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Clean is a wonderful word
I am completely petrified when the date of my appointment approaches then become eerily calm as I sit in the exam room. The doctors seem to be awe of their work. I know that I am incredibly blessed. I attribute the strength that I feel to the wonderful people on this site. I realize that the cancer can return. However, I…
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I want to apologize
Hello to all, I want to apologize to you guys and gals for not showing continuous suport on this board. I just finish my treatments yesterday. The treatments really draged me in to this darkness I can't shake. My emotions are all over the board. I am putting my wife through hell and it's not fair to her. I am hoping with…
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Okay, I'm really scared again.
Well, I joyously posted on here back in November that my PET/CT scan was clean after surgery/rads for Parotid salivary gland cancer. Today, I met with my surgeon for a check up. I mentioned that I had been having some neck pain and I found a small lump around my jaw line. This made me a bit nervous. My surgeon said he…
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APPETITE
I am slowly able to eat more things by mouth, but find that my ability to eat allot in one sitting is just not there. Last night for dinner I was hungry and made myself a cheese omelet, but was only able to eat half of it and got full. I am still taking in 80-90% of my calories via my feeding tube, but I can take 900 ML of…
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An easier fix for radiation scatter/burn off dental work?
Hey kids, noob here. I'm about four weeks into chemo and radiation [for a tumor on a tonsil and a couple spots on some adjoining lymph nodes (all taken out, in addition to most of the rest of that side of my neck, haha)]. Anyhow, at the zap lab, I was getting radiation burn on my tongue due to scatter off my new dental…
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HPV and throat cancer
I've tried to research this subject to get some answers with no luck. My hubby (Buzz) was diagnosed with BOT cancer in August. In 2001 he had R tonsil cancer with 2 nodes involved. He had a radical neck dissection on the right and tonsillectomy. This new cancer is a "new primary". Buzz is a non-smoker. The tumor was not…
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New member and diagnosed with tonsil cancer with one lymph node mets
Hi, I am new this discussion board. I was wondering if anyone out there has had HPV squamous cell carcinoma of the tonsil and one mets to the lymph node. If so what treatment did you do adn how was the outcome? I have been told that surgery and radiation had similar outcomes as radiation and chemo. I have decisions to make…
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New Member Sort Of
I am new to the Head and Neck discussion board but not to the Survivors Network. My husband was diagnosed with esophageal cancer in July 2009. He was treated, had surgery, and things looked good in Dec.2009. Cancer reappeared in a lymph node in April 2010. More chemo and radiation. Had a clear PET/CT in Sept. I was…
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HPV Information
I found a very informative site on HPV Information, thought I'd share for those interested; HPV Information One of the articles even mentions a possible cure for HPV... Best, John
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Roller Coaster and Questions
Sorry I have not posted for a few days. I had surgery yesterday to remove the lump in my neck and my tonsils. The last few weeks have been blurry at best. My original biopsy was done Dec. 5, 2010 and the pathologic diagnosis was SCC (A typical squamous) and further testing should be done. I requested a 2nd opinion and had…
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Quick Update on My Dad's 'Tude'
Well - I had high hopes after last Thursday and Friday. I had shared some comments from the board on staying positive, what to expect, and tips. (Thanks to you ALL!) But I guess while he seems to rally for me - when I am not at my parent's house, apparently he sits, mopes, and will not eat more than two bites of anything…
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GRAVEY Checkin In
Hi Everybody! I honestly apologize for not checking in in so long, I honestly have to admit I have really enjoyed getting my life back to as normal as I have been able to. I really dont have any side affects left besides some pain in the surgery area, although all my facial numbness and lip droop has gone away as well. I…
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Help me treat sebaceous carcinoma
Hello, Does anyone have any information regarding sebaceous carcinoma. Doctors don't seem to understand how to treat and I need someone else who has is or a love one who has it to tell me what treatment if any they have had or what to expect. Thanks and God Bless NRIO99
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A new test can help detect cancer quicker.
some good news to us cancer patients and future people who come down with cancer. News comes from yahoo. http://news.yahoo.com/s/ap/us_med_cancer_blood_test
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Feeding tube scare
Late Saturday night, I brought Ken his final meds for the evening in the syringe. He pulled up his shirt and went to get the end of the tube pulled up. When he pulls it up, I see this brown, rubber piece. For a moment, I thought it was a rubber band for your hair and I was wondering how that got mixed up under his shirt.…
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Brain fog anyone?
