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Head and Neck Cancer

Archives for September 2012

what an experience
I'm finally sitting in our room at the Markey Cancer Center. We were in ICU until 9 this morning and then transferred to a holding cell in the basement until they had a room for David. Last night was rough. They ICU got overwhelmed and when David 12:00 am meds weren't there at 12:15 he paged. No one came until 1:45. He was…
DPNS did not work
As many of you know after 6 years from the last time of being treated with radiated twice to the head a new side affect develop the lost of being able to swallow anything. Doctor suggested DPNS, well Deep Pharyngeal Nerve Stimulation did not work to restore any movement of the tongue so that I can swallow again. However I…
Met With Doc For PET Details Today :o)
The report says "excellent response to treatment" and "no evidence"! My doctor was so excited, I could tell he could barely wait for me to finish reading the report. In celebration of being a 2 time survivor, I got myself some new tattoos. I tried to make it my profile pic so hopefully it really updated even though I don't…
Water taste real bad
I am 6 week out of radiation. 35 treatments for cancer on the tonuge. I have a little taste. I could taste apple juice and it tasted good, that is tasted. No it taste bad and water taste real ba. Is this normal?
Now what?
Now that my doc has given me 8-10 months, and said that this is Non-curable, what now? We are looking into trials an options, looking at hospitals like MD Anderson in Houston, UIC (Chicago), Mayo, etc. I guess what I am saying is there any chance that the doctor could be wrong, and that one of these trials nay give me…
colonoscopy in the a.m.
Hey there, Man it has been an upside down inside out kinda posting as of late. I'm wishing for everyone better and better outcomes. I posted before about this darn issue I've been having with my GI tract...and guessing as I was told after 3 and a half months it's earned me a one way pass for the scope. Love the clean…
I Don't Mean to Brag, But - - -
Of COURSE I mean to brag. I want those of you in and freshly out of treatment to know what you can look forward to. Yesterday, on the way to work, I ate the breakfast I fixed in the car (I ate the breakfast in the car, didn't fix it in the car). It consisted of a SANDWICH. Not just a sandwich, a BAGEL sandwich. Not just a…
Feeding tube?
My feeding tube was placed 8 days ago, and I am still getting some sharp pain around it, mostly on the left side. The night they placed it I had dry heaves and felt like I pulled a stitch. Did anyone else experience this or am I being a baby? I kind of think it is at least mildly infected, so went to have it checked today,…
Shells ~ Shrimp & Garlic Linguine - Phrannie Special Order
MMMmmm this is for Phrannie.... Shells ~ Shrimp & Garlic Linguine Shrimp & Garlic Linguine in Cream Sauce...., course grate parmesan cheese and warm Baked French Bread.... Sauteed fresh shrimp and garlic, in olive oil, dry white wine, and heavy cream... Ingredients 8 ounces linguine 2 tablespoons butter 1 pound shrimp --…
My computer
I wish my computer was a better spellur. It allwaays spells worda wrong and it aggrevates me a lot.
For veterand who may need in home care
I was not aware that we (as veterans and/or spouses of veterans) can get paid for needed in home care. Just thought I'd put this out there. http://newoldage.blogs.nytimes.com/2012/09/19/few-know-of-benefit-to-help-aging-veterans/?src=twrhp
Advice
I finished treatment (Surgery, Rad, Chemo)for stageIV oropharyngeal base of tongue with three nodes in the neck. Although the preliminary post-treatment inspection by the surgeon left him optimistic, I still await my first PET scan post-treatment in about a month. How have any of you handled the anxiety/ terror or awaiting…
Confirmed Metastasis.
Well what I fead is true. It had metastasized and doc has given me 6-10 months. I am going for a medi-port and new PET right now. Needles to say, they family taking this hard. I think I am still in shock. The lump that they biopsied is one of the two original lumps, the other on my head. I now have a total of eleven (11)…
Checking In
Hi all: I've been keeping up with everybody. Finished my overnight job with Jo-Ann's and did get hired seasonally. This goes thru the first week in January and then they bring you in permeantly if they so desire! I tell you kudos to all you out there who work retail and have worked retail. I still marvel at how Charlie did…
A Day In My Life :
Sometimes I get so engrossed always talking about our "c" and the aftermath of that "c"...I always enjoyed a post from my online family when they shared a funny moment in their lives...so here is one of mine recently. :) Because "c" is NOT all there is to US!! :)…
pictionary in ICU
