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Head and Neck Cancer

Archives for April 2013

PET Scan 3 Months Then? Opps Meant CT and Contrast CT
(Sorry - your right PET scans are hard to come by I mean CT contrast scan then anther CT with contrast in September - 6 months) I had my 3 month PET scan, the end of middle of March, NED thank God and the doctors and you all. My doctor then scheduled me for the next one in the middle of September. That is also my next…
ChemoRadioTherapy battle begins
Made it through the three cycles of induction TPF fairly well. Lots of fatigue and chemo brain during first 7-10 days during start of each infusion. No nausea or vomit and just one trip to ER to get hydrated. Today, started first of standard 35x2gy daily radiation and weekly chemo load of carboplatin. Both went fine, chemo…
Pet Scan Tomorrow
Dan gets his PET scan tomorrow. He's cool as a cucumber, at least on the out side.. However, his paperwork is already in the car, hot food on the table and moving the paper work to the car was more important than eating. Then the wait... this place normally reads within 24 hours.. And the doctor promised he would call the…
A Bit Better
I've been waiting for a definitive answer concerning hubby's infection. It appears that there isn't one. On blood cultures from the ER, either Staph or Strep showed up. Can't remember which one as my poor ol' brain is muddled right now. Nothing else has showed up and infection seems to be gone with the broad spectrum…
Second Radiation Treatment Decision
Ten years ago I had chemo & radiation in the head and neck area. I have just been rediagnosed, and had surgery for the base of tongue, and removal of 20 lymph nodes in neck. I suppose, due to the prior radiation, my neck is very stiff and limited. I am concerned about the side effects of the proposed second radiation and…
Vivian
Hello Vivian...sending you great big hugs and praying for your peace. Been thinking about you all day and the coolest thing happened. I went to lunch today with my husband and son and the lady who put her name in for a table right before me was Vivian. Then I went to the grocery store and the lady(again right in front of…
CT Scans
I know "it's not Cancer until they say it's Cancer " but does anyone know how far down does a CT , Head and Neck Scan , scan ? I just had a clean CT scan about two weeks ago and last week I found a lump on the same side (right) as my SCC cancer was on !!!! It's just a little ways down from my neck right above my Colar sp?…
Chemo Normal?
I must continue to ask: Is this normal for chemo. I sleep 10 to 12 hours a day. Every little activity tires me, even watching an hour TV show. I pay a few bills on line and then must lie down to rest for half an hour. Is this fatigue normal? Is it the Taxol? Is it the Erbitux? Is it the anti-nausea pills? Is it the pain…
Long Term Disability Denied - Any Suggestions???
Hi, I am caregiver to my husband who was diagnosed with Stage IV Base of Tongue Cancer. He was treated with 8 Erbitux treatments and 40 radiation treatments. Treatment ended in April of 2012. Docs thought they had it taken care of but unfortunately cancer continued to grow from the center of his tongue to the right side.…
thyroid cancer
My husband had his first post treatment CT scan and the ENT surgeon (radiologist missed it) spotted a nodule on the thyroid. He had a biopsy and results can back as thyroid cancer. What a huge shock and more surgery is needed. He will be having surgery in about 3 weeks. So worried because we couldn't even get through one…
The Super Thread has swallowing exercise info.
Hi All, Just wanted to let you know where I found some great information on how to perform excercises for throat and neck stretching. Check out the Super Thread; Products and Tips; Stretching & Neck instructions. Hope this helps, and if anyone has anything to add, please do. Best wishes and big hugs friends. Jude
Long Term Disability Denied - Any Suggestions
Hi, I am the caregiver for my husband, Chuck. Have posted a few times in the past but nothing lately. We are currently in a situation and was hoping someone might have some insight on what if anything we can do. He had radiation and chemo for a tumor at the base of his tongue on the left side which ended in 1 year ago.…
NPC scan types and frequency
I have been reading alot of folks here typically get six month PET/CT scans after treatment but never heard anyone who had PET/CT/MRI scans. I have been out of treatment since December of 2011 and have had 5 PET/CT/MRI scans so far. I am having my 6th PET/CT/MRI scan in June. Besides the cost associated with the scans,…
Finally got this show on the road
My husband has finally started his treatments! Wednesday was an all-day cisplatin affair followed by his first and second rads Thurday and Friday. Mostly, things are fine but he has a heavy duty case of the hiccups, two days in a row now. He's been a real sport but it is causing him to have some acid reflux. Fortunately,…
Swallowing exercises
Hey everyone just needed to remind again about SWALLOWING! Newbies to dx and tx, poor T, Wolfen's Hubby, newly NEDS Phrannie, Bille, our NJShore, Duggie, matt,Skiffin,Donfoo,Roar and anyone I may have forgotten: SWALLOW EXERCISES EVERYDAY! Even if eating, get it, got it, GOOD! Never stop, eating and swallowing isn't enough…
