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ringing in ear
ringing in ear from rad. chemo any remedy out there
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Daily Calorie intake
Hi All: This is more or less an update to the Mouth Sores topic. I imagine that all of the various products take some time to work, however at this point, my mom can't swallow anything. She is actively using her PEG tube, but I am worried that she is not inputing enough calories. She is only putting about 3 boosts in there…
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Question
Can someone tell me how to post a picture here ...not a new proflie pic...but one in the body of a post. thanks
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My dad is about to start radiation/chemo for base tongue cancer....
Hello! My dad was diagnosed for the second time with tongue cancer, the first time was stage I and removed without further treatment, now it's stage III inoperable due to the location and moving forward with radiation/chemo treatment. We just had a pretty disturbing appointment with the oncologist who started to explain…
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NPC treatment inquiry
Hello Everyone. I am new to this website and forum. I am 39 years old asian male and have been diagnosed with NPC in the "early" stage. My treatment plan is 3 bouts of chemo (one every 3 weeks) and a daily dosage of radiation for 33 bouts. I just finished the first week of treatment and recently got thrush in the back of…
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Prayers Needed today for Skiffin (John's) Dad
My fellow warriors, Please add prayers today for John's father, Don. He is in the ICU in Florida. John and Shelley are headed there now. I don't have many details except that John's Mom found Don collapsed on the floor this morning. Prayers needed. Will keep you updated. Thanks in advance.
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3peat!
Yep, it happened! 3 clean PET/CT scans in a row! It's another new record. When something doesn't feel right I'm gonna have to start thinking it's something other than cancer. I haven't been on here for awhile but I never forget how much support I received when I needed it most. Thanks H&N gang! Peace and healing to you…
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Mugard - help...
Hi everyone. Pat finished day three of his radiation treatment today. He was well enough to drive himself to the treatment center, so I stayed at home to work on getting to the bottom of why we haven't been able to get the Mugard prescription. I know this is something that should have been started by now, but I have had a…
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Spot-Light on Ingrid ~ Happy Birthday
And just whose day is it...... Ingrid's.... Happy Birthday lovely lady and friend.... Always, John
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a bit of funny !
I was watching a show about mummies....real ones, not the monster movies. And they had put the mummy in a CT machine. All of the sudden the machine said breathe in, hold your breath, now breathe. After as many machines that I have been put in and scanned with.....I laughed til I teared up. Not one of these scientists even…
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stricture biopsy
Hi My husband had neck dissection in April this year and finished 6 weeks of radio therapy in June. He has been in and out of hospital with an infection and weight loss. Last time in July he had a nasal gastro tube inserted. He was discharged and felt ok for a few weeks apart from tiring easily and unable to eat much. Then…
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understanding pet ct scan
Just received scan and need to understand prognosis. Doctor is missing and will be able to see one on tuesday. The impression ; Hypermetabolism within the right submandibular space. There is a corresponding soft tissue nodule on the localizing ct scan. The calculated suv is 9.9 The uptake is consistent with malignancy…
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What is worse then not having Saliva.
After both my radiation treatments were over and having too drink water with all my food I thought that there was nothing worse then loosing my Saliva glands; well I found out that there is. As many of you know I am unable to swallow due to nerve damage from all the treatments. Not being able to swallow is something I…
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Speckled Perch, Crappie, Sac-A-Lait
What ever you call them where you are located.... I found a few of them today...; My hopes, thoughts and prayers for those going through treatment, and especially those that have gone through and now either recovering, or surviving.... Get out, do the things you love, and live life... John ~JG
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New Clinical trial for metastasis called Rigosertib
Hey guys, I wanted to let you know I started this phase 2 trial today. my latest scans showed that the tumors in my lungs had doubled in size in the last 3 months. Rigosertib works by blocking cell division in cancer cells and causing them to die. So here is what I read "Six head and neck cancer patients included in this…
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L-Glutamine Question
Hello all, I was going to go ahead and try the L-Glutamine for my husbands very dry mouth and very thick secresions(they are actually choking him) can anyone give me specific directions on how to use how often etc...? Thanks Christy
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urologist appt today
Today was my 3-4 month check up with my urologist for the prostate cancer. My PSA went down, that is good. He said there has been no progression of the cancer and I am better than he had expected. I got the good old finger test, no lumps or bumps, still good and soft, He checked for any testicular lomps, all good. Been a…
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October Change-Up ~ Couples
Thought I'd throw out a change up.... Couples photo..., hubby, wife, girlfriend, boyfriend, significant other.... The one that got you through it, and makes it all worth while. Shelley, my beautiful wife, caregiver, best friend, and significant other...., and her man (which happens to be me... :) ) This photo was from Ohio…
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First day of radiation tomorrow...
