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when do things get better?
15 days post radiation for stage 1v tonsil CA. Had radical tonsillectomy April 2011. Thought I would be getting a little better by now. since 15 days out from radiation. When did you people start to feel a little better? I have sores on tongue and throat. Can't swallow anything due to pain and secretions. Using suction.…
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10 more days
Well 10 more days until our 3 month Pet Scan. Jeez, I am getting nervous. I feel good we will have a good outcome, but the fear of the beast still hanging out scares me. Man cancer just sucks!
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Question: symptoms achy joints, freezing cold
3 weeks post radiation, my husband suddenly said he was freezing cold last night - I mean his hands were pure white, and he was shivering uncontrollably, teeth chattering, couldn't warm up for about an hour under heavy blankets. Now this a.m. he says his whole body aches, especially his joints. Anybody have any info of…
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Surviving/health guilt
I don't know if this had been discussed here before. If it has been overdone, sorry for the repeat. Does anyone else read the stuff here, or "IRL" stuff you know of others, and feel like "Why am I so lucky/blessed?" Don't get me wrong, this is not a whine. I know I'm lucky and blessed. A month or so I got an unclear PET…
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Post treatment - coughing, sneezing, chest pain
I am 4 months out from treatment. Had my 90 day PET/CT 30 days ago and all sign of the disease I had was gone. But, they found some stuff in my lungs that concerned them - inflammation or more cancer? They don't know. Get scanned again in 30 days. But now I am experiencing coughing when I drink some fluids, little sneezing…
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Post treatment - coughing, sneezing, chest pain
I am 4 months out from treatment. Had my 90 day PET/CT 30 days ago and all sign of the disease I had was gone. But, they found some stuff in my lungs that concerned them - inflammation or more cancer? They don't know. Get scanned again in 30 days. But now I am experiencing coughing when I drink some fluids, little sneezing…
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sugar levels
My husband is 10 months now from dx of suragolttis cancer, he has had all rad treatments some erbutux and now has 4 more treatments of cysblatan. He was in the hospitol last week-end from high blood sugar levels of 499. So now that he is out of hospital we have to do the insulin shots. Trying to get the right about of…
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Salava
I use bioten spray. Nobody understands when you say you have dry mouth they just think drink something. Then i spend 10 minuets about how it does not work that way. I tried Sweets mugg root beer thats the best drink for me. Thanks Sweet. But the thing that works best for me is milk with hersheys syrup in it. It cant be…
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ENT Visit Causes Bleeding
Just wondering if anyone has had this occur. Now 17 months post I went for my standard 3 month check-up with my ENT. All previous scans have been NED with a 3cm area in the vallecula that they wanted to keep an eye on at future visits. Prior to doing his normal nasal scope to check the throat he wanted to check my tongue.…
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Anyone remember their progression through the eight drawer chest
Soon after diagnosis the organizer in me kicked in. I promptly went straight to a manly big box store and purchased two plastic four drawer chests. Stacked one upon another, I could not see into the top two drawers. (I'm short) Into the drawers went everything connected to treatment. Syringes, plastic gloves, bandages,…
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Tear Duct Plugs
Those that know me know that I had radiation to my sinus's and neck. Since Ive had issues with my vision. Blurred vision, pain when I move my eyes around, eyes always felts strained. Finally decided to get some relief, when I couldnt even look up without it causing discomfort. Nothing life threating, but annoying. My doc…
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Root Planing question
I have to have a root planing today at 1:00. I'm posting this kind of late, but I am a little scared. I know they are going to have to give me a shot, my worries are that I had the left floor of my mouth grafted, and I'm worried about a shot in that area. Also I'm worried about them messing with it then getting an…
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Ensure
My question is how long can someone survive on Ensure alone. My husband is 4 months post left tonsil cancer, somedays he will not eat at all this can go on for 4 to 5 days at a time. He will drink ensure, but food is out of the question. Has anyone else felt this way about food. Please let me know. Linda
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What state do you live in?
