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Head and Neck Cancer

Archives for September 2011

Photopenia
Has anyone heard of photopenia? If so, what the heck is it?
Support Groups
Have any of you attended or are attending a support group for head and neck cancer?
Mouthwash
My wife was going to start a trial for a mouthwash during her second round of chemo. The doctor has been examining her and determined she is not a good candidate because her mouth is moist and does not look like it is developing sores. It hurts at times and may get worse later. Oh well back to the salt water rinse for her.…
pet scans
This seems like a busy week for pet scans. Hondo, I think that yours was an hour ago. Best wishes with your results! Prayers for all of you getting scans this week! Robinleigh
I expected him to look worse
What on earth is that supposed to mean? All of our friends who havn't seen Vaughn in a while all say the same thing ...I expected him to look worse. I'm not sure if this is a compliment or not. I think he looks great so I get a little annoyed.I'm not sure if people just don't know what to say or what. Has anyone else…
Nephew's Update
Hi all: Am back home now. Thanks so much for all the prayers and please keep them coming. Brian is still unconscious. They placed a monitor in his brain to determine if any swelling was happening. The bleeding on the brain has stopped. They operated today on his right leg and were very pleased with how it went. Our prayer…
Easy to Swallow Recipes
Can someone direct me on where I can get receipes for easy to swallow meals? I tried the HNC Superthread but received an error for that page.
Severe pain
Buzz finished treatment January 10, 2011 for Stage IV base of tongue cancer. He had chemo and radiation. Now he is having intermittent severe pain in the left side of his neck (both sides were radiated but the left more so). It hurts from the top of his head to his collar bone. We have a referral for physical therapy which…
Rad Qs for SCC mobile tongue 4 no node no HPV
What questions should be asked of the radiologist before radiation treatments begin? Three weeks ago had most of tongue reconstructed with forearm muscle. Tumor over 4 cm, 84 lymphnodes removed all testing negative. Had first occurrence two years ago, simple procedure to remove tumor, did not remove all. HPV test was…
How long have you survived with a recurrence
Would this be a helpful discussion to start?
*** Indian Rocks Beach Florida ~ Skiffin & GreenD ***
My wife, Shelley and I had the pleasure of meeting up with Denny & Denise this Labor Day 2011... Great company and awesome lunch at Keegan's Grille, Indian Rocks Beach Florida.... Skiffin16 & GreenD..... Keegan's Grill ~ IRB, Florida Too bad the rest of you didn't show up for the invite....I talked crap about most of you,…
recently diagnosed completed 8 weeks or radiation
I was recently diagnose with adeniod cystic carcenoma as my doctor said he has seen nothing this bad of this cancer it had invaded my orbit broke through my cheek bone covered my forehead and was moving up towards my brain.i completed my 8 weeks of radiation oh about almost 4 months ago and the lumps in my cheek and face…
Evoxac approved
My insurance Co.Called this morning and have approved the Evoxac for producing saliva I have been taking Salagen for 3 mounts and it has not helped. I hope this does. I know Hondo said he had tried both but neither helped him has anyone else took Evoxac with any luck it is a new drug if anyone else has any information let…
Return of my tumor
Only two months past a clear PET and an MRI shows the return of the tumor and it is even more aggressive. It is paralyzingly the left side of my head and neck. Doctors given me a few weeks to months. Declining surgery since it has invaded my brain case and brain stem. I'm now on erbetrex chemo for palliative care.…
Return of my tumor
Only two months past a clear PET and an MRI shows the return of the tumor and it is even more aggressive. It is paralyzingly the left side of my head and neck. Doctors given me a few weeks to months. Declining surgery since it has invaded my brain case and brain stem. I'm now on erbetrex chemo for palliative care.…
treatment for scc tonsil and lymph node
hi everyone my dad was diagnosed on August 8, 2011 with scc left tonsil primary into lymp node HPV+ we started treatment August 22, 2011 with one round of 76 mg cisplatin and IMRT raditation. September 2 was the 8th radiation treatment. Chemo was scheduled for Aug. 30 but was cancelled because the kidney function was not…
