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Not good news
Jim went to the oncologist today for the CT results. There are several more nodules in the lungs and the one on the previous PET has grown. The doc is contacting the radiologist to see if a needle biopsy is possiblle. Any surgery is out Jim had two in the last 4 months). He says no treatment because it woulld kill him (it…
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Just got back from the ENT......
Scope shows that the tumor has shrunk 75% :O! Those were the only words I was wanting to hear during today's appointment... p
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An Introduction I Wish I Didn't Have To Make :o)
Hi guys. I recently went to the ENT about a gland on the right side of my neck that did not respond to antibiotics. Ended up having a diagnostic tonsillectomy last Wednesday. I won the prize... squamous cell carcinoma. It's kind of generic for now but I won't know more until my PET scan this week. The CT scan indicated…
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follow up on Arndog's husband
Well my husband no loger has a fever, he went for a follow up with the infectious disease doctor last Wednesday and the doc was ready to take him off his meds until he told the doctor that he is still suffering from severe joint pain and fatigue. The doc looked a little concerned and said he should be better by now. So, he…
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Feeding tube removed
Hi all, recently I got my feeding tube surgically removed. No stitches needed (not sure why), but now it looks like I have 2 belly buttons. Does it ever close completely?
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Shocked
Hello everybody. Was admitted to the hospital for upper body pains last night, I did have a quad bypass 4 years ago and knew something was wrong. My EKG was not normal so I am waiting to see what tests they will run tomorrow, I know of a stress test. But then came the shattering news after they did a cat scan, a tumor…
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Shocked
Hello everybody. Was admitted to the hospital for upper body pains last night, I did have a quad bypass 4 years ago and knew something was wrong. My EKG was not normal so I am waiting to see what tests they will run tomorrow, I know of a stress test. But then came the shattering news after they did a cat scan, a tumor…
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100 cans(4 cs) Jevity 1.5 nutrition supplement free
i have 2 cs Jevity,and perhaps 1 extra cs of Osmolite to someone who can use it..Osmolite only if my oral intake doesnt relapse..but looks good to discontinue my PEG soon..let me know if you can use it..glennreid@charter.net
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anyone else have neck dessection (or resection) after chemo & radiation?
I was diagnosed with tonsil cancer (right tonsil) with cancer cells found in lymph glands on both sides of the neck (stage 4 advanced). After a 7 1/2 week treatment of daily radiation and weekly chemo (erbitux) ends next week, I will have a 8-12 week waiting period to see how well the treatment worked. As many of you know,…
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Mucoepidermoid Carcinoma
I was recently diagnosed w/ MEC. I literally found out on friday. I have had the tumor in my mouth for nearly two years. I didn't think anything of it until my dentist told me to get it biopsied. I plan on getting treatment at the Huntsman clinic in Salt Lake City, Ut by the head and neck oncology department. I am very…
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Parched
I'm so thirsty! Just want to down a gallon of ice cold water! But everything hurts and water burns. How do I get past this? Ideas?
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6 month PET scan all great except
Right pterygoid muscles and inferior strap muscles I figure thats because they picked up the radioactive sugar solution because of late parts of my neck have been tender and sore when I lay down I am putting the pick up down to the pain.I am also putting the pain down to weakened muscles from Rad damage but not winging am…
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Ch ch ch changes?
Hi all - I'm fine, but wondering . . . Have any of you taken any steps "back" after treatment? What kind, and when? About three months ago, I started having a more "tender" throat, and more sensitivity while eating. I finished rads two years ago. My docs weren't interested - I look and test fine. I had gotten to where I…
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What's a good immune system builder...??
Okay ...I'm looking for a good immune system builder and I konw many of you have your opinions and links ....can you share some of those links or products so I can get rid of Ensure and Vita-water ...too expensive, too much sugar and a bit fru-fru for me. Dan (tonsil dad) ...I hear you got some opinions on alternative…
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Anyone get the license plate on that truck?
So there I was, ending week 5 and going into week 6. My throat was hurting a little bit more, but it was still manageable. I also started feeling hot and flushed around the radiation area, as my skin started to react. But all in all, I was still doing well. Then yesterday, I got hit by a truck. I was in bed all day,…
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The radiation journey
I know there is ton of information on this site on this but i found it took a lot of reading and even after that one is confused. I thought having a simple log where we have precise day by day information will help. We will limit this blog only for problems and known solutions. E.g for each day or week we could try to say…
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Which tooth brush is best...and more dental ques
Now that we will need to take care of teeth for lifetime, i have started to looking into buying a good tooth bursh. I also always had sesitive teeth and my gum line is receding in one or two teeth which is not good. However my dentist did clear me for treatment (oncology dentist) I was looking and it seems sonicarr comes…
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Your feeding tube come out?
