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Here I go...
I go into Mayo hospital on Monday 22nd to have my surgery...They are going to use the lazer and do a neck resection...Don't know about radiation yet until they do the pathology...They may leave a hole in my soft palate, it is a 50/50 proposition now but, the doctor said they can repair it later...So, I am nervous and very…
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Ear Tickle pre and post treatment
I finished chemo-radiation treatment on June 1st for a 2 cm tumor at the top of my larynx on the right side with 3 lymph nodes (both sides). I went for my first post treatment exam and scan on July 26th and they said everything looks good. Among all the other symptoms and problems described on this board (learning to eat…
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almost 3 months out
almost three months out and my husband has not been feeling well and he is kinda hoarse and his throat hurts more than usual. He said "I thought all this was behind me and now I feel like I am getting worse". Anyone else experience this kind of setback, so far out?
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Radical Neck Dissection and Laryngectomy Stoma
Hello everyone- My husband has been battling tongue and neck cancer. Last year he had a surgery to remove the tumor, went back a few weeks later for 2nd surgery to have clear margins. Within 6 months the tumor was back aggressivly, so he was then treated with chemo & radiation. The main tumor is still in the tongue and the…
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One Year Tomorrow
Dear CSN Buds: Tomorrow the 21st will be one year since Charlie passed away. I'm getting ready to leave here and go to NC and be with his family. I can't say it's any easier being without him and I miss him more than ever; but because of folks like y'all I've managed to get to this point! Truly y'all have been so wonderful…
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Ray the hypochondriac
Lost one salivary gland through Scc damage just had my first 4 Radiation treatments but I am so dry my tongue is not sticking its sliding over the roof of my mouth. I know we are all different as each body is probably like a snow flake,unique. I do think this might be a bit early.
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Hi everyone! post treatment update
Hi everyone I really missed you guys! I hope everyone is good and well, as for me ive been going through a lot since I was last on to start with I lost my health insurance five months ago and have not seen my doctor for my cancer check ups which im supposed to go for every two months and have not seen for five months the…
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What is the cure rate for tonsil cancer hpv
I was just wondering does anyone know how curable tonsil cancer hpv is. I have not heard of anyone having a recurrence with tonsil cancer hpv, I told my husband not to worry, there is no way this cancer can come back 4 months post treatment, am I right? He is just scared after having his first pet scan today. Thanks Linda
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What is Jevity
I hope this isn't a silly question. Is this the food used for the feeding tube? If so, where do I buy it or is it by prescription? My husband will have the tube in on Tuesday. Sorry for sounding so silly not knowing what this is. Is this like Ensure? Thanks, Donna
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Radiation has Started
Hi everyone, My husbands radiation has finally started. Two treatments and 32 more to go. Once a week chemo with it. The 4th and hopefully the final kind of chemo (Carboplatin). He had a couple of rough rounds and needed IV's at home with the Cisplatin, Platinol, F5U and the Neulasta shots. Just when he started to feel…
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Questionable statements by a Radiation Oncologist... my Radiation Oncologist...
I'm about 15 months out from end of treatment for Stage 4 BOT with mets to multiple lymph nodes on both sides. Some of you here may recall my comments during treatment about my Radiation Oncologist... fondly referred to as "the mollusk" owing to her 'warm bedside manner' not. I believe I received the maximum allowable…
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White Blood Cell Count
Woke up this wed with a fever of 100.5, called doc and was told to take tylenol, did that, felt fine for most of the day. Around 1:30 in after noon took temp again it was at 101, called doc again , sent me to emergency room , my level was @ 1.8, spent the last 2.5 days in hospital, antibiotics and all. Levels now back to…
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Great Info Site
Science-Based Medicine Site I've been looking at an information website lately, called Science-Based Medicine. Here's a brief excerpt from the "About SBM" intro: "Science-Based Medicine is dedicated to evaluating medical treatments and products of interest to the public in a scientific light, and promoting the highest…
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Question About what to do about being light headed all the time?
