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Jevity vs others for peg
As some of you know I am now using my peg for 100% (no cancer, dealing with long term after affects) of my nutrition but I am also still not as educated as I should be about this pesky little life saver. I have been reading about Jevity on the board for quite a while and assumed it was the "Cadillac" of nutrition so I…
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Biopsy Results: Dysplasia.
I am a survivor of Stage II Laryngial Cancer, treated with radiation only. The radiation ended in August of 2010. Last week, a follow-up biopsy of the sub-glottis showed dysplasia. As it was explained to me, the cells were abnormal but NOT CLEARLY CANCEROUS. I have some throat and ear pain. The ENT said I do not have an…
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You are all wonderful!
You made me cry and crying as you know hurts as well. I have never had so many people understand. You are all amazing. I will do my best and try one day at a time. I didn't know you could put prune juice or anything other than the enjevity (which comes up into my throat somehow and has an awful taste. I was embaressed to…
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Reeling from remarks of a surgeon
Buzz was hospitalized for a week with an abcess in the side of his neck in addition to the return of his cancer. While there, a head/neck surgeon came in to see him. She is actually the one who did Buzz's right radical neck operation 10 years ago. She did an incision and drainage of the abcess by using a scapel then…
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Pet scan today
Please send my husband, Andy, your thoughts and prayers. Thanks bunches, Robinleigh
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SWOLLEN TISSUE NEAR BACK OF WISDOM TOOTH
Looks like I will be trying to have my one year ENT exam today instaed of October 20th. I had thought for a few days that I might have bitten some tissue in the rear of my mouth, and or have something stuck in the gum / tissue near my wisdom tooth on the same side as my Tonsillectomy. No bleeding or ulcer like, just white…
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New to throat cancer and am not sure I can do this.
Went to doctor for lump on left side of neck and was told it was most likely brachial cyst or cleft - could be removed or not but if not it would get bigger. Went to another ENT because did not like the first. Needle biopsy done and nothing difinitive found. Asked for PET Scan in case it was cancer - told no less than 1%…
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For molinaar: Hello A Question
Hey Gang, I'm re-posting molinaar's original post, which I'm afraid would get lost in a large, older post. hello a question new I am going through the same thing half my tongue was removed and replaced with my skin....well wat i want to ask is how long did it take for you to recover this and another question has yr tongue…
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An update on my Father
Well, for those of you who don't know, my Father was diagnosed with Squamous Cell Carcinoma in March of this year. He had his radical neck dissection surgery where they removed 29 lymph nodes and his jugglar vein, and 7 weeks of Chemo and Radiation. His last treatment was August 3rd, the day before his 65th birthday. It…
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16 months post op total laryngectomy
Hello My name is Brenda and my husband Jim had a total laryngectomy 16 months ago. I cannot beleive how scared we both were about what our future would hold, how would get through it all, but we did. We have been on a huge emotional rollercoaster but have learned such a lot and we know our positivity and our ' glass half…
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reccurances - here is my fear. Tell me what you think?
OK!!! Doctor gives a clean bill of health and tells us, that he will see us in 3 months. I asked if he would need to schedule a pet scan prior to the visit. He says "no, only if he is a high risk". I know he will get scoped every 3 months. I am kinda scared, not having the pet done on my husband. It's like a safety…
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Checking in
Hi all: Basketcase checking in. I got back from Destin, FL on Sat. nite after a week with my two closest friends. We had a blast; a lot of fun and sun. Of course, I had an overwhelming welcome Sat. nite when I got in; the boys were more than happy to see Mama. I'll be home for a while now; a couple of weekend trips in Oct.…
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Chief daddy son update?
Any update on Mike's Son? Last heard he was improving but still hospitalized.
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RayTodd How are you doing!
