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Head and Neck Cancer

Archives for March 2013

back on the merrygoround
Three weeks ago I started to get pain in between my legs in the groin area, it did not go away, had an appointment any way with the urologist due to the farce in October/November. I have had prostatitis before and had an enlarged prostate that was shaved down in November. I figured it was just another round of prostatitis…
Guess I Was Wrong
Silly me, I thought we might make it into April without another visit to ER. WRONG! Last night at midnight, hubby was sitting in the recliner just watching TV. All of a sudden, he called to me and his skivvies were soaked with blood. That damm G-tube was pouring blood from the incision site again. This time, at 12:15, no…
Inflammation under the chin
Ok - I am going to the ENT on Wednesday because I have total hearing loss in my left ear. We drained the fluid once and I had an infection so he gave me antibiotics and ear drops. I will be done with the antibiotics tomorrow. I have noticed a swelling under my chin. Reading the posts it would appear a lot of people with…
Questions About PEG Tube Feeding
Happy Easter to all ! I have been holding out on using my PEG tube, but the time has come to where I think it is time to use it in combination with feeding by mouth. I am able to get food down if I take some medicine prior to eating but the taste/pain is so crappy after a few bites that I tend to give up on it. I have lost…
Checking in on a positive note
Hi everyone, Sorry i have not been visiting lately. Full time job, kids and additional cooking is taking up all my time. We will be empty nesters in 3 years and i will definately be a active memeber of this wonderful forum. It has been 1 year since diagonisis and 9 months since last rad. I have no complains except dry…
Happy Easter
Happy Easter, all
I need a do over
I was just thinking that last year at this time I was a completely normal ( whatever that is) person. Just coating along- working , going to the gym a few vacations a year- life is good. Then wham! Right over the head with a sledge hammer. Then you hear " we got it early - your strong and young- stay strong. Ten hear ya go…
still NED three years post diagnosis for Stage III/IV hypopharyngeal
Jim was scoped yesterday at his ENT's office. Although there is still swelling and scarring, there is no evidence of active cancer. This is a really good thing for this particularly nasty form of H&N. Just wanted to share with and, hopefully, give some encouragement to others on this path. Praising God for a good team of…
Some good news for a change
I've posted that my most recent scan found more areas of concern, which prompted a second neck dissection. I had the surgery last week and the first piece of good news was that the immediate biopsy of the most troublesome node turned out to be negative, so they did not do the more invasive modified radical dissection. They…
TMI Warning - My boys did it again!!!!
As most of you know I have four boys and one daughter. The boys are ages 2 - 12 (my daughter is the oldest at 14). And I have posted on here before my "bathroom" experiences having so many "people" in the house and just one bathroom. Sometimes when I first get home and the boys are upstairs, I try and steal some quiet time…
Cisplatin 3 weekly or weekly
I'm curious if your MO made a strong case in favor of one or the other. I wonder how many people were able to take the last of the 3 big doses. Our RO seems to think the weekly is better tolerated and just as effective, and she thinks our MO may make a case for the 3 big bags. it seems that studies show the results are…
I can breathe now!
While at my sons baseball game I got the call! I'm Phrannies sister.....Billie "NED~ina ", so nice to meet you all! Funny thing is that my oncologist is actually out of town and so he hasn't read the report yet. The nurse said it was driving her crazy to not call me so she broke down and did it without his ok. She said the…
Ok, a really small success but, YES!
I know, this is a tiny thing but I went out to lunch today. Haven't gotten to do that for 4 months. I got a cup of cream of mushroom soup and managed to get almost half of it down, with not all that much water. What the big success for me was I took the centers out of the white bread, buttered it up and soaked it in the…
Clear Scan
After some more chemo and radiation I got a clean PET/CT this week! Coming up on the 3 years docs gave me to live at the most. Unless I fall in a river or off a cliff looks I get to say "I told you so". Never give up. AB
Hubby with tonsil cancer with lymph node involvement
