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Another legend moves on
Donna Summer has passed away at 63 reportedly from cancer. R.I.P. Cut and paste if you liked her music. http://www.youtube.com/watch?v=7cPIT_T3mYU
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thickness of saliva
First of all I would like to let you know couple months ago I tried to post and not sure if get posted. Seemed is hard to get in the site each time I logged in.But got to read some of the ffeed back whenever I can logged in. All the feed back are all very confronting and helpful. THANK YOU ALL!! February I was diagnosed…
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thickness of saliva
First of all I would like to let you know couple months ago I tried to post and not sure if get posted. Seemed is hard to get in the site each time I logged in.But got to read some of the ffeed back whenever I can logged in. All the feed back are all very confronting and helpful. THANK YOU ALL!! February I was diagnosed…
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Teeth extracted 2 days ago
hi well i had 23 teeth extracted on Monday and a chemo port put in by far some of the worst pain in my life I'm doing my best to get through this but it's not easy please keep me your prayers and let me know this is the right thing to do.
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More about MuGuard.........
My Oncologist set me up for a presciption, so today I got a call from Onco Source. She said my insurance would cover all but $350.....PER MONTH! I gasped....and before I could say a word, she said "we have patient help with costs"....Can you do $100 a month :) ....I said yessiree....I can. So while it is very expensive,…
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How much radiation
I know some of us are concerned about radiation from scans so I did a little research. Interestingly the only radiation from PET is from the short lived tracer that they inject you with. It is only 5-7 mSv (millisievert) and we all get 2-5 mSv through natural exposure per year. CT scans are more on the order of 15 mSv.…
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Tip for anyone with high calorie needs and a tube
I'm significantly overweight and was struggling to maintain using the feeding tube. If I fed myself anything super thick or rich, I felt sick. Feeding by syringe works, of course, but I was looking at 10 cans a day because I use the product made from real foods (Compleat). Unfortunately, even that doesn't get away from the…
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Letter from my doc
Dear Jenny. Just a short note to let you know that your recent ct scan shows no evidence of recurrent disease or new problems. This is a very encouraging result and I look forward to seeing you again in six months time. With warm regards. My doc. How friggin awesome is that?
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Pressure In My Ears...solutions?
Hey all ....this week I noticed the pressure in my eardrums picked up and my ear drums / ear canals hurt. The left side more than the right (my lymph node affected with cancer was on my left side). I got an all clear PET / CT scan May 7th and May 10th my ENT scoped, finger examed my throat as well as checked my ears and…
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Aquaphor as a moisturizer?
My doc recomended aquaphor as moisurizer but i find it way too greasy, do we need such a greasy stuff? I read thru many many blogs but this whole issue about proper moisurizing is confusing to me. It would be great if you could share how did moisturize i.e. Which moisusrizer, how many times did u apply, how much etc.…
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How to protect neck disection scar during radiation
I did not even start radiation, just had the dry run with mask and my neck disection scar isd already seems a bit row. I think it is caused by touch or mask plastic over it. Is there a way to protect it during radiation? Maybe put a gauze or something? Thanks, Sam
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budwig diet
Hi, I am wondering if anyone here had heard about the budwig diet??
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Great news!
The radiation oncologist who did all the mapping for my treatments used a scope to check out my whole nose, throat and oral cavity. Not only do my lymph nodes feel normal... but there is no longer any visible sign of cancer anywhere in my throat, tonsils or soft palate! He said HPV-related throat cancers usually respond…
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Cancer newbie and Wedding newbie
Hello all, My name is Elaine. Glad to be here and to have found this site. I've been looking around and it seems great so far. Loving all the feedback people give. I am 25 with a rare cancer in the parotid gland. The cancer is called Lymphoepithelial carcinoma. I'm also EBV+. We are taking the aggressive approach and hope…
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Chemo Day One YESSS
Follow up from yesterdays Post. I made it, wow soft bed, nice people, tv with a remote on a rope, a mans fantasy, yes i said a remote on a rope. If I may my friends since I have officially taking my first shot at Cancer today, I will be leaving the Newbie status and with your permission maybe a PFC.(Private 1st Class for…
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post treatment - how long till you noticed cancerous swollen lymph nodes totally disappear
Hello, My husband finished his chemo/rads on April 2nd, 2012. Doctors seem happy when they clinically feel his lymph nodes, but he won't get the pet scan until July. The node we can physically feel is the one they took the biopsy from and where the cancer was initially found. Did anyone else notice their lymph nodes…
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Stopped up ears!!
