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Head and Neck Cancer

Archives for March 2013

NED and Good Friends
Hey Everyone, I haven't posted here much lately but I do still see a few of you on the Head and Neck Warriors site on Facebook. The main reason I pulled away was because of reading some posts that were heartbreaking. It's hard when one of us don't recover. The news really pulls me down so I stop coming. Yes it is selfish…
One Year Scan NED !!!
1 year CT Skan all clear.....no evidence of cancer! Yea!! Doctor says everything looks perfect. I am so thankful to God and for all people for helping me to get here. Ann
One year anniversary
Tomorrow( March 28th) will mark a year since I was diagnosed with cancer. I had an MRI yesterday and heard from my Dr this morning that it was completely normal. Praise God ! This year has been rough, but I'm more thankful than ever for the ordinary now.
My dad - update
Hello my dear friends!! I don't post much because I'm trying to live life between scans and check-ups without thinking all the time about it. But I read your posts almost daily and keeping my fingers crossed that you all will be ok. My dad is 6,5 months out of treatment (Cisplatin with 35 rads). On January he had his first…
Questions About Miracle Mouth Wash
Hello all ! I had my rad and chemo treatments Monday. Both Doctors looked at my throat and determined it was scorched pretty bad. My Chemo Doctor gave me a prescription for Miracle Wash. I tried it for the first time last night before dinner. I follwed the instructions and this is how things came out. It numbed my gums and…
not to get political..but
Hi friends, Sorry for my soapbox time, This week has been joyous for some and I don't want to steal fro anyone, but for others and all of us who care its been Hell. I was watching some stupid show Splash tonight where celeberties are in a diving competition, run out of ideas for reality TV I suppose, but the trainer is…
Seeking Info
I was diagnosed about two weeks ago with cancer of my voice box. I am in my second week of radiation and cannot swallow without great pain. Also, have developed mouth sores but they do not hurt. They are talking about putting a feeding tube in next week. Maybe I made the wrong decision when I told then no surgery???
NPC and Dry Mouth Recovery
Hello! So the background info... I am a 28 year old female with nasopharyngeal carcinoma. I discovered it with two pea-sized bumps on my neck. They kept getting bigger but doctors didn't think anything of it. Finally, a year after the discovery, a biopsy was conducted, and the pathology reports indicated that the growths…
Smeller
I know that I am only a few weeks out of treatment but some things are different this time. The first time I had radiation, my nose ran for months after treatment, Kleenex everywhere. This time radiated higher, I think sinus was involved. I smell things that are not there and gag very easily and things that I liked before…
NED!!!
I had the appointment with the oncologist for the 6 month post radiation (3 post chemo) follow-up this morning, and everything was normal. During the exam the oncologist reviewed the H&N MRI performed 1 week before (I didn’t know the results until this morning) and scoped the areas involved. I was really worried, not that…
NMES THERAPY?
Hey guys, Lots of bad news on website this past week, humbled me yet again. Vivian and David, Chefdaddy, Wolfen just to name a few, my heart is heavy but my spirit is strong that God will bring peace and solace to all of those suffering, and remind all of us that Life is precious and never forget it! Prayer for everyone on…
Choices none I like
The doctor just came in and said the plasma cell leukemia is back. We have two oThe doctor just came in and said the plasma cell leukemia is back. We have two options go to hospice where David may have a few weeks. Do the radiation then go to hospice and he may have a little longer or do the radiation and the chemo which…
Tim6003 Scan Results UPDATE: ALL CLEAR!!!! :)
Hi All ... Scan came back all clear!!! :) Lungs and neck look "great" was the word my Oncologist used. He did see the puffing of the neck....no concerns and nothing on scan that would alarm him. As always ...I can never thank you all enough for making me always feel cared for and of course all the prayers and well wishes…
Such a hard night
I am having a very hard Night. David has been hallucinating on and off since 2:00 today. Then tonight when he was praying it started out fine and then his mind was somewhere else. I just started weeping. About that time the nurse came in. She is really worried about me. The nurse before her was worried about me and I am…
Week 3 and feeling it
My 43 year old healthy, non smoking husband was dx on Feb 5th with SCC in the base of his tongue with mets to lymph nodes on right side. hPV+. Started with 1st Che 3 chemo's (Cisplatin 200mg) on March 6 concurrent with 35 rad's. after his 15th treatment he has hit a wall. Can't eat, drinking is not easy, and the poor guy…
