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Thursday
This coming Thursday the 3rd July is my next appointment with the ENT at Hershey, will have a strobescope like always and then a meeting with the man. This will be my five year checkup for my larynx. Last July he said if the throat looks the same next July he will consider my larynx cancer to be cured. Throat still feels…
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Tomorrow's the day...
for my CT scan.....my ear is still tingling and still feels like it needs to pop. This last month has been nerve wracking, since I can never escape "the ear" reminding me that something is different this time around. Asking for good mojo, positive thoughts, prayers.....crossed digits too, if it's not too uncomfortable. You…
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Remind me...
...to never date any girls named PEG(GY) ever again. The date I had with her on Friday left me extremely sore and tired...and not in a good way...I'm still recovering...
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Squamous cell carcinoma of base of tongue also involving lymph nodes
My brother was diagnosed a week ago with squamous cell carcinoma of the base of the tongue (primary site) and also has spread to lymph nodes on both sides os the neck. He's a non-smoker (always has been). Information on the Internet is conflicting with regards to treatment and survival rates. Just looking for accurate and…
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It is more than cellulitus
Saw new ENT Thursday who delivered not so good news. The fibula they used to rebuild my jaw 2 1/2 years ago is dead. Will have bone scan to see if all or part is bad. It is exposed inside with no good blood supply. Also, my left vocal cord is paralyized. Don't know how long it has been that way. He said they will remove…
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Eviction
WHere can I go for help? Eviction next week. Been out of work w/out pay since cancer surgery in March followed for 7 1/2 weeks chemo/radiation
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scanxiety
Well just finished my scans were a CT and a PET scan today.I know that I have a small lump that we biopsied with a needle and found SCC again,Just need to see where the primary is,And that's the scanxiety part now the wait starts again for about 5 to 7 days,Hate the wait.
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One year....NED
My bloodwork shows that my thyroid is still functioning normalls (for now, they said!) and my chest xrays all came back clear. They have not done any scans and do not feel that any are needed. I feel so relieved! Thank you ALL for your encouragement last year. YOU helped me through!!
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Biopsy canceled
At closer look, the ONC went over PET and CT with radiologist. They determined the spot behind collar bone was a tracer and no biopsy was needed. That was concerning because he originally said "if we biopsy and it is cancer, it is less than 1 cm and can be easily removed. If, we wait and see and it grows it will be more of…
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NED for my husband
Hi guys, It's been a while. . its almost 2 years since my husband was diagnosed of NPC stage 2. . but we heard a good news from his doctor. He said that my husband has a clear mri result and no mass detected as of May 2014. So they decided to have his next scan after 1 year since after the 3 mri (6 months interval) all…
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radiation Nerve Damage
I have had radiation treaments that ended March 10, 2014, and since then I have had some new problem eveyday day the one I have now, is as long as I'm sitting down it don't happen but sometime I stand up and my legs start jerking and I have to hold on to something before I fall then my hands start jerking and if I I'm…
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ok all you smarty pants!
ok we got results from the scan...here they are There is a mild Asymmetric uptake and tissue thickening in the left hypopharynx extending into the left tonsillar bed. Uptake values of up to 5.3 are seen in this area (previous 11.6) the uptake is not focal and is likely related to prior surgery and radiation. No new focal…
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Lung-MAP Launches Trial
There is some hope to come ....Squamous cell lung cancer, is increasingly recognized as consisting of a host of relatively rare genomic subsets, each of which may require treatment with a different targeted drug. Clinical trial for patients with advanced squamous cell lung cancer:…
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Back to the grindstone....
All, any thoughts about returning to work? I'm not quite ready to return yet 2.5 weeks post treatment but am planning ahead. Any examples of how long before a staged return? I had neck dissection/tonsil out/3 cisplatin/33 rads. IM very active and eating well. Neck still a bit stiff. I know there will be lots of experience…
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MD Anderson
This place is incredible so far. In one day we met with 5 doctors that specialize in head and neck cancer treatment! They ordered new bloodwork, a new CT, and got all of the tissue from the other hospital overnighted so they can do their own pathological work up. each doctor talked with us for at least 30 minutes and…
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Boost VHC discount?