Hey Guys I just wanted to ask what I should do about being light headed all the time? Because it just started to do this last week it doesn't matter if I am sitting down or standing it feels like I am light headed all the time. But I also noticed that when my ears feel like they are popped I can hear my self talk and…
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Following-up
I have/had Mucoepidermoid of my right parotid gland. It was Intermediate grade and after sending the slides to MD Anderson they ruled I would not need radiation therapy. Thank the Lord. Now my biggest fear is reccurence. I see my ENT doc today and it has gone back and forth as to who will do the long term follow-up. The…
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Esophagus damage
Two weeks ago I had my peg tube removed endoscopically. The gastrologist said that I had some esophagus damage from the radiation and would have to take Prevacid for life. I was very upset and he modified it for 6 months and then an appointment to see him again. I haven't had any acid reflux or esophagus related problems…
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Lhermitte's Sign
After meeting with my radiation oncologist today, he enlightened me on the numbness and tingling down both arms, as well as the occipital neuralgia I had been experiencing over the last 3 weeks. It is subsiding. He told me that it was radiation induced Lhermitte's sign. A brief autoimmune syndrome precipitated by radiation…
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HPV?
I had my surgery to remove my tonsils on 8/8 and after surgery, doc says found 2 warts near my tonsil, and they are known to cause tonsil cancer. I asked him how the heck i get warts on my tonsils and he told me to google it when I get home. He ended up keeping me overnight because apparently I bled alot. I did look it up,…
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Hernia
Has anyone had a Hernia where feeding tube was I now have one after the tube was removed the Doctor said it was not because of the tube but I find that hard to belive.
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PET/CT Results
Hi All, Went for follow up today to review my PET/CT results. Here is the impression of the radiologist: No evidence of residual tumor. There is resolution of the abnormal activity both in the primary tumor site in the right side of the nasopharynx and in a right cervical lymph node. I am so relieved and grateful. I…
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First Pet after treatment
Steve goes in for his pet scan tomorrow at 9:45, I am not going to lie, I am scared. I know how mean cancer can be, saw take a great man before, I know the doctors say Steve has a 80 percent chance of being cured, but damn it, I am scared, please pray for me to have the courage to smile and show him the braveness that I…
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Smoking
My husband finished treatments on April 20, 2011 for SCC of the left tonsil hpv. His doctors told him this was caused from HPV and not smoking, so what does he keep doing, smoking, does anyone here still smoke after treatment, and does anyone have any comments on how I can help him to quit. I quit when he was diagnosed,…
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Clear CT Scan
Hey Everyone! This isn't a big milestone CT like a 1 year or the BIG 2 year, but I'm excited about it. Got my all clear for my 16 month post-tx CT today and all is good! Was wondering about some of the others in my same time-range. I see Deb, PamM and Steve(hawk) post, but anyone hear from Micktissue or StevenL lately.…
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New Song
As I wait for the call from the Cancer Center, I'm watching Good Morning America. Robin Roberts introduces a new Martina McBride song, I'm Going to Love you through it. Type it in your search engine, get the kleenex. Beautifully done. Inspiration. (I'm sure Sweet or Skiffin will be able to cut and paste and whatever else…
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Number 40
Walking out the door for Jim's last radiation!!!!!! Can't believe it is finally done. Debbie
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Caretake problems
Last night my wife made supper and did not make me anything. Thats abour the 10th time in the last 2 weeks that she did not fix me anything to eat and last night i got mad at her for not cooking for me. She is an excellent wife and never left my side while i was sick. I could not ask for a better wife. She dont know what…
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More Joy to Share
Just read wifeforlife's post - daughter married today - fabulous. Have my own happy tidbit to share. Tuesday evening at 9:26 I became a grandmother (yes, I know - at MY tender age - hah). Like many births, we had some hinky times, then ended up with our own basket of magic. Wishing joy for you all. - pam
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Husband walked Daughter down the aisle
A day of sweet, happy feelings... We have come SO far. We still picked food for the wedding based on what he could eat. (mashed potatoes and gravy of course!!) ... but we danced and enjoyed the whole day..he cried, he smiled, WE ALL DID. Just wanted to share our joy and let you that are starting this journey know... it's…
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No saliva and more Problems
I finished my radiation treatment 8 mounts ago and I am still not producing any saliva I have been on Salagen for about 3 mounts it hasn’t helped yet is there anything else I can try? I am unable to eat bread or meat still soup and soft food. Where they removed the feeding tube I now have a hernia but I need to have more…
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Caretaker Question
Hello to all the caretakers, this is my question. My poor wife is so stressed with me fighting cancer for nearly two years and she still working has really taken a toll on her. I am not in good enough condition yet to help around the house much, I have more bad days then good. I have been through chemo and radiation twice…