Hi! I have been reading here since my 3rd of 35 rads. on tonsil cancer. I finished on Sept.3rd 2010. Thank you all for being here!! It is wonderful to know that there are people who relate to the pain, swallowing,spit,weight issues etc. Family, friends and Drs. can care and be helpful, but they truly don't 'know'. Which…
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SKIPPER UPDATE: At Hospice
Hello Everyone: I apologize for not posting and commenting on your posts for the last week or so. I have been with Paul at hospice since last Tuesday. He is still hanging on but is slowly fading. My daughter was with me until yesterday. She had to go back to work and pick up her son from her soon-to-be ex-husband. She also…
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Severe pain
Hi Everyone, I need your help desperately. I have only 10 more treatments left, but literally overnight I'm in so much pain I can barely swallow. I'm doing everything I've been told to do. I do baking soda rinses w/o salt, salt hurts. Magic mouthwash, nystatin, I'm going to order Caphosol tomorrow. This is really horrible,…
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Prayer Request - UPDATE!!!
Hello again.... Big scan coming up tomorrow and results hopefully on Wednesday. I have finished four rounds of chemo and this will determine how well it's working.... And determine next steps. The doctors have talked to me about more of the same chemo, a clinical trial, or surgery and radiation. Maybe even sending away a…
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So Excited
I'm so excited I have a doctors appointment tomorrow in Indy with Dr.Freeman! He is the only ENT Specialist I have felt comfortable with! (At first I was upset when my husbands insurance change again and had to go thru the process of verifing all the doctors but I hit a gold mine....I as told that Dr.Freeman is back in…
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Chefdaddy. (Mike)
I texted Mike today and he got back to me. He said,"tell everyone hi, and I miss them." He's really not up to posting but he does think of everyone. Please keep him in your prayers and or send good thoughts his way. He has several scans, and has appts with oral surgeon and pretty serious issues with his jaw bone, sinus…
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Intentions For 2011
After a very inspiring yoga class this afternoon, I began to think about my intentions for 2011... in some ways a little more strict than resolutions, but in some ways a little more relaxed! Instead of vowing to do something all year, and then giving up when you break a rule, I think of intentions more as something you can…
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Shoulder/back bones rearranged?
I notice that 5 months from my left neck dissection that some of my bones are now more pronounced or re-positioned. Has this happened to others of you? My clavical is more pronounced on the surgery side, and the bones of my upper back and shoulder have rearraged themselves. I won't try too name bones, but if yours have…
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Happy New Years!!!!
Hi everyone, I pray everyones new year is filled with many blessings I have a question have anyone had ear problems after treatment im having what seems like blockage or something at times it seems like swimmers ear the last time i felt this with my ear was when I found out it was the cancer blocking my ear what every is…
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Happy New Year to Everyone
Hi all: Basketcase checking in here. Hope everyone is having a Happy New Year. The "boys" and I ushered in the New Year quietly and alone. TN lost its bowl game but hey, we're just happy we got to a bowl game this year! I'm beginning to feel like I might be heading toward hitting that brick wall so many have told me…
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Amazing day
How could it be any better than today. 14 years plus post treatment and you start another year off with walking you second of two daughters down the Isle. Adding a Son to the family. Just saying with lack of better words, PTL. Happy New Year everyone!
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Happy New Year!!
I am so grateful that my Husband is well again and on the way to a brand new and happy year!! He is the love of my life and I would not trade him for anything in this world!! I love you babe!! Love Darla
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Blood nose
Hi. I have a question. Does anyone remember getting a lot of blood noses when they were young. I'm curious to know if there is a commonality there xxxxx. Happy new year to all you wonderful survivors. You inspire me daily and make me believe that this is really beatable.
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Still Running the Race into 2011
As 2010 comes to an end and before us is a brand New Year 2011 I would like to encourage those of you who are still running the race and looking forward to the finish line. It is my hopes, my prayers and my wishes that each of you will find peace and healing as you continue through your treatments. Remember Cancer does…