Has anyone experienced this problem? It has been 3 days now and it's like water is stuck in my left ear. It all started a rough day after throwing up and I thought it would go away but the problem still exists. Just wondering if it's something I should go and get checked out.?
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Ballooning ankles
A couple weeks ago, my Doctor put me on liquid nystatin to get rid of thrush. This morning my ankles are swollen up 2x their normal size....anyone else had this side affect? It's the only new medication I'm on , butttt, I also discovered, even without an epiglottis, ice cream still taste yummy, could I be eating too much…
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scan anxiety time
It is time for a scan again, just a CT of the lungs this time to check the small nodule in the lungs. As an update, they had found a small nodule in Jim's left upper lobe of lung which had grown on the last PET. It is still quite small. The RAD doc wanted to check it in 3 months, The original tongue and lymph node cancer…
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Getting Some Sleep with Dry Mouth
I'm at my wits end (and completely exhausted) from dry mouth. I've changed medication--to Evoxac, which I really like--and have tried xylimelts. I have a cold-misting humidifier by my bed. But I still wake up every 1.5 hours with a parched mouth and soon my tongue starts to hurt. Ambien usually helps me fall asleep, but…
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Tommorrow I throw my 1st punch
at this uninvited guest in my body. Yes Chemo Day One. It seems like its been years since I noticed the lump in my neck and hundreds of Doctors, Test, trips to Hospitals but the cancer kept on going about its business. Yes stretching reality a bit. Its been about 60 days but finally its time to hit back not just gather…
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Just for fun - Bio Question for all my message board friends
Hi All. Just for fun (and if you don't mind) I thought I would ask a few bio ?? if anybody wants to play along. I'm sure over the months / years you all have figured that out so hope my topic is not redundant. Tim & Jennifer Cogdill / five kids (all mine and Jennifer's. lol) / currently living in McCall, Idaho Born in…
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So apparently it's not thrush, I 'm confused
My tongue turned white on Saturday and became very tender, it feels like I have sandpaper in my mouth. I called the on call Dr on Sunday and he said I probably had thrush. He called in some liquid nystatin for me. Nothing about the appearance of my tongue has changed since then. I met with my RO this morning and he said it…
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Television Commercials
Seen the anti-smoking commercials with people that have traches, and some w/altered facial structures? Saw tonight for the first time on TNT. Obviously H&N Folks who are also survivors. Any familiar to anyone? kcass
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Joint Pain from Chemo?
I am almost 6 months out of treatment and occasionally I feel some pain in my ankles and wrists. Anybody has the same experience? Does it go away or does it get worst?
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Happy Happy Mother's Day! and Happy Anniversary to Me!
Today is the two-year anniversary of the completion of my treatment! (Stage 4 T1N2c BOT for you newbies out there) Two amazing wonderful years that I have been able to spend with my two beautiful daughters and my loving husband. If I didn't have another day, it still would have been so totally worth the effort! I am so…
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FEELING SO HELPLESS... a tongue cancer surgery for a father-to-be
Hi, my name is nancy. 3 yrs ago, my 32yrs old husband had stage 3 nose cancer. went through radiation and chemo treatment. He has fully recovered and has been eating very carefully. I'm now 7 months pregnant. We were both happily preparing and waiting for the arrival of our baby in July. BUT last week, he was diagnosed…
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TEETH BEING EXTRACTED!
hi everybody my name is Matt I'm 29 years old, tomorrow i have to get 20 teeth extracted and a chemo port put in i think this is going to make my treatment a lot harder to deal with and having no teeth will be a big confident and emotional issue for me please give me some words of encouragement the closer it gets the more…
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Welcome to the party, Thrush!
My tongue started feeling "tingly" yesterday afternoon and when I went to do my now very involved dental hygiene routine last night my tongue was completely white. What the heck!?! I'm only 9 treatments in. I got in touch with the on call doctor where I'm being treated and he's calling in a couple scripts for me. Does this…
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No Diagnosis - But Surgery?
I am so glad I found this forum. Here is my story so far... On 28th I notice a large dome-shaped lump in the back of my mouth. Maybe the size of the tip of your thumb. It's basically the same color as the rest of mouth. So on May 1st I visited the ENT. He looked in my mouth, felt my lump and ordered a CT scan - which I did…