Update On Hubby
It has been determined that my hubby has Sepsis. Docs are still unsure where the infection is coming from. One theory is an infection in the chemo port, but not certain, so he's being treated with broad range antibiotics. He had 2 litres of fluid drained from his abdomen and is feeling a little better. At least he is…
Spice
My brother Bud passed away last week from prostate cancer, he would have been 65 today. I posted this on the Healing Well forum Bud frequented. Once again thank you all for the mutual support you show not just my brother but for each other. I'm not the type of guy who runs to the fad cure of the month or who is easily…
Sorry for all the question?????
My mom started her first round of chemo on Monday morning! It is the Cisplastin(sp) taxol and 5fu. She is extremely nauseated with vomiting and all she has done is sleep if she's not vomiting. Is this normal? Also about how long will this last. We go to doctor tomorrow to get taken off the 5fu's. She has two nausea meds…
U of M says only Chest XRAYS once a year after tx???!!!
Ok....I'm floored with this news today and I need advice and I need to know your scan schedule. After what I've known from all of you folks on your scan schedules, this is bothering me. My loved one says his ENT/Oncologist is telling him that they do not like doing CT's and PET's regularly as they contain radiation and can…
The Countdown Begins
And here we go! I'm now "T" minus 9 for rads. Two more chemos to go! I can see the finish line! Unfortunately, I hit the wall pretty hard this week. Dehydration, despite my valient attempts to drink as much liquid as possible are not cutting it. I've been getting fluids (IV) every day. Solid foods went bye bye a couple of…
13 days post-surgery - neck noose and increased pain swallowing
I am not too worried about this but I thought I would ask folks about it. I am 13 days post-surgery after receiving tonsillectomy and biopsies of tongue, plus selective neck dissection both sides. They found a small primary tumor at the base of the tongue. It was really tough after surgery, but I have been making steady…
Dad's needle biopsy of post tx enlarged lymph node results
Hey everybody! Last week my dad had and ultrasound of the neck and the fine needle biopsy of one enlarged lymph node and here are the results. But first a reminder: Dad finished tx (chemo/rads) for oropharingeal (BOT) cancer in September 2012. First CT in January showed that the cancer is gone, but one lymph node (2 x 1cm)…
A Down Day After Treatments - My Story for the many newbies on here
NOTE: This story is shared not to depress but to ensure others who may have to take this path that even though you have days such as this, there is light at the end of the tunnel. For me personally I could not have made it without my Lord's comfort and hope that there is a reason for all I was going through, and in the end…
Surgeon visit
Hi all, Just my thyroid nodule update... I have been patiently waiting for a month now. Got the biopsies done last week. They wanted to biopsy 2 of 6 nodules. They stuck 5 needles in the dominate one, and one needle pulled a few cells. The second nodule when I arrived was considered 'suspicious' and after the first biopsy,…
Stopping by for hugs
I have not forgot you my friends. It has been a hard week with visitation and funeral then getting used to being alone so much. I miss David and find I want to talk to him quite a bit. The other thing I do is call us we. I haven't been alone for a while and I really don't like it. I found someone to love who could actually…
Where I am today - 21 months out
Greetings All Here I am, 21 months out since my last treatment. Things have gone well for me, my taste has returned although I still don't care for ice cream or oreo cookies - a small price to pay. My saliva has returned to nearly normal, swallowing doesn't hurt at all and hasn't for quite some time. My beard started…
Help!!!
I need help. Hubby took Ambien(5 mg) Monday night and has been asleep almost constantly since then. He is in and out of lucidity, no strength in arms or legs, can't hold onto anything and can't stand. I'm putting water and now Glucerna into the tube. Managed to help him urinate a tiny bit in a prone position. MDA navigator…
State of 420 in California
As I am fortunate to live in the Golden state of California where everything grows like crazy and crazy things grow too, I decided to post an official 420 post on my experience even in the hippy state. My goal is to use all tools to battle cancer including MJ. I am not a user nor have been but there is clear evidence in…
Evoxac - Generic
I want to share some good news for those of you using Evoxac. I just had mine refilled and was plesantly surprised that it is now available in a Generic. It was costing me a $90.00 co-pay because it was not on my insurance company formulary. The co-pay is now $8.00 for the generic. The Gernic is Cevimeline. The next time…
chefdaddy & dawn
has anyone checked on chefdaddy, his daughter and dawn? they've all been heavy on my mind and was wondering how they're doing. if someone could give an update, i'd appreciate it. thanks in advance. God bless, debbiejeanne

Head and Neck Cancer

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