Still At Square One!
Well, got all psyched up(NOT) for third try at first chemo infusion today. Nurse tried to use port for labs, but pain during attempted flush about knocked hubby off chair. She said "It's not supposed to do that". When she drew back syringe, it was full of black blood. So blood draw from hand and then on to chemo doc. He…
How bad will it be?
My husband, Doug, was diagnosed with metastasized squamous cell carcinoma the day after Thanksgiving. His primary is the base of his tongue and the epiglottis. We live a little more than an hour from MD Anderson Cancer Center so that is where we went for treatment. Doug went into a clinic trial at the beginning of January…
Radiaderm
Hi, Just wanted to know if anyone used radiaderm radiation relief system. If yes, is it a good product to use during radiation? Thanks, Jane.
Lung MicroNodules - A Good Story
Here’s a story for those of you on the precipice vis a vis lung nodules identified in a CT scan. It’s a positive story of the kind I was scouring this board for over the weekend. Heaven knows that I’ve read anything touching on this subject over the weekend and collected anecdotes and timelines and found real hope and sage…
hard time
My husband finished his treatment end of October 2012. February 26 he had a modified radical neck dissection on the right side removing 9 lymph nodes. After biopsy it showed they were negative for cancer cells. He is still losing weight and in the last week he lost 4 pounds. On Friday he went to walk in clinic because he…
Phrannie today....Me tomorrow
Ugh it's time for my 9 mo scans tomorrow! When they called me last week to schedule my stomach immediately starting hurting! I hope they won't make me wait for too long to give me the results. I could use some good juju Billie
new here
My name is mike I was diagnous with tounge cancer 5-16-12 , this last year has been just unbeleivible I went from being 216# able to lift weights to 159# . I have lost about 60% of my strenght. I used to live to eat now food is just something that is required to stay alive. I have been in remission for about 3 months and…
nasopharyngeal carcinoma- metatasis to lungs
My aunt, 55 years old, was diagnosis with nasopharyngeal carcinoma in 2011. She finished her radiation & chemo treatments inn 2011 and still follows up with doctors but recently she coughs more but no blood, the chest X-ray reveals 4cm mass (?), concluded: metatasis to lungs. The doctor suggests chemo again but stronger…
First bilateral IDC, now SCC
I was diagnosed with bilateral breast cancer in Aug 2012. I finished my last round of chemo on Dec 10, 2012. Less then two weeks later a bump appears on my chin. I really thought it was just a blind pimple that was going to heal slowly due to my immune system being down from the chemo. It stayed the same for weeks then one…
nothing can be done!
Dear All i am typing this with tears, my dad cancer has replease and there no more chemo or drug for him now. i don know what will happen in future, i am scare and worry. the cancer has spread to his lung and liver and accordingly to the Doc, he will feel more weak, more bloated more yellow in future and could lead to…
Get my results tomorrow from my CT scan / swelling in neck
Hey all, I guess I had kind of the same thing civil Matt did recently. My neck below my ear has a bit of swelling, can't really call it a lump, but noticable puffy :) ...does not hurt, does not seem hard, but semi-hard and I had some ear pain, not continous but shooting pains off and on real sharp...but none the last few…
From Chefdaddy
New My lovely dear friends, Your kind words are giving my weakened knees strength to stand. Today, during a non-destinational drive, I told my very sad and crying daughter that because Mason had such an incredible personality that had deeply touched and affected several doctors, nurses and CNA's over the last seven years…
Scanxiety today....
scan tomorrow morning at 8:45....then probably two days wait to hear the results. I sure can get myself into a dither.... . Not so much thoughts rolling thru my head, but a knot in my gut that makes sleep, eating, even thinking clearly hard to do. Keep catching myself holding my breath, too....which makes me dizzy! The…
Hypothyroidism: My newest development 1 yr 3 months post treatment
Not sure how long I have had this issue during or post treatment, but my ONC had my thyroid tested in December. Test results were not covered with me until this past Thursday when I had my yearly with my PCP and asked him if everything had turned out ok. Guess my counts were off on my TSH..normal between .36 -…
humor anyone
Well I am sitting in the hospital watching David sleep which he has done all day. I could use a chuckle if you could amuse me.

Head and Neck Cancer

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