diet and eat anything I feel like your enjoying the taste…
Kindly requesting advice
Hi there everyone My name is Martin and I'm 35. I am from England originally but I now live and work in the States with my American wife. I only found this message board last night and first please let me say what an inspiration you all are, not just to sufferers but to anyone. I would greatly welcome any advice you could…
Ups and Downs
I got better quite quickly after my surgery, but radiotherapy nearly killed me. But I improved quite a bit. the last few weeks my lymphedema has come back with a vengeance. The worst is inside my mouth. I am doing my drainage massage religiously and I saw the lymphedema nurse again. It has buggered up my swallowing again.…
Acid Reflex and GURD
I had Both GURD, [ascid reflex] as well as a Hiatal Hernia before I had the Larnyx SSC. Even think it helped the SSC get worse. Now I have been told that when you have a Laryngectomy you often get Acid reflex. Well if you had it before it get's worse. Mine has been so bad at times,[everyday] that if I burp I tase acid. If…
HPV Tonsil cancer
Hi everybody. After discovering a lump on my neck I saw my doctor who took a biopsy. Long story short: Stage 4, HPV positive, squamous cell carcinoma. Primary site being the tonsil and base of tongue which spread to the upper jugular lymph node causing the lump on my neck. I just completed three cycles of chemo and 35…
My CT Scanning is good
This morning i saw my doctor and the CT scanning is well. Nasopharyngeal part is good and no cancer indicator. I am doing the biopsy and next tuesday i will get the results. In addition, i have submitted the appointment to MD Anderson Cancer Center for further confirmation. thanks for all your bless.

Head and Neck Cancer

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