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Head and Neck Cancer

Archives for September 2011

Wierd taste in mouth
This may sound a little gross so I hope this is not uncommon but here goes. I am almost two months post treatment and for the last 2-3 weeks I have been getting a weird taste in my mouth when I urinate. I cant even describe the taste. Has anybody experienced this? I would hate to think something is going awry in my…
Rochester Road Trip!
Well, in three weeks my wife (DrMary) and I are going to be in Rochester, NY for the weekend of 30 September (also her birthday). I know that there are a few people there from the list and we would be happy to get together at some point while there. Also Sweet Dawn, since we are coming up from Maryland, we are likely…
"Cheeseburger in paradise"
(Jimmy Buffett reference) Can anyone remember getting a special diet in the hospital after surgery or other treatment? For me, after the biopsy, a very kind lady brought me lots of chocolate pudding, but I assume that was part of the diet for someone who'd had part of their tongue sliced and diced. And after the surgery,…
Need advice on my mom post treatment
My mom was diagnosed in April 11 with a very large BOT cancer that had spread to her tonsil and neck lymph nodes. It was HPV positive. She had 35 radiation treatments with 3 simultaneous doses of cisplatin. She lost around 25 lbs during treatment (which she didn't need to). We also lost my father during her treatment to…
Should we get Neck Ultrasounds??
Anyone having any routine neck ultrasounds to check for blockages, vessel weakness, aliens? There have been a few threads about carotid rupture that has me thinking..... Stacey
newly diagnosed adenoid cystic carcinoma
I am 23 years old and was recently diagnosed with Adenoid Cystic Carcinoma (left parotid gland) less than a month ago. I had a parotidectomy and will soon begin radiation treatment for 6 weeks, 5 days a week. I am not sure what side effects to expect, and the doctor believes I won't be effected much, but I have read about…
nose bleed
have any of ya'll gotten a nosebleed after treatment? i finshed treatment last year and cetuximab recently. This morning I had a real severe nosebleed in the nostril on the side of face that had the cancer last year , blood everywhere. My nose has been real stuffed on that side lately , but I didn't think I was blowing it…
pro's and con's of a T.E.P
I had a Laryngetomy in oct 2010 and a T.E.P implant on May 2011, I cannot seem to get it to work for me and everyone tells me to just keep trying. I've had it replaced 3 times because of leakage to my lungs.I use the HME Cassette ( heat and moisture exchanger) Only good thing about that is it helps to keep the stoma clean.…
Herpes to Fight H&N Cancers??
Sorry - forgot how to include links It's at http://ht.ly/1eCi5c Docs using bacteria from dirt, scorpions and the virus that causes herpes to fight cancer. From the article: "Not to leave viruses out of the mix, doctors based at the Institute of Cancer Research in London report that they have used a genetically engineered…
Creatinine Level High - Does this go away?
My husband is 3 weeks out from rads and chemo (32 rads and 3 cisplatin)for stage II laryngeal cancer of the epiglottis. He was doing pretty good but getting daily IV fluids to help his hydration and keep the mucus a little under control. He was still not eating much due to the sore mouth and the mucus gagging him (no PEG)…
Excess mucus- when does it start to subside?
It's driving hubby insane. Thanks!
Month of September, busy
Looks like I will have to start paying rent to the doctors this month. have just completed 20 bouts of Hyperbaric treatment for teeth. Next week I will probably have back surgery for a herniated disc pinched nerve. This coming Tuesday will receive results of ultra sounds on my carotid artery, had surgery on it in 2008 as…
HPV test ????
After my boys ragged me on fathers after I mentioned what had been said on here about HPV. I am wondering was it a standard test your Onco ran for you or what ?
Platelets
I had CBC work today, white and red cell counts in normal range, my platelets are on the low side. Not enough to stop the next chemo infusion on monday. Onco nurse said the doc may decrease the dosage of chemo I receive. Has anyone else experienced an issue with their platelets? Thanks, Linda
Finally, A Plan
