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Update...
Hi everyone! Sorry for being absent for so long. I felt I needed some time away from the site as I was fighting through some of my recovery issues. I lost 60 lbs total and now I have gained 5 lbs back in the last two weeks. Wednesday I got the results from my first PET scan and I was given the all clear - phew! I wish all…
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Latest Update on Friend's Husband
Hi all: The lastest with Steve is rads going well. They saw reg. onc. Tuesday and Beki was a little discouraged as he didn't seem as optimistic as rad. onc. She had not mentioned a time thing until then and told me rad. onc. had said 6 mo-2yrs and reg. onc. was more on the lesser side of that timeline. However Steve cooked…
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Adenoid Cystic Carcinoma
Just started my journey of survival. Head is spinning, so many things being said, and what do you mean I am the topic. Feeling lost and uncertain.
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Update on Susan
Many of you have helped my friend Susan, by sending scarves,hats to help her on her journey with breast cancer. Today, I'm so thrilled to tell you..no more chemo, she is suffering with neruopathy in her hands and feet, and the Drs decided not to go on with chemo. Next week she goes to talk about radiation, there may be a…
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Is This Normal/Standard Practice?
Locally advanced tonsil cancer (Stage 4). Multiple lymph node involvement. No surgery. 7 weeks of treatment (35 rads and 7 cisplatin). Had one CT and then one PET scan a few months after treatment. Seen by oncologist every 2-3 months. Told will never receive another scan, CT or PET scan, or throat scope, unless physical…
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Bummer
We have been trying to go fishing together all week, Just us two and Tebow of course, but the weather wouldn't cooperate. Today is perfect for fishing. Jim was excited this morning but we had to wait until 12:30 because Tebow had an appointment then. Was getting things ready when my mother called about coming to sit with…
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Here's a curious question about eating
Hi guys have a curious question that me and my speach specialist were talking about.While she is mostly right now teaching me the new way to eat we were talking about spoons and forks.Every spoon and fork bends upward towards roof of mouth we were wondering if they make anything that bends down the other way to make it…
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Hello Mr. Ned Again
Friends, Had my eleven and half month checkup since completing treatment (MD said hell lets just call it your first year checkup) and all was clear and clean. Had CT and scope (which I just love!!!). MD very pleased with progress and healing --- will see again in four months. Will just need to have physical exam and chest…
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Been missing for a while
I've been away from the boards for awhile - not with any health issue - but working on our move We moved to Florida!!! Out of the bitter cold and snow of upstate NY to the sun and warmth of central Florida! We're still settling in, so much to unpack and put away plus waiting for the various utilities to connect. We finally…
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VIMEO Video of the mask - Skiffin can you help out here?
Has this most amazing video of the mask, and of a radiation treatment session been posted here yet? I found it very comforting to review, and it might be a helpful addition to our Superthread, if the thread accepts videos. Also, I have no idea how to link to a video but it is called "My Radiation Treatment" and is located…
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Mandibular resecting
I was treated for MEC BOT early in 2009 and have been declared NED on every scan since fall 2009. That's the good (hell, wonderful!) news. The bad news is that I've more than my share of side effects over the years. The most serious of them is ORN, which has progressed to me needing my left jaw bone replaced with a bone…
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Un-Remarkable...
