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Can you say NED!!!!!
My husbands post biopsy came back clean. Doctor says, at this time you are cancer free and I will see you in 3 months. For a scope. No pet scans, he said if he thinks he is at a high risk he will order one. Now, we need to learn to relax and get used to our new normal. Thank you everyone for your kind words, jokes, and…
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Maxillary Sinus Cancer
I'm looking for someone who has or had maxillary sinus cancer. I work at a hospital and a patient of mine is looking for someone who he can share his experience with. We have had difficulty finding someone that has been through what he is going through right now. He could really use the emotional support and the feeling…
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Dun Dun Dun!!!! Well it's almost time to head out for the Needle Biopsy results.
A little on the nervous side. I will be leaving work in about an hour to head downtown. I sure hope he does not need surgery. He was really hyper last night. He was not scared of chemo and radiation, but he is not crazy about having someone cutting on his tongue. Pray for us. Will update later today or tomorrow.
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Phlegm
I am currently being treated for cancer of the vocal cord. I have completed 27 out of 35 radiation treatments. A couple nights ago I began waking up in the middle of the night and with a very slight cough would bring up large amounts of phlegm. I have seen several posts here talking about excessive phlegm. Is this what…
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Connie has a red blotch on her cheek
Well here we go again. Connie had some redness on one side of her neck last week. This week that redness has gone but now she has a red blotch on her cheek. It kinda looks like shingles. Has anyone ever had shingles as a side effect or had these blotches and should we be concerned enough to see a oncologists or should she…
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Transderm scop
Hi, My dad is receiving Chemo and radiation and has excessive mucous. Has anyone ever heard of transderm scop to stop the mucous. I read the side effects and seem a bit uneasy to try. Anyone heard of this patch to try for mucous problem? Thanks for your help Michelle
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New & Humbled
I was diagnosed July with Cancer of the vocal chords. Drs. consensus was 100% cure and "you'll live to be 100!" I'm 67 now and pointed out I'd only made plans up to 90. Anyway I'm now left with 8 more Radiation treatments out of 34 and my throat is so sore I cant swallow with nothing to go down let alone with food or drink…
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Oral surgery
Now that all the scans are done, the time is here. The remaining 17 teeth (which are really painful) get removed tomorrow by the oral surgeon, they are doing it in the hospital operating room. have to be there at six and surgery is scheduled for 9:20. Got a letter from the hospital telling me if this kept up I would have…
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Not good news at all
Dad got his results yesterday and they were not good. The cancer has come back in his tongue and lympe node. He is going Friday to meet with the surgeon about having the minor neck surgery to remove the node. This will stop most of the pain he is experiencing. His other options are to have the surgery to remove his whole…
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My best friend has recently been diagnosed with squamous cell carcinoma at the base of his tongue an
I'm here hoping to get as much information as possible to help my friend through his radiation and chemo treatments. I took him to the oral surgeon, he had his molars removed last week in preparation for the radiation part of his treatmnt. His oncologist has strongly suggested that he have a feeding tube put in (stomach)…
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Alpha Male
Men don’t like to ask for help because we feel it is a show of weakness or not being in control. It is a man's thing of trying to always be the Alpha male; you know the biggest and greatest. But having cancer sure puts a damper on any Alpha male thing, and it showed us that as humans we all need one another in order to…
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Since Cancer what changed in your Life
Hi Everyone I borrowed this from another post, I added somethings and changed a few other to show Since Cancer what changes have taking place in like of people with Cancer. Please feel free to add to the list of Since Cancer what changed in your Life Since cancer, I'm in the best health of my adult life. Since cancer, I…
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loss of hearing after chemo
Just finished 8 chemo and lost 90 percent of hearing in both ears.Dr.said it would be at least 3 mo. before its known if this is perm.Has any one had this problem?