I just met with my chemo onc and he has a battle plan for me now. Briefly, I started with a parotid cancer and it spread to my lungs and lower back. I had a lung biopsy which confirmed it to be the same type of cancer that started in my parotid. My doc sent the sample to a lab which did gene sequencing to pick the best…
Dry Mouth No Saliva
It has been almost 4 months since I went through radiation and chemo for cancer of the larynx. My mouth is still dry and I seem to have no saliva. I have to have a bottle of water with me at all times. Will it get better? Does anyone have any words of wisdom. I saw in the rad book that dry mouth may stay forever.
Rads
Are there SCC's who has chosen no radiation following resection of hard palate or submandibular or other parts of the head, neck, mouth etc.w/good results? Should it always be done? Ramifications if you choose only to have the cancer removed? Dotty
Exovac side effect's
I have been taking Exovac for a week it has not helped with saliva yet the Doctor said it should start helping in 2 weeks.I will keep thking it for awile to see if it helps. One side effect is over active bladder when I take one in about a hour it’s the best to stay near a bath room or you will urinate on your self. I know…
test results and prayers
Test results on Friday for Grandma wish us luck and prayers please. Thank you
cancer spreading through tissues?
Has anyone had chemo, radiation, got a clean ct scan and it came back twice? Husband had two neck surgerys. Surgeon said it was in the tissues...started out scc with 1 tonsil that spread to neck and was around 9cm conglomerate with tumor being 4 or 5 involving couple of nodes. Now we are playing the waiting game while his…
PET Part 1 & 2 (No NED but not bad)
Well the PET scan is over now comes the waiting game, tic toc, tic toc, tic toc, so goes the clock, been there many of times and amny more to go in life. lol Hondo
A knock on the window pane
Have you ever had such a moment. I'm sitting here in the basement and I hear a tapping on my living room window. I go investigate. Standing there smiling from ear to ear is the old gentleman who works for the medical company that delivered my jevity cases two years ago. He's checking on me 2 years post treatment and…
cancer unknown primary
anyone else out there?
Another Update
Hi all: Thanks again for all the prayers and continued prayers. My nephew is still in a coma but docs told sis-in-law they are not discouraged about that as we all know people can be in comas for months! The fact that he has come thru all the surgeries is amazing in itself. They are going to put in a feeding tube and trach…
hello from Ray week 4 ended
Nice to log on and see you all helping where you can or should that be were you can.
Great News
Steve had a pet scan on 8/19 said they saw something, had ct scan yesterday, Doc called today and said he is cancer free. Cried all day with joy, thank you everyone for all the support, now we work on healing.
**** I Have Been Deported~ After the Fact & Updated****
OK, tomorrow is finally the day...I've had this port in my chest since January 2009. I was supposed to get it out around March of this year, but at that time my surgeon only did it at the surgey center and putting me out. As I hadn't met my total out of pocket at that time, I decided to wait. Now that I've had the PET and…
Battle Plan
Well, I am finally going in to meet with my chemo oncologist on Friday morning to discuss the battle plan for me. I had a lung biopsy two weeks ago and they were waiting for the gene sequencing to be done on that before they could come up with a plan. I have never had chemo before, only radiation/surgery and I am very…
nasty pain , what now?!
Hi warriors, Havent been around for a while. Were to start steriotactic radiation on Sep 20. But , she has a nasty pain kind of in the left side of her throat, she feels its higher up and though its a constant it hurts most when she swallows. Got scoped twice in the last week to check this but they say everything looks…
Cisplatin secondary cancer risk
Hi, I read (after my oncologist appointment) that there is a rare risk of developing a secondary cancer years later with Cisplatin use. My medical oncologist seemed rather adamant that I go the Cisplatin route. I have a second primary cancer (nasopharyngeal) after a first encounter with colorectal cancer in 2008 and I'm…

Head and Neck Cancer

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