And I kind of thought of myself as pretty remarkable... I started this journey as many of you... January 5th, 2009... diagnosed STGIII SCC Tonsils HPV+. Sixteen weeks of four types of chemo, seven concurrent with 35 daily rads sessions, bolted to a table and receiving daily injections of Amifosrine in my stomach each…
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Prayer request
My husband has a small spot on the upper lobe of his right lung, very suspect on PET. In fact, little doubt that it is cancer. caught early but he has COPD since 2008 (does not require oxygen) and he has A-fib which could be an issue. Normally, they would do a biopsy and then cone shaped removal. We see a Cardiologist for…
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One Year Post Treatment
Hi all! Today March 18, 2014, it has been one year since I completed treatment! It’s been a very long time since my last post, but I do visit daily for encouragement. It is hard to read about those just starting out on their journeys and hearing their stories, but good to see the advice and information given to them is the…
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neck lump
Hello, my 43 year old son discovered a lump on the right side of his neck. A trip to the Dr put him on antibiotics for 2 weeks. After 2 weeks the lump was still there. He was then sent to a specialist who did a biopsy and took cat scans. The cat scans showed nothing else anywhere in his body but the lump biopsy came back…
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Long day
but GOOD NEWS!!! Mr. NED is hanging around. Of course I had been worrying because of headaches in the last month. I thought I was going to need Phrannie and her horses to come and tie a harness on me to get me down from the ceiling fan. Nothing could be seen by the doctors on the MRI, should get the written report in a few…
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Uh Oh
So, I got scoped poked and prodded on Feb 18th and got the all clear. I had a bit of a heart scare as "scanxiety" reared it's ugly head and sent me to the ER with chest pain. After a full cardiac workup, I've been given that all clear there as well. Overall, I've been doing Ok at almost a year out of treatment. While I…
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tounge flap and eating
Hi everyone.Just wanted to get some feedback.Was with my speach specialist today and went though with her as she talked to my surgen.We went over the things that were done during my operation.She said that when they graphed in the tounge flap it was attached to bottom of mouth.I already figured I wouldn't be sticking my…
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Salivary gland cancer-SOS
Hi! My name is Kevin and god really has decided to make cancer a part of my life I guess. Im an 18 year old boy who lives in Florida and need some help and guidance, first I'll give you guys my background. As I kid I grew up in Texas, my mom was diagnosed with colon cancer when I was 2 and she received wonderful treatment…
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A wonderful day fishing.
Now that I can post again I wanted to share that Jim finally got his day out fishing. The nurse had said it was ok but only for 30 minutes. I cheated and let him stay an hour. We had to wait for the aid to bathe him so he was impatient to go. He was like a kid waiting for Christmas morning. My brother in law and a fishing…
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Update on Friend's Husband
Hi all: Back up and running so we can post now. My friend's husband who just found out about mets to brain begin radiation tx today. The meds the pcp physician gave him have already started reversing the symptoms he was having so he is now feeling better. They see reg. onc. tomorrow. But they did spend the night in their…
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Mucoepidermoid carcinoma Low Grade - Require Radiation?
Dear All, My wife is diagonised with mucoepidermoid carcinoma @ Hard palate last Nov 2013. She had undergone surgery and the pathology report has come as LOW GRADE. Post operation report comes as the tumor was removed with all the margins clear. Our Oncologist now giving us two option for further treatment, 1. Let to…
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update on my brother
First of all thank you for the prayers and warm thoughts directed my brothers way. He had the biopsy done last tues, (throat and sinus) and came back NO CANCER ! He is still going to have two pretty good sized lymph nodes removed from his neck on the 24th at the V.A. (assumming neck dissection) These will again also be…
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Not cancer related....
but this was SO exciting for me. A friend bought a team of Belgians, and invited Greg and I to ride along on a wagon ride....he even let me drive them!! My respect for the Budweiser drivers has been upped about 10 notches.....this was only two horses, I can't imagine what it must be like to control 6, 8 or 10 at one time.…
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Teeth
Hi guys, Just wondering about teeth.It will bw kinda far off but still thinking about.When the time comes and I go for dentures will my insurance cover it since they were removed during surgery?I do have dental but not sure just how much it will cover.
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CSN ~ Back Up & Running....
Looks like CSN had alittle malfunction for a day.... Not sure of all of the specifics, but we are back and running... I PM'd Greta late last nite, eraly this morning to let her know something was up... As Jan sent me a SN email to let me know she couldn't start a post. It looks like nobody good... Anyways, Greta got right…
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PET Scan - Report in short
In short: IMPRESSION: 1 Findings most suggestive of primary left tongue base tumor with metastatic left cervical lymphadenopathy. 2. No distant FDG avid disease. From my Dr.: I do have good news in that it doesn't appear the cancer is outside of the lymph nodes based on the PET scan. No other areas in the body affected.…
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Sanjay Gupta - Weeds 2 show Saturday
Sanjay Gupta has done a second TV special on weed. I missed the initial showing a couple days ago but it is going to be on CNN this Saturday evening. I read some quote about his "doubling down" on the value of medical MJ. Let's get some discussion going after watching the show. Don
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Hello...new to this page.
My husband was diagnosed last month with stage 3 tonsil cancer. Metastisized squamous cell carcinoma. After all the appointments with all of the oncologists, he starts on the 19th with chemotherapy and radiation. 35 days of radiation and 7 cisplatin treaments. Although the surgical biopsy isn't back yet they are sure it is…
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Got to meet Lorna
Happy to say that I got to meet Lorna yesterday. She had an appt. with the ONC where I was getting my chemo. Such a pleasure to meet. I didn't recognize her without her motorcycle helmet :-)