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Tongue cancer recovery
I had cancer on my tongue and had it along with a lymph mode removed followed byn7 weeks of treatment. I have been done with my radiation and chemo treatments for three months now. The treatments took a toll and I have lost 49 lbs from a frame of 188 at the start. My problem is that I cannot get the pain in my mouth to go…
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Spam ......
I think someone is spamming the forum, promoting there knockoff chinese merchendise qq123456 and linxi Tonsil Dad. Dan.
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Happy Mother's Day....
Wishing all of the Mother's out there a very special day tomorrow, including my own.... ஜ۩۞۩ஜ♥ஜ۩۞۩ஜ♥ஜ۩۞۩ஜ♥ஜ۩۞۩ஜ♥ஜ۩۞۩ஜ •*´¨`*•.¸¸.•*´¨`*•.¸¸.•*´¨`*•.¸¸.•*´¨`*•.¸¸.•*´¨`*•.¸¸.• ::: (\_(\ ...*...*...*...*...*...*...*...*...*...*...*...*...*...*...* *: (=' :') :::::::: HAPPY MOTHERS DAY :::::::::: •..…
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Heading into week 5
I admit it: I didn't post much yesterday because I was moping around a little. I don't do that often, and today in retrospect it feels silly... but I know I need to cut myself some slack and not expect myself to be perfect, right? :-) I'm still aware of the fact that I'm doing well for someone rounding the corner into week…
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So......week three is history....
it's Friday night, and I don't have to go for amifostine or rads tomorrow...whoo hoo!! I'm tired, but other than that, I feel pretty darn good. No sore throat....yet. I'm eating whatever I want to eat...plus backing things up with liquid nutrition. My taste buds started to change today...I remember the actual moment...LOL.…
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2wks out from radiation.
It's official I'm 2 wks out from my last radiation. Still very difficult. I'll have a good day then a not so good day. I'm not getting no where near the calories I shld be getting and that concerns me. I rarely eat or drink I take advantage of the times that I can eat lately there hasn't been any. Every time I eat or drink…
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My voice is cracking and fadeing? Tongue burns / has ulcers?
Hi all. I got the ALL CLEAR on my PET / CT Scan Monday (that was my first scan since completing treatments Janaury 20th 2012) and my ENT scoped me two days later and did the finger down the throat thing ....also reviewed me scans and too said I was all clear ... ...so why in the last week has my voice gotten weaker. It…
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mouth tray during radiation
It is an old topic but a good idea. Since there are several of us starting or just started radiation treatment, I think it would be useful. http://csn.cancer.org/node/209200 I will ask my radiation onc whether I could put it on during radiation. See my problem is that I didn't have it put on during simulation and mask…
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I may have to switch Oncologists....
I'm so upset. Before I started treatment, I went to our HR person at work, to see if I could go to the one who gave amifostine. The HR gal talked to both the insurance company and to the Oncologists office manager, came back to me and said it's good to go...so I've been going everyday for 3 weeks for amifostine, and have…
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No anti oxidents during radiation?
My docotor said i have to limit foods with anti oxidents during radiation as it can interfere with it. She said you could eat foods as whole but dont take any concentrated amount e..g i take acai berry juice and green juice bought from costco, but that has higher amount of anti oxidents so should not be taken during…
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I'm trying really hard here
But I'm wondering if it's time for a feeding tube :* (. I only have one more week of treatment, but then a few weeks of healing and I can barely get down sips of water. Even ensure/boost is brutal....I've even tried it in popsicle form. I'm overweight, so I do have some weight I can stand to lose, but I'm more concerned…
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Anyone have Throat dilitation advice?
Hello to everyone, My dad is 7 months since his last treatment rad and chemo for tonsil and lymph. We are trying to get off the feeding tube and recently had a throat dilitation (may 9,) the dr. Said it went well , he opened the stricture in his esophagus and to go at his own pace trying different foods. that night he…
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Swallowing test
This passed Tuesday I finally passed my swallow test after 6 months with my 2nd feeding tube. That has been the happiest day in my life for a long time.Me and my husband had to travel 2 hours to get there. I still have to live my feeding tube in a little longer the dr said. that being said I had my husband stop at…
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FEELING REALLY DEPRESSED
hi my name is Matt and i'm getting ready to go through treatment for head and neck cancer HPV positive tonsil cancer stage 4 level A they are proposing chemo and radiation that will be starting here and the next couple of weeks on top of that at 29 years old i have to have my teeth extracted on Monday yes my teeth aren't…
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rigid laryngoscopy
Anyone out there have one of these after treatment? My husband had tonsil cancer (hpv+), diagnosed in Oct 2011 and completed radiation and chemo treatment in December. He had a clean CT scan in January and a clean PET scan in April. ENT has done a scope and says there is still some film down there and wants to clean it…
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One little thing that I'm patting myself on the back....
