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Head and Neck Cancer

Archives for April 2013

checking out of Phrannies pocket bc NED is here!!!!!
Met with onc MD and surgical MD yesterday who said that PET was clean and clear, nothing lit up, no cancer cells reared their ugly heads. He did say that the landscape has changed and that there was "junk" left over from the enlarged lymph node that had a large tumor. But he said it was not cancer...just junk. THe surgical…
Help My Aunt...Repost for GYBOWMAN
gybowman Posts: 1 Joined: Apr 2013 Apr 09, 2013 - 5:43 pm Help my aunt My aunt had cancer and had half of her tongue removed. I suggested maybe I could give her some interesting soup recipes, since that might be easier. She said the radiation burned her tongue and ruined her tastebuds. She says I should imagine what it…
Severe nausea, any suggestions
My husband is in the middle of week 5 of radiation treatment, 10 more treatments to go. Done with 2 big rounds of Cisplatin. He is so nauseated and everything gags him, that he isn't getting much nutrition in. Getting 1 liter of IV fluids 3 times/week. Compazine, Zofran and Ativan not a lot of help. No feeding tube and at…
Please help: Peg tube question
I have read on here to flush the feeding tube before and after feeding. Does flush mean force with the syringe or let the water flow in slowly like the feed? Also has anyone used fruit and vegetable juice through the feeding tube? My mom started chemo yesterday and her instructions are to get 64-96 fl oz of fluid everyday…
2 weeks to go-tonsil cancer
In a lot of pain from radiation and sick a lot! How much worse will it get and how long for recovery? 2 weeks left of radiation.
Update on Best Friends Husband and all
Hi all: Beki's husband Steve has finished treatment but did spend last Mon-Fri in hospital as he was very dehydrated and not eating or drinking much. Also want to ask y'all. They have given Steve morphine pills for throat pain and I have kinda wondered about that at this point. Now part of the idea I understand is to take…
Round 2 And Still Standing
Hello All, Hubby finished his second round of chemo today. I have learned that Erbitux is actually called Biotherapy, while Taxol & Carboplatin are Chemotherapy. The plan, as it stands now, is to get the Erbitux every week for 9 weeks and every third week to get all three. The doc agreed to no Benadryl, but did have some…
Dad coming home Friday
Wanted to update you guys with some good news. Dad is getting out of rehab on Friday. He still needs a wheelchair. But, his walking is getting better. He can stand really good with his cane. When he is getting out of the wheelchair he only needs me to guide him. He is still using the feeding tube, but doing good. Thanks…
Allergies
My throat has been acting up the last few days. Hard swallowing, sores on the roof of my mouth. I have always had allergy symptoms around this time of year but I can't really tell if its allergies or not. Foods with. Tomatoe sauce seem to be particulary hard to get down recently- even though it has been going down pretty…
spindle cell squamous (sarcomatoid) carcinoma
My sister 34 was just diagnosed with spindle cell squamous sarcomatoid carcinoma after a dentist apt for what we thought was an ulcer. If anyone has information on specialist please post.
spindle cell squamous (sarcomatoid) carcinoma
My sister 34 was just diagnosed with spindle cell squamous sarcomatoid carcinoma after a dentist apt for what we thought was an ulcer. If anyone has information on specialist please post.
Anyone had a deep bone or muscle infection in the jaw??
Hi again, I have been randomly viewing the posts for the past few months and not really getting in the conversation fray. John (Skiffin) does a great job of keeping everyone informed and in a good mood. He and I speak the same language, so why duplicate!!!??? However, I woke up Saturday morning with my left cheek swollen…
Completely Obstructed
Hello, my 82 year old mother was diagnosed with hypopharangeal cancer T3 N0 October 4, 2012. She was an alcoholic most of her life, she fought it and was not a bad mother but never overcame the disease. She has managible emphysema from smoking which she quit 10 years ago. She had a debulking of the cancer in early October…
Chemotherapy-induced Peripheral Neuropathy
Last two fingers on both hands numb all last week and continuing. Just starting 4th week of cisplatin. Any suggestions? Thanks.
Just beginning this journey.
My husband was diagnosed with tonsilar cancer (post tonsilectomy two weeks ago), with one lymph node involved on the left side of his neck. This was all after discovering a lump on the left side of his neck in late November, early December. We are fortunate we have the VA, as he is a disabled Veteran, and that's all we…
climbing that mountain