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Follow up Questions
I am going back to the surgical oncologist tomorrow. I am trying to think of what to ask. First, here is a run down on my situation. I am 6 months out from treatment, a lot of the saliva production is back, but swallowing seams to be getting more difficult in the last month or so, because i feel like i have a lump in my…
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Scans, radiation, recovery, posting
Hey guys, It's been awhile though I've popped in a couple times to see how everyone was doing. I've missed you guys. My first PET since treatment came back with a hot spot on my left hip. Thought/hoped it was just inflammation from a crazy mountain bike ride I did the day before. MRI showed it was actually bone mets. Damn!…
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Cancer numbers and letters
I am seeing my docs next month but in the meantime wondered if any of you knew what these letters and numbers mean? My diagnosis was cT4aN2bM0 (Stage IVa) Squamous Cell Carcinoma of the left base of tongue. Thanks in advance Peace, Nancy aka toughcookie
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Rude Awaking
As my husband called it, he had a rude awakening this weekend. My husband attempted to help a friend and did a side job, replacing drywall. When he got home Sunday evening, he was aching to the core and took a shower and went to bed. Monday morning rolled around and he was soooo sick, he vomitted all day and was bed bound.…
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"Choosing an Imaging Test"
In the Fall issue of CURE magazine. (free to us cancer folk) This question comes up a lot and this article provides good insight. Choosing an Imaging Test
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Post Treatment Depression?
My husband finished radiation and chemo on August 22nd. No PEG through the treatment and he managed to eat through all but the last 2 weeks when he lived on Ensure. Last week he was hospitalized for 6 days due to dehydration and high creatinine levels. This was probably due to the chemo (cisplatin) as well as throwing up…
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Another NED
I just had my year and a half ( almost ) exam and my Dr. said everything looks good. This was my first appt after switching to every 3 mos instead of every 6 weeks. After waiting 3 months I was jonesing to get in there and get checked out. The scope was a little more uncomfortable than usual because my doc was having a new…
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New
Hi everyone. I was recently diagnosed with SCC of my left vocal cord. Doctors stated it was early stage and the only treatment needed was radiation. So far I have completed 24 of 35 radiation treatments and have a few side effects: voice is down to a whisper sore throat and some difficulty swallowing. Not too too bad I…
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Help! Buzz is having fainting espisodes
Buzz has had 3 fainting episodes. With the first one, he fell and hit his head. Called 911 and he went to the hospital. We were told it was a vagal reaction. Went home. Had another episode on Saturday. He looked awful and his b/p was initially undetectable. When he did not improve, I called 911 again. Another ER visit.…
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Apart From the Side Effects of Radiation Post
I post this separately as I'm not sure if this is from radiation, chemo, or neither. I am two and a half years post treatment from SCC of tonsil and neck and really have but one complaint. Like many of you I still have a lack of saliva and some tooth decay but my most serious complication is a lack of sleep. I can honestly…
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What is new mixed groundglass & mild FDG uptake?
These were words used by the Rad/Ocologist report of my latest PET-CT. He doesn't want to see me until January when we will do another PET-CT. Under the section Tumor Status he states NED. New words/terms that I'm hoping someone can share their knowledge before I email him for a explanation. Thanks & Well Wishes Ed
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Just Cheking In
Hi to all my friends! Just had to stop by and thank everyone who helped me along. 17 months now and I am doing great! The new me is O.K. but I am not who I used to be physically. But I am here and so happy to have had all of you as friends. Still getting clear scans so here's to life!
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Tired?
Good morning everyone. Quick question. I just finished a round of cisplatin and 5fu and I am just so tired. I have been wanting to sleep for the last three days. Is this to be expected or should I be a little concerned? I can get up and do a few things like eat and shower but then become so drained. I am hoping this…
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Lip and mouth sores
Hi everyone, My dad has 17 imrt radiation treatments done and carbo/5th Chemo for tonsil lymph node cancer. Right now his lips are cracked and have a blood blister on them and sores on the inside. Dr said try aquaphor and a&d ointment but it does not help. Does anyone know any treatment to help this? Also anyone heard of…
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Glutamine thanks
It may be psychosomatic but I feel the Glutamine mouth wash is very effective. Reading up on it I see the logic of why it works,although when it dries in your mouth it leaves it all white good for a fright LOL. Got ahead of myself beginning of last week thought I only had a week and a half to go but as of Monday I still…
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Eight Year Survivor - Can I answer questions for ANYONE?
I have been out of treatments for 8 and 1/2 years from state 4 head & neck cancer. I went through Chemo-Radiation-Surgery-Staph Infection. Even after 8 years my throat is still getting better and my silva glands continue to get better as well. I am one of the VERY FEW who DID NOT have a feeding tube. It would be my…
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Ideas for column?
I work as a receptionist at a small newspaper here in Ohio. I had a chat with our editor on Friday and he is going to perhaps let me write a column about my cancer journey. He wants me to give him a rough idea of where I want to take it. My thoughts were before diagnosis ( I was misdiagnosed for months), after diagnosis…