Today was weigh in day at radiation, and I gained 3 lbs!! Yes I did...LOL....I've been eating all I want, but in the last few days have supplemented with the tube...and it works! Laralyn, I got my case of Instant Breakfast stuff......the 560 calories per 8 oz...will start using that tomorrow for even more calories. p
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Oral sex
Ok, so I'm a year out of treatment and all is good. When I was diagnosed I did a lot o research, like many of you I am sure. I found that hpv in the tonsils leading to tonsil cancer is likely caused through oral sex. Well I hate to get to personal but I am a male and I thoroughly enjoy oral sex with my Wife. Problem is…
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Having to have my teeth extracted prior to Radiation???
So to top things off of having cancer now i'm told that i have to have all of my teeth removed before starting treatment so like Monday they want to do that and then the following Monday they want me to start chemo which i thought chemo and radiation are done together and i'm scared that my body's immune system will be…
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Question -- Starting to Eat Again
My husband is currently going to a speech therapist for swallowing exercises. He has been told the exercises are making him stronger and he was able to swallow small sips of liquids at his last visit with the ENT doc. They have not said anything to him about eating or drinking again. He is disappointed about this. My…
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NOT AGAIN DITTO
Hopefully not, again a MASK question. And yes I reread the superthread before writing this so redirect me if I missed the answer. I go for the fitting (i guess)tommorrow. I came across a you tube video showing how they bring the Mask Mesh from a warm water tray and lay it over the face. Then they put him in a CT scan to…
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Adenoid Cystic Carcinoma, Encouragement needed!!
I'm 27 and was diagnosed with Adenoid Cystic Carcinoma in March. I had surgery to have the tumor removed and also 47 lymph nodes. All the lymph nodes came back clear and the surgeon got clear margins. I just completed #7 of 30 radiation treatments today. I'm just curious to see if there are any survivors of this type of…
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Cisplastin?
HI everybody i'm getting ready to start chemo and they are doing this drug every 3 weeks first one starting on radiation day i just wanted to see if there are any tips on how to keep from being sick and what your thoughts are on this thank you.
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What type of Radiation machine?
I'm sure this was brought up before; just thought it may be interesting to see what type of machine everyone is using or has used? Everyone always discusses the different chemos, but they just say how many rad treaments they will recieve. They never say what type of IMRT! I guess since I'm a nurse I was really interested…
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A visitation/consultation report, every time you visit, yes?
Yesterday I had a three year follow-up visit. The hospital is implementing a new computer system. When you leave, you receive a written report of the, "Encounter". It's basic, but has, "basic" stuff on it. Things like: medications, allergies, immunizations, pharmacy information, diagnosis, treating physician, insurance…
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PEG tube and paper tape allergies
I wanted to post this in case it's helpful for anyone doing a search later who might benefit from this information. Maybe it's worthy of the superthread? :-) I have a wicked paper tape allergy on my thinner skin areas (like inner arms, stomach, etc.) which never really came to light until I got my PEG tube. Sure, I used to…
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Caphasol or mugard?
I start my radiation next week. Laralyn and Phrannie, i have been all your posts and see that mugard seems to be helping you. Overall you both are doing okay and that is reducing my anxiety a bit. I read information on mugard and caphasol and looks like mugard might be better. However my doctor insists on caphasol, did not…
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Those little sponges they have in the hospital....
...the ones you soak in water, and then can suck for moisture. Can a person buy those? They sure would come in handy... p
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Radiation for Head and Neck Cancers Often Result in Hypothyroidism
This is some good information to share with you all. My radiation oncologist had told me that I had a 20% chance of having my thyroid destroyed from the radiation treatments. After 2-3 months post treatments, my blood count revealed I did have hypothyroidism and I am now taking 75mcg of levothyroid daily for the rest of my…
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When does speech therapy and/or swallowing therapy typically begin?
Hi everyone, I just joined recently to help find some more information for my Dad...He will finish his 2nd round of radiation (twice daily) and chemo (daily) on Friday. Despite a very swollen tongue still (went down a bit so that tongue was almost nearly in mouth but swelling still easily visible, until rest week 3 of…
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Roll with the punches
"Roll with the punches" by Lenka, a happy song with lots of secret references that people on this board will appreciate! http://www.youtube.com/watch?v=XZaE4TY09C8&feature=player_embedded Dre.