Hi Ray just wondering how you doing, last your Wife posted you were in the Hospital. Just things about you my friend and hoping you are doing well. Hondo
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Foods I can Eat without sipping Water
I always could eat a good Salad & Red Beans with out drinking water but I never tried to eat anything else that way for fear of chocking. Well this morning I just found out I can eat my Oatmeal with out taking a sip of water between each bite; it has a hold new taste that way. Sometime we get so use to doing something a…
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PM
How do you send a pm message on this site? Thanks, Linda
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Recurrances
Is it my imagination or are we seeing a growth (no pun intended) of people with recurrances? My wish is all of these get well and the surge stops now. Maybe its just my imagination....I worry about you guys. Denny PS Not you John (Skiffen), Shelly worries enough for the te=wo of us. :>)
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possible recurrance
hello all, I am new to this site. I normally use Cacnercompass. My mom is 8 months post tratment for stage 3 tonsil cancer with 1 lymph node. she had surgury to remove the cancer as well as neck dissection with 15 lymph nodes removed. pathology confirmed that only 1 lymp node was positive and all margins were negative.…
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possible recurrance
hello all, I am new to this site. I normally use Cacnercompass. My mom is 8 months post tratment for stage 3 tonsil cancer with 1 lymph node. she had surgury to remove the cancer as well as neck dissection with 15 lymph nodes removed. pathology confirmed that only 1 lymp node was positive and all margins were negative.…
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1 good day 5 bad ones
1 good day 5 bad ones last week I thought I was improving I had a good day but it seems it’s went down hill I am unable to swallow very much and the dry mouth is bad I wake very early with all that mucus it takes a while to get it up then it’s all day coughing it up I walk around with napkins. I am 10 month's past…
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breathing
my husband is in hospial. he woke up last night finding it hard to breath,lots of mucous in throat,chest felt heavy,coloured saliva on pillowcase for a few nights.is this what they mean about mucosis and would a vaporiser help?
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Surgeries down, radiation starting...
Hey everyone, Thank you for all the great information you all give out to help others. The information is so helpful for those of us just going through this detour in life. 6 weeks ago I had the TORS surgery on my tonsil, back of tongue, side of tongue and all of the clear margins. Everything came back good, except that…
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Nasopharnygial (Pretty sure I spelled it wrong :)
Well....I have been dealing with this for about 2 months now and am on my 2nd rad and finished my first chemo. The Doc says she is sure she can cure me of this but it is tough to take comfort in this when I thought i just had a allergys for 2 years.lol I am 43 and have Chinese ancestry from my great grand father but smoked…
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Ear Problems: Wax or Loss or What
Over the past couple of weeks, my right ear will "pop" or become unplugged when I wake up in the morning and suddenly I can hear better. Having sinus problems and previous ear wax problems, I attributed it to that. Now, it isn't becoming unplugged and I'm hearing less. I also had two rounds of Cisplatin with some ringing…
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ENT visit - no better news
Dad saw the ENT today and it was not any better. He does not recommend doing the neck dissection, because he does not think that is what is causing his pain. He feels it is all coming from his tongue. The chemo doctor thought it was the lympe node pressing on the nerve. He told him he did not think the major surgery would…
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Jaw Problems
Does anyone know if after having radiation and chemo for cancer of the larynx, you can get jaw problems. Today as I was eating my jaw starting cracking and feeling very uncomfortable. It happened again when I was having lunch. Has anyone heard of this? What is the treatment? I've had alot of side effects, but this one is a…
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good news
Jim had one month check up with rad doctor. Could not feel the tumor, wich was very firm when diagnosed. He did not scope since Monday Jim goes to ENT and he will scope. PET set for November. Hate waiting but this is encouraging. Debbie
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Eating Problems
I just wonder sometimes if I am the only person in the world who when I sit down to eat has all these problems. 1. I am always first at the table and last to leave. (I hate eating alone) 2. My plate of food is always smaller then everyone else 3. My food is always hot when I get it and cold when I finish it. 4. I can’t…
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Neck dissection coming
Hi everyone, Sorry that I haven't posted in a while, but all is well. Had my first post treatment and yep, false positives.... My ENT surgeon wants to go ahead and take out the involved lymphnodes on my right side of neck. So here we go on 6 October. Everyone has said that this is nothing compared to the tonsillectomy/BOT…
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Neck dissection coming
Hi everyone, Sorry that I haven't posted in a while, but all is well. Had my first post treatment and yep, false positives.... My ENT surgeon wants to go ahead and take out the involved lymphnodes on my right side of neck. So here we go on 6 October. Everyone has said that this is nothing compared to the tonsillectomy/BOT…