Just a piece of advice for anyone who has his/her tube come out, stick it back in quickly and tape it in. Thursday it happened to me for the first time. For some reason, the balloon deflated. I got out of the shower, dried off and everything was fine. I sat down shirtless to change my trach tie since it was wet. I went to…
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End of week number 4....
rads and amifostine......phew! That brings me over half way....YEAH!! Taste has taken a dramatic downturn...not that things taste bad, like metal or salty....just blah...but I'm still eating what I want, and haven't lost any weight. Second chemo is under my belt, and only 3 more weeks of rads... Now I'm waiting to hear…
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Sorry for another question....
I've had 14 Rad treatments as of today. My teeth are very sore. It reminds me of when I had braces and got them tightened. Is this normal? I visited my dentist before treatments started and my teeth are in great shape and I've been flossing/ brushing and then brushing with a cloudier toothpaste every night...
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To my base of tongue cancer pals
I was as most know by now diagnosed with BOT, but I had the swelling of the tongue and voice change, (not in my head / a fact) before even getting my 1st treatment which was chemo last week. Still weeks from rads when I expected tongue and thoart issues. My question is did any other BOT have issues before treatment /…
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Vocal Cord rads
Anyone here on the boards have just low dose rads for vocal cord C? I'm 1/3 finished (9of28) and hanging in there with a sore throat starting, a little fatigue, and neck sore. I guess what I'm wondering is how bad does this get? I was prescribed the throat liquid with lidocaine and other ingredients to use when I may not…
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New to the group and question for caregivers
Hi everyone, I just joined a few days ago and figured I'd introduce myself. My 38 year old husband has hpv+ oropharyngeal scc and started treatments about 2 weeks ago. His treatment is 35 rads and 6 chemo - cisplatin. So far he's doing reasonably well aside from some fatigue, discomfort in his neck, and a little…
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Taste!!
I know I've touched on this subject before but did anybodys taste come and go? . I'm 5 weeks post rads and still have no saliva but my taste is weird!!! I could start to taste little bits of food on the tip of the tongue and when it went in the mouth the taste had gone, now all the taste has gone completly gone not even at…
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Who do you call?
I am starting to have an increasing amount of pain on the left side of my jaw right in the joint. Who should I call? My onco, my primary or my dentist? I have recently seen both my onco and my primary, told them of the dull pain but neither one seemed to think it was of concern at the moment so neither did I. But now it…
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Rock This Town
I am happy to announce that the benefit my friend Deb and I put on together raised over $3500. It was held April 28th and we are dividing the money between Ashland County Cancer Association and Hospice of North Central Ohio. We have done 6 other benefits starting in 99 but always gave our $$ to just Hospice before. Last…
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Just diagnosed with SCC on tongue.
Hello, My name is Bob and I am a 37 yr old male. I have had a history of seizures and during these episodes I occasionally chewed/bit through my tongue. Needless to say there was a build up of scar tissue and over the past 3/4 years I would bite it while eating, talking etc. Anyway, about two weeks ago there was an…
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finally some good news, thank God
so after my mom's surgery on 3/1/12 for recurrent tongue cancer we went for appointment about brachytherapy. At that time doctor felt that there was more tumor left in the tongue so he asked to do an MRI which in result showed some changes. Mom felt no pain therefore doctor wasn't 100% sure that it was cancer so he did a…
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Hiccups?
I have been having several episodes of hiccups daily for the past few days. Is this a side effect of radiation? It seems so trivial but they really are pretty uncomfortable when your mouth hurts. Anybody got any good ideas on how to make them stop? I've just been practicing breathing techniques since I can't drink water…
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3 days since teeth have been extracted
hi everybody i'm out and moving around since Monday having 23 teeth extracted and the chemo port put in its a lot of pain comes and goes but i'm trying to get through it i know i have a bigger task at hand so if all goes well this week Monday i will be doing my mask fitting and Thursday 24 i will be starting my chemo kinda…