My husband of 25 years was diagnosed with tonsil cancer withlymph nodes involved on March 8. He has had a lump on his neck for 9 months before we finally got it checked. I must say the news of this was devastating. We have since gotten in at the University of Michigan Hospital and met with the Oto, RO and dentistry. MO is…
David signed his own hospice papers
I left the hospital for two hours so my mother in law and brother in law could spend a little time alone with David. I think that is important especially since David has a couple of things to say to Scott. While I was gone hospice came with the paperwork. To my surprise when I got back to the hospital he had signed them.…
So many judges
I am so frustrated with some people who are so determined to see David that they would say mean things and/or try to manipulate me. I woke up this morning to a couple of texts that were not received well by me. I have never wanted to take David away from anyone. I don't want him to leave me, but this his solitary adventure…
ALl right its been 3 months
And the dang peg tube still annoys the heck out of me. I really just want to go to hospital find the son of a gun who thought it was funny to place tube directly under my breast not allowing me to wear undergarment of choice due to pain, and its constantly getting bumped around so I keep getting granulated tissue that…
Can't Remember
I can't remember if I came back to share my clean PET results or not. Anyway, NED! However, I have a bump on the side of my tongue that's worrying the heck out of me. It popped up when I had thrush last month and is still there. I'm going next week to have it looked at in case it's something nasty that was too small for…
Turkey Neck Solution
Hi all, At Dan's visit to the ENT Surgeon this week, Dan made a snide comment about his turkey neck. The doctor cracked up at the name.. we picked it up here! :) Anyway, he said he has been telling patients to buy this support hosery for the neck, and Dan's going to give it a try. It is suppose to help the water collected…
Billie
Are we still waiting to hear Billie's NED or did I miss it ? Peggy
How's Vivian today?
Vivian, Just checking in with you to see how you bare holding up? I somehow was wide awake at 2:45am, my time and felt this strong pull to pray for you. So prayed I did! I prayed for peace again and for warmth in your heart. Billie
recurrent nasopharyngeal cancer (NPC) info and PET scan levels
Hello My mom 68 years old, was diagonosed with Nasopharyngeal Cancer back in April 2012. It was biopsied as keratinized squamous cell carcinoma. Stage 2b, no mets, no lymph node involvement. PET diagnosis was NPC with a FDG sugar uptake level of 3.5 She underwent 7 weeks of IMRT radiation (35 treatments) in conjunction…
So thankful for my fellow warriors
This has been the most hellish ride I've ever been on, but I want to thank all my CSN friends. I have had so many drop out of my life since David got sick. Of course now that he is dying everyone wants to come to my rescue. Well I'm sorry I am coming for support from the people who have stuck with David and I through thick…
My Sweetheart has cancer
Hello everyone! I imagine you will be my best friends throughout the next few months. My husband was recently diagnosed with tonsil and lymphnode cancer. We go to Stanford Hospital on Monday to find out the plan for his treatment. We've been told by the referring doctor that he will have surgery and radiaton but we are not…
Christine Gabrielle - try new thread as introduction
Christine Gabrielle ... I found your "Hello everyone!" post here at the bottom of this thread that is several days old and started by another new member. It would be a good idea to start an entirely new thread just for yourself so that your questions do not get lost way down here. If you click on "Topic" at the upper left…
Port a cath for chemo
Hello, my mom is scheduled for a port next Thursday and forgot to ask the Doctor a question. She would like to know if they will take the port out after treatment? If so how is it done? In office or surgery?
I Have My Eyesight Back
About a week ago I posted about my eyesight trouble. ( http://csn.cancer.org/node/256493 ) Since then it has gotten worse. For example if I looked at the TV screen I would see three of them. I suppose that would not be so bad during the playoffs if there were three different games going on. Kidding aside, I thought for…
P's middle name....
is NEDette. That's right.....phrannie Nedette Stevens.....Oncologist just called.....I'm clean and clear.....Damn, what a relief. p
Dad in Rehab
Dad is doing pretty good in rehab. He is getting a lot of motion back in his arm. It still takes to people to help him walk. He will be in there until at least April 12th. He is not having any major issues with his peg tube, just some nausea right after feeding. The doctor in rehab ordered a CT because she did not…

Head and Neck Cancer

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