-
Submandibular salivary gland transfer
Does anyone have experience or information about submandibular salivary gland transfer procedure that is done prior to radiation to protect the salivary glands during treatment. The salivary glands are moved to a different location. Research studies found 83% of patients who received this procedure retained their salivary…
-
Submandibular salivary gland transfer
Does anyone have experience or information about submandibular salivary gland transfer procedure that is done prior to radiation to protect the salivary glands during treatment. The salivary glands are moved to a different location. Research studies found 83% of patients who received this procedure retained their salivary…
-
Erbitux infusion...with or without radiation...side effects, success stories?
My husband is on the schedule to begin Erbitux infusion treatments beginning this Wednesday (March 27). Quick back story: H&N SCC of the base of tongue in 2005 successfully radiated and treated with chemotherapy; healthy and active for 7 1/2 years, the SCC came backon the side of his oral tongue; surgery and partial…
-
Unknown primary to head and neck
Anyone out there with unknown primary? Just completed 40 radiation treatments with 3 chemo (cisplatin) treatments. Just had my first clean pet scan. Everything was going great. Out of the blue I get an ear infection and my ENT says we need to watch/look for a tumer. I think being that the pet scan was clean, maybe all the…
-
Posting a picture
Am just checking on posting a picture using TinyPic [IMG]http://i45.tinypic.com/29ictx.jpg[/IMG] AND it did not work.
-
Do I have cancer or I had cancer?
Kenny and I were on our way home from the hospital yesterday. We found out that the Cancer had not spread, which they thougt it may have. But all test came back clean. Anyway, Kenny said he didn't know whether he should tell people when they ask if he has Cancer or if he had Cancer. What do you think? Cindy
-
Still Cancer Free
Kenny had a CT scan last month and they saw something in his right cheek. He was sent for a PET the beginning of this month and they said they saw nothing in the PET, so we had a fine needle asperation done yesterday. NO SIGN OF CANCER. Such a relief, I was really worried and he didn't say, but I know he was also. Now we…
-
Long term effects of radiation/ chemo
have been out of treatment for almost three months. Just had my first pet scan and it was negative. I had a partial neck dissection and removal of one lymph node under my jaw left side. My primary was diagnosed as occult primary, so they radiated everything in my head and neck and I had three chemo treatments of cisplatin.…
-
Guaifenesin
Recently, I've made a couple posts about Guaifenesin. It occurred to me that I may not have been clear on its use. It is used for breaking up chest congestion due to mucous. It's not to dry up sinuses or do anything with nasal congestion. Guaifenesin used to be a prescription drug that now can now be found in OTC…
-
Cancer Sucks!
After looking at the board today, just had to say it (again). Not that I need to remind anyone here!
-
ChefDaddy... Son Mason has Passed...
Just wanted to pass a message from Dawn, that ChefDaddy Mike sent her last night... "We lost Mason Lloyd after a valiant brave battle at 8:55PM." Thoughts and prayers for Mike, his daughter and family.... It's been a long hard fought battle..., but now Mason is pain free and getting to enjoy a life he never had here on…
-
David & Vivian - updated
Just wanted to bring this to the surface again for Vivian and David today. They met with their doctor this morning, the hemotologist, and David's transplant is no longer a possibility. David will be receiving pallative care as they determine which of his cancers is the source of his brain leisions. Vivian is beside herself…
-
GREAT NEWS
I had the second neck dissection on Thursday and got some great news. The node that lit up in the scan earlier this month - the one that was supposed have been removed in the first dissection in October - turned out to be benign, so no modified radical dissection, no new disease found. They did take some additional nodes,…
-
Tumor profile done
Well I received word that my profile was done. I was in to our primary w/Rolie yesterday and asked if they had received it. And I just giggled at our doctor. He looked at me dumb founded and said oh, that's what that was. I wasn't sure how to take that at first. And when he said it's just a bunch of #'s and codes I did…
-
Sub-Mandiibular Carcinoma
Positive Diagnosis; Awaiting exam by ENT & Tests. Gonna be a long road, with a happy ending I'm praying. Drawing strength from all of you, also, very helpful advice, thanks!
-
Now I'm Really Confused!