Ok maybe its lack of sleep talking but I got a little tickled. My husband woke up with Versa and 200mg Fentanyl and wanted to tell me and the nurse that his teeth were cutting into his upper lip. He began drawing doodles and getting frustrated as we played dictionary trying to figure out what he was trying to say. Finally…
November is "Caregiver Month"
but it's never too early to express our gratitude! caregivers, we greatly appreciate your compassion, patience, and love. btw, just learned that Mercy Cancer Centers in Toledo offers stress reduction and support services to caregivers (free of charge). no doubt other cancer centers offer similar programs--if you're a…
Radiation Induced LARYNGITIS -
Hi All - Had my ENT visit today and all looks good (scope and finger exam). He certainly heard my voice and agreed it sounded pretty bad, I have been fighting this very weak and hoarse voice for about 2 weeks + now. During the scope he said to the nurse (who was taking notes) "extremely dry vocals". Nothing on them, they…
Hey Y'all, get my port out Monday!
Hello Everyone, I haven't been on here in while. I hope that everyone is well. I'm about to go through the posts and check up on everybody. I'm coming up on a year post-treatment and I'm having my port removed Monday. I won't feel like a cyborg any longer! ("Resistance is futile"). I'm now on Facebook, so I hope to connect…
YAHOO!!!
DOCTORS EXACT WORDS ON VOUCEMAIL: NO SPOTS OF CANCER!!!!! meeting Friday to get in depth details!!!! HALLELUJAH!!!!
The doctor missed it
Hi everybody,was feeling good late Monday and Tuesday, then at 8am this morning the oncologist at Hershey called to say that the scan shows that I have lung cancer, they had a team meeting and did whatever they do and confirmed that a grey area was cancer. I am being scheduled for a biopsy, don't know when but right now I…
radiation?
Kind of a dumb quesrtion but do you feel anything during the actual radiation treatment or is it the after effects that are the worst. Starting on the first of October just wanted to know what to expect......
Biopsy results tomorrow
Good evening my fellow warriors, Tomorrow I get the results to the biopsy I had one of what was 4 at the time now up to 9 new lumps and growing fast. They are becoming more and more painful and need all the prayers you can spare for tomorrow at noon, when I met with my Oncologist. So anxious I may not sleep, but the…
The decision was made for us before treatment began - Bobbie
Thank you so much to everyone for thier help, advice, and prayers for Bobbie. Bobbie passed away Monday while at home. We had been trying to decide whether he should start treatment or whether it would be too much for him to take. He was diagnosed with Stage IV about four weeks ago. A week later he had a trech, chemo port,…
PEG TUBE IS BEING PULLED TOMORROW!!
I am so thrilled that the peg tube will be gone after tomorrow but have to admit I am a little anxious about what to expect. Don't know how much pain to expect during and after. They tell me I must have a high pain tolerance but I have never thought that. I kind of liked to be knocked out for all procedures,ha ha.
My first ENT threw a monkey wrench in all my plans last night.
Now I'm really confused. My ENT that first diagnosed my SQ called last night just to check on how I'm doing. I told him about my trip to MD Anderson and their recommendation for Induction/Chemo/Rad and no surgery. He listened carefully and made some comments about that's how Anderson has been treating this condition for 10…
Missed you guys
Haven't been on the board for awhile and have thought about you guys often and missed the company of fellow travelers on a strange hike. I thought I would pop in and say hi once in awhile and let you all know how well I was doing. Had hoped I wouldn't be coming back because I needed the support but that's why I'm coming…
Smoothies that won't set my mouth sours on fire
Hey all, thought I would catch you all up and pick your brains at the same time, especially Phrannie, because she has or is still dealing with the same problems.. Let me backup a bit. My original treatment plan was 3cycles of the nasty chemo cocktail, by infusion 2 drugs by port, and the 3rd drug via "the pump" 35 days of…
A few extra prayers needed
I know I have not posted for awhile about my dad. He has been doing pretty good. I think the last round of chemo took more of a toll on him. There seems to be some mental decline at times and it did a number on his physical strengh. But he still drives everywhere with someone with him. Goes to the grocery store with us and…
Pet Scan Results
Loved one had his first Pet Scan done to see what direction we need to go for treatment. According to the Surgeon base of tongue & neck appeared to be only "hot" spots, but she said she is not a Radiologist and he would confirm. After Radiolgist reviewed, saw a hot spot in stomach. Said it could be gastritis and needs to…

Head and Neck Cancer

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