Hi all, Mixed emotions on the eve of Pat's first radiaition treatment. We are feeling prepared for what is to come, but still a bit daunted about what he will be going through...Feeling scared, while at the same time feeling excited (excited?!?!? this feels so wrong to say, but I think you all understand what I mean) to…
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Saliva Hope
Hey all, Dx June 2009, SCC right lymph node, primary unknown, neck dissection, feeding tube, radiation, chemo. I haven't visited for a long time. I really wanted to add my support here, but found that reliving the agony was not helping my emotional recovery. Sorry for that. My health is excellent. I'm posting now to let…
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Mouth sores
Hi All: Well, my mom has entered into her third week of a six week chemo and radiation treatment schedule. She managed to get the Mugard (during the second week of treatment). I am worried that the damage had already been done. She has had to start using the PEG tube, because her mouth hurts so badly. She is currently…
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Great Family Outing
friends, could not really even imagine the day I had with my wife and kids when I started this crazy journey in Jan of this year! Spending the entire day at the State Fair of Texas was such a blessing! Pig races, carnival rides, parades and fireworks! Not to mention fried everything!!! So thankful for such a day (and many…
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Going the wrong way
These last few months ,it seems things are going the wrong direction for me with the long term dealing with my cancer . Ended treatment for BOT SCC in April ,2010. I am happy to announce that all my scans are cancer free and my doctors say I am doing great . But because of a dentist , I have developed ORN and am going thru…
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this is for a friend at the H&N clinic
my friend is having rad for a cancer thats touching her windpipe and cant have an op. Shes been having rad just a bit longer than me and when I saw her this morning she has itchy rashes in patches on her arms, face and legs. They look angry but the skin beneath is still white, does this go with radiation, I know a lot of…
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I would like to thank
everyone who replied to my MOAN. I'm trying out the tips with mouth rinses. Sat was a dreadful day for me mentally, I was ready to give up. Sunday I wasn't as bad and after an early evening shampoo and shower and curled up in my jimjam I felt life wasn't so bad after all. Got through today at rads no probs, tomorrow is day…
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Getting back to "normal" after treatment
Hi Hubby finished his radiation treatments almost 3 weeks ago had a rough go of it towards the end and after not eating for almost 2 weeks went ahead and had his peg tube inserted with a week and a half left of treatment , a few days after the peg was placed he ended up with a massive blood clot in his lungs (1 giant clot…
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Chief Daddy Mike
Mike is in the hospital again with internal bleeding and some broke ribs. His blood pressure is running 176 \ 109. The Hospital did some testing and told him that his cancer was back then a few day’ later they said oh we made a mistake your cancer is not back. He is down, depressed and angry because he can’t talk or get a…
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13 rads and not doing well
I,ve done 13 rads so far on both sides of my throat and base of tongue. I feel dreadful, I,m queezy with the mucus. I have a lump either on thr base of my tongue or throat which acts when I swallow like a finger down my throat and I wretch. my swallowing is going again and I choke. my mucus if I was slug would stretch to…
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First Scan Post Treatment
Hi all - have my first scan post treatment tomorrow morning. Will then receive the results Thursday. I have been getting checked every four weeks but tomorrow will be exactly six months post treament and the first scan since the fun began. I thought I had been doing ok in the lead up but today (Sunday) the 'fear' as I call…
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Update
Hi Everyone I haven't been here for awhile, but thought I would write an update on Jeff. He is 8 months out of treatment and is doing pretty well. He has had a battle with thrush, which I don't think is completely gone. We see the ENT on Monday and will find out. He is even more froggy and hoarse. His taste was coming…