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Head and Neck Cancer

Archives for April 2011

knot on my tongue again
I noticed a knot on my tongue Saturday and by Friday it had doubled went to the doctor on Friday and my doctor was in surgery they called him and he said send me a picture so the took a picture and sent it to his phone and he told them to biopsy it. They biopsed the wrong part. They biopsed beside the knot. I did not…
Home from NC Again!
Hi all: Basketcase checking in here! I got back home from NC on Thurs. Went up on the 10th so I could ride herd on Charlie's folks while my brother-in-law got settled in his new job and out of the world of unemployment. I had a great time and they let me bring both Rowdy and Sammy so I was glad of that especially with the…
Start treatment Monday, 2 May. What can i expect?
Guys, What can I expect hte mask fitting to be like? How long do rads normally take? What is chemo like? What zaps your energy more, the rads or chemo? How long does the rads take to start feeling the effects, when does it start to suck? How long does the chemo take to start feeling the effects, when does it start to suck?…
"The Silver Tongued Devil"
(Kris Kristofferson reference) I have been wrestling with ways to eliminate trolls from this site (even though I am not being paid to do so, and so must just be a total nerd). I thought of a number of techno items (and passed these on), but they don't work with creeps. Creeps are like cockroaches and they just multiply.…
"Please don't tell me how the story ends"
(Kris Kristofferson/Rita Coolidge reference) I have been having some back and forths with my nurses and whomevers, the ladies who call you back to say they don't know the answers but will put you through to someone who does and who then turns out to be an answering machine. I do know, now, that my surgery is out-patient,…
CT results!
Went today to get my CT scan results from last week and they came back clean :) of course I knew they would! Next thing they want to do is test my thyroid to make sure it's functioning right since I'm oh so very tired all the time lol. Anywho nothing exciting, just thought I would share!
Neck dissection and what to expect
I'm scheduled for a partial right side neck dissection on May 17th and am wondering if anyone else has had this and what to expect. I've had 33 radiations, 2 chemos and am currently 11 weeks post radiation. The ENT said that he's planning on taking my right lymph nodes and jugular, cutting me from right ear to inside of…
xylitol for dry mouth!!!
Hey folks, hope all is well tonight!! Just wanted to share some info. I know most of you use Biotene that has some xylitol in it; but it doesn't specify how much. We should be getting about 5-6gm a day!!I find that chewing gum really helps with the dry mouth and it helps exercise the jaw!! I'm using a xylitol gum that has…
I can't taste anything
Hpv + scc / just received my second chemotherapy and finishing the fourth week of rads. My taste bud must be completely fried as I can't taste anything. Do any of you have suggestions on what I may still be able to taste without burning my mouth. I've been eating a lot of oatmeal and chicken noodle soup....any help would…
"A Kodiak-looking fellow, about seven feet tall"
(Jimmy Buffett reference) During what was a busy week for me these days, especially when the week is only two days old, I went in for a CT scan one day, and on that very day was directed as well to get some blood work done. Whoo! I was worn out. That should be the end of my week, eh? GastroPod (aka GI Joe) wanted me in his…
90 day scan results--Clean
Thank you everyone for your prayers and support. Although I do not write alot on csn i do read all the time and i am moved by the support of everyone. I was diagnosed with stage 4 scc of tonsils 10/20/10. Had tonsils removed 11/01/10 and started radiation and chemo on 12/13/2010 at Memorial Sloan Kettering in NJ. Finished…
Tooth extraction yesterday-no hyperbaric-watching for healing process
Hi everyone. We have been having this discussion for some time now and thought I should update everyone on my progress. I had the molar, number 19 extracted yesterday after an experimental trial of a wire and rubberband extraction failed. This was an alternative method proposed by my dentist using leverage to remove the…
Biopsy Results Came In
So I had my one year appointment on the 11th of this month. I thought it was going to be a celebration but instead my doctor found something in my nasopharynx during the scope and he wanted to take a biopsy. It was a blow to the gut plus I had to wait like 10 days for the procedure. I had the procedure a week ago today and…
Can someone help elaborate on what to expect???
My father goes in for surgery May 5th and ultimately he is terrified. He is getting 4 or 5 lymph nodes taken out of his neck. In addition to that he is getting his tonsils out at the same time to complicate things even more when it comes to eating. Has anyone here had both the neck surgery and their tonsild removed at the…