Chief daddy Mike Son up-date 9-4-11
Just to let everyone know Mikes Son is really doing well, His Liver is in the normal range and he continues to take his chemo with no further problems. He is still in the hospital and they are now starting to do physical therapy on him, and the good part they are letting Mike help him as an instructor. Please continue to…
Urgent Prayer Request
Hi all: Need all the prayers we can offer up. My nephew Brian, (my brother Richard's son; Richard is the brother that passed away 8 weeks after Charlie last year). He was hit by a car in Chatt. last night and is in the Trauma Unit in Chatt. He has had his spleen removed, surgery to relieve bleeding on the brain and a rod…
Beard/hair
Okay, this is a superficial question, I know, but here goes: My husband had a beard for over 45 years - I'd never seen him without one - and of course it all went way during radiation. Now he's over a month post radiation, and nothing seems to be coming back. I tell him I love him without his beard, but to him, I guess…
He just finished rads 2 weeks ago and I am getting sick.
My husband is just out of radiation and I am getting sick. I think I am coming down with a cold. Anw ideas on how to keep him from getting sick?
Excess Mucus = No Sleep
My husband is 2 rads from finishing treatment. He cannot get any real amount of sleep due to excess mucus coughing fits. Has anyone had any luck in finding a solution to this problem? Thanks in advance! Tammy
How old is Cancer
Just wondering about how old Cancer is, has it always been there and if so there sure looks to be more cancer now than ever. I was reading an article that was saying that Egyptian mummies have been found with breast tumors, and the earliest writings (from about 1600 BC) mentions "there is no treatment" for it. Then I read…
A Physician's Story
This was on the Op-Ed page of the New York Times yesterday, September 2, with the title "When Doctors Become Patients". The author is Eric D. Manheimer,the medical director of Bellevue Medical Center and three years ago he noticed a lump on his neck. And even though I've already seen this movie, I had to keep reading.…
One year anniversary
Just got home after having cocktails with my ENT who found my cancer one year ago today! He is quite the treat, kind but very direct. About 10 years younger than me. During our anniversary celebration tonight he let it slip that a year ago he thought I was a goner with how huge my mass was...I found the hair on my arms…
Sore Mouth and Throat Relief - Any Suggestions?
My dad (77 years old) was diagnosed with base of the tongue cancer, stage 2 squamous and has started radiation - 9 treatments done, 26 to go. The back of his throat and his lips are getting sore - does anyone have any suggestions? I have been reading all the wonderful postings on the discussion board to warn him about many…
ekdennie update!
I just wanted to give everyone a quick update on how I am doing. I saw my ENT and prostodontist last week and will see my radiation oncologist next week. no sign of regrowth! I am still having some trouble with finding foods I can eat, mostly due to my mouthpiece, but it has been fun seeing what I can swallow, what I can…
salty taste
I know that people have talked about salty taste on this site but my question is, Has anyone had it taste like ocean water and make you sick? Also, is there something to rinse with that lessens it? Jim has tried filtered water, bottled water, all brands and they all are very salty. He has also tried cold and room temp. He…
Feeding tube questions
Hi, I know many people have been extolling the life saving virtues of the feeding tubes. But I generally like to view both sides of coin and also think it will help anyone no matter if they decided to get one or not. If you had a feeding tube, could you please answer these questions? 1. What type of feeding tube did you…
What do ya think?
Well mom had erbitux only to treat her recurred(they really did not get it all the first time last year) paranasal cancer. Last year she had surgery and radiation, but doctor said she did not need chemo. Chemo tends not to be very effective with this cancer, but who really knows because its so rare. 2,000 cases a year.…
oh oh camouflage disappearing
Beard and moustache falling out there goes the hiding matter for my ugly moosh

Head and Neck Cancer

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