Hi Everyone. Is there a place where they offer discount for cancer survivors such as ourselves for the Boost very high calorie drinks? They have a program for Vitamix blender and so I was wondering if there is another one for the drink to use the blender with. PM
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Pet Scan today and now the dreaded wait..ugggg
Hunny had his Pet Scan today following up end of treatment...the cat scan at the end of radiation still showed the mass present...they think it is dead tissue..praying they are right...please join me in the prayers!
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Surgery Scheduled for tongue tumor
Finally got scheduled for surgery on July 11 (which sucks since it is my daughter's birthday). Dr Futran at the University of Washington Medical Center is going to perform the sugery. He says that the tumor is a T2 and no lymph nodes involved, but I have one that seems to be reacting to the tumor. So he is going to remove…
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Financial Aid
HOw do patients keep up with bills while undergoing treatment? I had extensive mouth surgery at the beginning of March and 4 weeks later started 7 1/2 weeks of chemoand radiation treatments. All this time I was not paid and it does not look like I can return to work soon. I get medical bills every day along with doctor…
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5 Year STGIII Tonsil Cancer ~ Clean and Clear...
Even though I'm struglling from the Whipple.... I just want to ofer encouragement for my fellow survivors, care givers and those battling... I have officially hit the five year post treatment mark... Clean and clear... So even though you may be going through hell, been there, or just starting this journey.... It does get…
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i am back :)
Hello all. Its been a while, hope everything is going well with all of you guys. I'm back home today from a 11 hours craniofacial resection surgery on June 17th. It went great, tumor is out and thank god haven't experienced any of the risks we had in mind. I wanted to check in and let u know that I'm back, and thank thank…
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Ice Chips, Mucosistis & Chemo
I'm just starting my second round (2 of 7) 5 day inpatient, 5FU & Hydrea along with 1x day radiation To my neck. I did did pretty well the first round, however I had mouth & throat sores starting at about day 5 chemo and progressing into about day 5 post chemo. The mouth sores made it Difficult to eat And swallow. RX for…
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Skiff Update ~ 22 June 2014
Well, friends and neighbors.... It's been two months now... I still feel bad a lot, but have at lease started having more days that are better than worse. This road to recover has been a mud slide, filled with pot holes and a few back sldies..., it's been brutal to say the least. Not taking anything a way from you gals and…
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New member
Hi, My dad was diagnosed with stage 4 oral cavity cancer (left side of his face ) with 1 postive lympnodes involvement 2 months ago and he already had the operation that remove the cancer mass and most of his jaw bone (because the cancer mass is already covering his bone) and also remove 3 lympnodes(2 left and 1 right ) 3…
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i need information about the effects of radiation
Hi.. I am new here and have read posts and comments all afternoon. I hope someone can help because we are scared and dr doesn't seem to have any answers. My husband was diagnosed with nasopharnal cancer in Jan 2013. It was in both neck nodes. We thought he had strep. He has gone through radiation and chemo. He had the peg…
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has anyone lost thir voice post treatment
Just wondering if anyone else has lost their voice post treatment? I am two years post treatment and just lost my voice a couple of days ago. Robert
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PEG tube feeding question - 8 oz. bolus anyone?
Hi everybody! First, I wish everybody here as good a recovery as I have been blessed with. I'm sure my "problem" is insiginificant compared to almost everybody here, but it is important to me. I went through the entire chemo/radiation treatment for cancer at the base of my tongue almost three years ago. Complications from…
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Peripheral Neuropathy and Hypothyroidism
I am 3 yrs. post radiation/chemo for H&N cancer and have just been diagnosed w/ hypothyroidism because of an elevated TSH number of 16.9. All other thyroid numbers are normal. The presription is for Synthroid, 25mg once per day. I feel great and the only symptoms of hypothyroidism I have are severe stiffness in both hands…
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Check in + vocal cord rad treatment info (for others in my boat)
Hi all, Just wanted to do a check in with progress, mostly for any others that come along afterwards in my boat. I've had a hard time finding info on people with vocal cord cancer and what their treatments were like. I've got stage 1 squamous cell carcinoma, vocal cords, treatment plan is radiation only. For those who like…
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trach tube removed
Last Friday the doctor finally removed the trach tube.I asked how long do I need to keep the gauze covering it he said about week.I have been changing it everyday but the thing is it hasn't closed up like I thought it would.Do you keep the it bandaged or just leave it open now and see if it closes as it is more exposed to…