Help, Has Anyone Had Base of Tongue Reconstruction?
I was diagnosed Feb 2010 with tumor on base of tongue with lymph node involvement: mucoepidermoid carcinoma. In March I had surgery to remove tumor and neck dissection to remove lymph nodes. The cancer had returned to base of my tongue and now I have to surgery to remove the affected area in which they will have to…
Question for everyone on board
How long have you been cancer free?
half way check up
My husband went to rads today and the first words from his doctors mouth was "awesome" The tumor is shrinking and looking good so far.. I really needed some good news today!!!!
we are so confused...went to mayo for 2nd opinion
We are at mayo getting my moms 2nd opinion. The drs at home said that my moms stage 4a base of tongue cancer with mets to bilateral nodes (a couple measuring 2Cm) was treatable even curable. The primary tumor according to home is 5cmx4cmx2cm. Our 1st appt at MAYO was with the oncologist who said that it was treatable even…
Some happiness post cancer treatment
Hey everyone...I hadn't planned to come on again so soon, but I am just so happy right now and I had to share it with you all. last year was a weird year, I gave birth to my third child, got diagnosed with cancer, had major surgery, then went through 30 radiation treatments (nursing my son through it all, with careful help…
Yet Another All Clear
My Husband finished 7 weeks of Chemo and Radiation the middle of Jan. and had his 1st scan on Fri. and it was ALL CLEAR ! Needless to say we are doing the happy dance right now. I want to thank all of you wonderful people for your all of the information that you give so freely. I didnt post much but was on here daily…
Another all clear, well kinda, the sequel
Well had the biopsies done yesterday and ENT man says it is b9. Or, with a big smile on his face the actual prognosis was, 95% sure. Go to see him Friday to get that other 5%. So, sounds good to me. NED! Steve
One Year Ago
Well, three days from today will mark the first anniversary of that dreaded phone call when the nurse said "Roger, you have cancer in your parotid gland". I don't think I will ever forget that phone call. It was much worse than the one I received almost exactly one year prior to that when the Doc said "Roger you have a…
mucoepidermoid carcinoma
I was recently diagnosed with mucoepidermoid carcinoma of my Parotid Gland. I need to express that tests (MRI with contrast, physical exams, MRI, CT scans) were done and the results of this being cancer were not determined until I had my surgery in Feb 2011. I am at the end of a 7 week radiation treatment and the doctors…
Michael Douglas!
Apparently he is on Oprah today! Just saying!
what induction chemos did you use and which is better induction followed by chemo/radiation or just
My mom has stage 4a base of tongue cancer with metastis to bilateral neck nodes...the oncologist said that she dould go with chemo induction with cisplatin taxotore and fu 5 and then get 7 weeks of radiation with carboplastin chemo at beginning middle and end of rads or just go high dose cisplatin with rad...she said there…
"Just keep me wondering' "
(Allman Brothers Band reference) GastroPod ran me off to a joint that could do some blood work, so he would have it at 11AM for our meeting. If things weren't scary before, they aren't now. So what? Um, I DID buy two cases of beer today and intend to enjoy them completely, so bear with me or not. Thing is, when I went in…
Is this a radiation side effect?
So i have been done with radiation for about 9 months now. I go to get a follow up PET on Wednesday, but what's worrying me is my tongue. I was originally diagnosed with nasal pharyngeal carcinoma but i have been told that it looks all clear at the moment. My tongue however has sore spots on the base of it. The doctor has…
G tube questions
A few weeks ago I had a G-tube put because it was getting to difficult to swallow. I had an open surgical procedure because the PEG tube insertion was unsuccessful. I am 4 weeks out and the incision is healed up well but I still have a lot of discomfort around the tube. It is a large tube (24 French) and is held in with…
switched from cispaltin to taxil and carboplatin
Well we went for our 2nd round of chemo and his kidney levels are to low. At first they said he would get half the dosage and then changed their mind completely. He will be having the tax and carbo for the next 2 weeks and then they will see if he can get his last dose in cisplatin. So frustrated my husband is 4A and he…
SECOND HAND SMOKE EXPOSURE
I have employees who smoke, and can only smoke in a large area, (10,000 sq ft warehouse) My office is 50-75 ft away from where they smoke. If I can smell it,should I be concerned? If I have to go out where they are smoking, I stand 15-20 ft away. Any thoughts?? Best!! Mike

Head and Neck Cancer

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