We saw the Surgical Onc today so stitches at the G-tube could be removed. I brought up the subject of "swallowing" exercises to determine when he felt the appropriate time for starting these would be. He asked if we had seen the Speech Therapist yet. No, not yet. So an appt. will be scheduled with her. I guess she is…
-
Eustachian tube issues
Hi, Dan has been having left ear issues for a couple of weeks. His last treatment was Jan 15th, his treatment was primary left sided. So we are 9 and half weeks out of treatment.. After a week of complaining the RO prescribed antibiotics, 4 days later the ENT said that's fluid behind the ear drum, and prescribed steroids,…
-
Introduction
Hello- I've been lurking since I received official word of my Cancer on February 28th. I've been diagnosed with Nasopharngeal Carcinoma(Poorly differentiated, nonkeritinizing, HPV+, EBV-, stage III T1,N2,MO) Whew! Since diagnosis I've had multiple consultations, Blood work, PET scan, Contrast MRI, Radiation mask fitting…
-
Needing serious prayer
So David was having some hallucinations and visual distortions and today we found out why. He has three lesions on his brain. One on the right frontal lobe, one right cerebellum, one left cerebellum. Now they are deciding whether to do a biopsy to find out if it is plasma cell leukemia or head and neck cancer. Neither are…
-
Hair Today... Coming Back Nicely...
Just a quick post for those going through treatment... Though I lost all...ALLL (if you get my drift) hair during chemo, and the famous back of the neck strip from rads... I just wanted to post an update that after nearly four years, my hair is coming back nicely....whatcha think... Oh and BTW.... It's Friday...., let the…
-
bad smell after radiation treatment and naseau
Have had about 7 treatments af radiation so far and 2 chemo treatments,every radiation treatment seems to leave me feeling naseau with a bad smell surronding me,not sure if its the stuff they use to clean my mask or the table or what.I tried to shower as soon as I would get home and put on fresh washed clothes still no…
-
Blackswampboy....Where are you?
Wondering if anyone has heard from him and how he's doing. Haven't seen him post in a while and always miss a regular Warrior..
-
Neck Lotion Suggestions
Hello all ! I had my 15 th rad treatment this morning ( 20 more to go) and my neck is starting to itch a bit. I checked the mirror and both sides are showing a small amount of redness. I have read that this situation can get bad and I am wondering if there is a pro-active approach I can take to possiibly head off or at…
-
Advice needed -- doctors disagree
Hi, everyone. I have received two different treatment recommendations for my Tx, N2c, M0 metastatic squamous cell carcinoma with unknown primary. Do any of you have advice on the pros and cons of the two options? Here they are: 1. Mayo Clinic is recommending doing a single robotic surgery to remove affected lymph nodes on…
-
ONE MORE THING TO SHARE FOR ANYONE STARTING OUT
I forgot to share this in my post yesterday but in my visit with my ENT yesterday, he was telling me how amazing the skin on my neck looks after having radiation. He said it is so smooth and soft, so many get thick and leathery. I used Aquaphor on my neck 3 times a day everyday from the 1st day of treatment until I started…
-
Great Scan Results
Hi Folks, Thought I'd drop in and say Hi and pass along some great and encouraging news (great for me and encouraging for those currently in treatment). This past weekend I had a clean PET/CT scan and check up. That puts me at 2 yrs and 7 months post treatment. I had been diagnosed with BOT Stage IV, underwent rads/chemo…
-
My first post (Today is a gift)
Not sure how or why i ended up here today but i truly believe everything happens for a reason. I just had my 12 year anniversary surviving throat cancer :-) I forget all the fun technical terms about my cancer but it was advanced. Stage4, Radical neck dissection, tumor left tonsil, golf ball sized lump in my left lymph…
-
8 MONTH OUT FOLLOW UP APPT WITH ENT AND GOOD NEWS
Saw my ENT today, almost 8 months out of treatment. Got the wonderful scope down the nose and throat and he said everything looked great!!And he wrote those 3 wonderful letters on my chart, NED. Praise God! He thinks everything is just going great. Will see him in 4 months after I have my cat scan in June. And then I come…
-
1st PET Scan After Treatments
Hi Friends! I wanted to offer hope to others with my good news. My 1st scan results brought me good news...NED!! I finished chemo and radiation on Dec 19th 2012 for tonsil cancer on the left side with 1 lymph node involvement on the same side. I know that I am not really out of the woods but this is great news and I am…
-
1st PET Scan After Treatments
Hi Friends! I wanted to offer hope to others with my good news. My 1st scan results brought me good news...NED!! I finished chemo and radiation on Dec 19th 2012 for tonsil cancer on the left side with 1 lymph node involvement on the same side. I know that I am not really out of the woods but this is great news and I am…