How do I use this site to determine what other people live closest to me? I'm thinking there's probably a way, but I'm not great at any of this. I live in WA state, in Olympia. Just wondering who is nearby and what treatment centers they've used for what. THanks in advance to anybody who wants to share
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Radiation question
I had stage 4 tongue cancer and went to one of the best hospitals in the state. Nobody in my home town would operate on me. Thank God. Now my friend has tongue cancer and he is being treated in the same town that would not operate on me. He is having radiation and chemo but no surgery. He is stage 4 also. His chemo is…
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Tongue pain
Has any one had tongue pain after bot surgery atter six months out. Still on pain Meds a few times a day. is it time to see a physical therapist to work on tongue exercises?
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Well I guess it really starts today
Well I guess it starts today with tooth clean at dentist no more sweet products ever and the cooking starts Wed correction Tue which is tomorrow for about 7-8 weeks love the smell of pork cooking LOL
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Hondo
I got you beat. I can open my mouth to 21mm. I understand where you are coming from. This jaw bone thing sucks. Plus i have a lot of pain in mine. Good luck in the future. David
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Cyst in my jaw bone
I have a deteriated jaw bone from radiation and i have a cyst somewhere in the area. My oncologist sent me to a specialist and he said dont worry about it. I told my cancer doctor this and he said its coming out. He is going to try and get it out with a needle instead of cutting the side of my face. Should i leave it or…
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long time lurker
I just thought it was about time I introduced myself, i have been lurking for sometime! My husband was dx BOT scc on March 18/10, stage 4 lymph node involvement on both sides. Completed chemo and 7 weeks of rads in July 2010 with surgery in Dec to remove the lymph nodes. I have followed along with everyone and feel like I…
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Dairy
Did any one have issues with dairy while on chemo..I had some cereal this morning with silk choc soy, then a little pudding later in the day...has played havoc with my stomach most of the day.Drinking plenty of fluids, tried a gatorade in between water, didin't taste good. Thanks, Linda
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Financial tolls of Cancer
Has anyone heard of SOC (share of cost) & how did you deal with it?
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Hole in mouth
After 1st stage tong cancer & the surgery that took out 3 inches of it. After 3rd stage SSC (H&N) cancer, chemo & a hiccup stop just to start all over. After 4th stage B, more chemo, radiation & surgery. After all of this, I now have a hole in my mouth about the size of a pencil eraser exposing my jaw bone. They chiseled…
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4 months past treatment of tonsil cancer
Hello everyone, New to this post stuff. My husband had tonsil cancer caused from hpv, he is now 4 months past treatment. He does not want to eat, has no appetite, no energy, is this normal. I am so scared that he is never going to be normal again. I just would like to know if anyone else has this problem, oh yeah he did…
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yeast infection at feeding tube site
Does anyone know if a person has a yeast infection around feeding tube site can you also have this inside the stomach and or inside the belly? David got his tube out yesterday after 1 year of use, he has yeast infection and wondered if he might have the infection on the inside of his stomach also? He didn't ask the doctor…
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BOT / Neck Dissection surgery
First off, I want to send my heartfelt thanks to all who post on this board. While I have never posted before, I've visited often during my journey w/head and neck cancer and all the advice and knowledge presented here has been spot on and heartfelt. Here I found honest answers that doctors seem to try and gloss over.…
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Arthritis question
It seems now that i have the honor of maybe having arthritis. I had my first surgery in July 2010 double neck dissection with cancer on the left side. Also they removed 95 % of my jaw. I had a 15 hour surgery for that. Then i had 2 surgerys shaping my tongue so i could eat and talk.My last tongue surgery was in March. In…
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SCC what to expect when I am 5 months post Radiation
Trying to work out what state I am going to be in after 35 -40 days of radiation the 3d type as I am going to Bali in April come hell or high water. E.G. Swallowing Energy (mountain biking tour,White water rafting wimp level LOL scuba diving.) Pain etc my health pro's are obviously keeping the information on the light…
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5FU
Fianlly rid of that lil beastie until the next infusion :) Will be getting an injection of neulasta on monday, has anyone here had that? Linda
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Lung Biopsy
My cancer started in my right parotid gland and apparently it decided it needed some more real estate, so some of the little bastards are starting a condo in my lungs. So, on Wednesday of next week, I get to have a needle shoved into me to get a sample of whatever is in there to see if it is the same as the original…