Hey everyone, Just wanted to update you all, speech therapy is going really well. I go 3 times a week now and starting tomorrow(just in therapy) I am moving up to oatmeal! I'll tell you the stuff we realize during the fight and the after math from the fight is endless. I would never have guessed how many parts of your…
I'm Back...
I have been remiss in not visiting this site for several months and realized how easy it is to become self-absorbed. I know that as a throat cancer survivor I can contribute to helping newly diagnosed patients who want to hear from others who had the same experiences. I completed my treatment in August 2010; it was (as it…
Caringbridge
What is caringbridge and how do I get to the site ? Peggy
PAMY had a question on Proton Therapy -
Hey all....looks like Pamy posted a quetion on an old thread by Sam999...so I am reposting here for her. Question below.. +++++++++++++++++++++++++++++++ Proton therapy? Hi John- Just researching treatment options and wondered if you had Proton vs IMRT. Although they have not confirmed it improves outcomes, I believe they…
Funeral went well
Thankfully the funeral went well. I am sure David was smiling down from heaven as we celebrated his life. Everyone consistently talked about his faith and acts of love. He did so much behind the scenes. It was all about loving people and letting them know they were not alone. He will be greatly missed. I am so glad it is…
Radiation Consultations?
ABout ready to start radiation. Mask is made and they ran the sim verification yesterday so cleared to start radiation on Monday. I told them I am delaying a week to get more recovered from the remaining chemo mouth sores. My MO felt I was good to go on Monday but was fine with my request to delay so I called the rad techs…
Treatment and Pets....
When Marcia and I went to the chemo class, one of the things brought up was pets. With a cat, they said we could interact, play, pet, cuddle etc., no problem. They also said not to allow them to sleep in the bed with us. Socrates sleeps with Marcia and occasionally will sleep at my feet. As I sit here typing with the boy…
Taxol - 2nd Round
I'm in the middle of the second round of chemo. I gained a half pound on the weekly official weigh-in. So if I keep up the good work, I may be able to avoid the PEG. (I of course, would use a PEG if it became necessary.) Most of the blood was good so I started on 2 weekly injections of Taxol and Erbitux. However, my…
Stayin positive
I am hearing better- I am cancer free- I am doing well- I will live every day to the fullest- my fatigue is getting better each day- I will stay positive and I will not let negativity into my life- I had to write it down!!!!!
Feeding tube or no tube?
I've been reading this board since the end of January, when my husband was diagnosed with stage 4 laryngeal cancer, spread to 2 lymph nodes. He doesn't do much on the internet, so I'm our designated forum user. This forum has been invaluable to us, some of the best information we have gotten. Thank you all so much, and…
Gardasil Injections
I received my 3rd and final gardasil injection yesterday; even though I am way , way, did I mention way, over the age range that they are normally given; my rad doc feels since I was never a smoker or much of a social drinker, that my cancer was something viral. I asked about HPV when he mentioned the injections last…
I say it's time!
What's everyone doing this weekend? I say we all meet at a central location and have a little get together. I'll bring the chips and salsa and some cold beer. Now each of you bring something and we'll have ourselves a nice little party :-) Ok....reality check...I guess that's not gonna happen. Wishful thinking. Dang it, it…
Thank you my many friends
I am overwhelmed with the many beautiful words shared by members of CSN for David and I. It has been a long road, lived day by day and sometimes minute by minute. I am truly lucky to have found a love so deep and pure. I don't regret standing by David. He was a great warrior, companion and husband. He loved me every day…
Update on First IDC now SCC
I went to UIC today, I go for a CT scan on Tuesday and then go back on March 16 to see my Dr/Surgeon and a rad onco. My doc is hoping to be able to try just radiation due to the fact that surgery on my entire chin and lower lip could be disfiguring. Of course this depends on what the CT scan shows...I am not getting my…
April H&C Awareness
I stopped by my local American Cancer Society office today just to see if their was an event I could attended. To my surprise There was Nothing. Not only that they had no idea it was even H&NA month. In today's ACS there only type of cancer here its pink. All Cancers are horrible and you would think the American Cancer…

Head and Neck Cancer

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