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Head and Neck Cancer

Archives for June 2010

leg weakness
My dad has finished his treatment a week ago. At the start of his treatment he suffered from dizzyness and his legs felt week. He was dehydrated and the chemo doctor took him off his blood pressure medicine and the dizzyness has went away, however he says his legs still feel week. The chemo doctor told him that it could be…
Pituitary Gland Tumor
I was told yesterday that I have a Pituitary Gland Tumor, that most are benign and treated with medicine. As most of the ol timers know, I am 19 months cancer free from my Esthesionueroblastoma, and now this. I had yet another fun MRI and am waiting the results..... Anyone had to deal with this? What can I look forward to?
PEG is out
My PEG was removed this morning. Mine had a good-sized flexible mushroom-shaped end to it. I still can't believe they were able to jerk that thing out through the little tube-sized hole. Yeouch! I was yelping like a puppy and squeezing the nurse's hand. No bravado here. With all due respect to the Marine who posted that it…
13 rads and 1 chemo down
Glenn is in his third week of treatment. He's had one Carbo/Taxol treatment and 13 radiation treatments so far. Nothing unexpected thus far. Throat pain and mucus starting to increase. Taste leaving but he still eats some things. Drinks Gatorade throughout the day. Again, I'm so grateful for the PEG and Glucerna being in…
formula for mucous
Is there a formula using baking soda, salt, and water for mucous? I cant find the measurements of formula. The Doctor said it worked great. Thankx Finz
Caphosol?
Did anyone have insurance that actually covered Caphosol? We are getting no where with insurance (running in circles on the phone). They say they will cover it as a 'medical device' but no medical supply company will/can order it. I was told by EUSA Pharma (the makers of Caphosol) that my insurance was the ONLY insurance…
micktissue?
Hope your so busy at band practice you haven't been able to post lately.
Finished Radiation!
Well, peeps, I made it I finished my last dose of Rads today! I know I still have a long road ahead of me; but at least I made it through the hard part. I feel like if I made it through this alone I can make through anything. Just have one more dose of Cisplatin on wed, the done with chemo. I just pray and hope that this…
More Birthdays!
More birthdays! Isn't that why we are all here? And why we went through this horrible treatment? It was my husband's birthday yesterday. I made a potato salad and grilled shrimp with butter and capers on the BBQ. I tossed zuchinni and summer squash in olive oil and italian seasoning, and grilled them too. I was able to eat…
Here we go again...
Hi everyone! Well, the last time I wrote in, I was delighted because the Dr's had "cleared" my husband of stage iv squammous cell carcinoma of the right tonsil. We even celebrated with a vacation to Florida. A week after we got home, Herb began having alot of pain in his head and neck again. After a few unanswered calls to…
Hibi-you should be ashamed of yourself, spamming our website.
Please stop and market your product appropriately.
After The Trach
I had my Trach removed a week ago, I'm very happy, but have a few questions, someone that has had a Shiley #6 than went a #4, it was left in for 2 months, you no my l/s larnyx is paraylized, but when my throat was healing, it healed around the oval plug and rubbed till it got sore. to touch it is very firm and the whole is…
power port
I had to have drains reinstalled in my neck this week. While in surgery the anesthesiologist was trying to put me out and all the drugs were infusing into my chest and shoulder. Hurt like hell! He ended up starting an iv in right arm just to put me down. Apparently this made the rounds at the hospital pretty quick the…
Heightened immune system
This post is not for anything bad that is affecting me right now (for a change!) but for something good. It has been well over a year since I have had a cold, sinus or flu of some kind. I was being so careful during chemo last year, careful of who got near me, what I touched, extra hand washing and trying very hard not to…
Foods people CAN Tatste!!! ONLY POSITIVE POSTS PLEASE!
Ok, I was wondering of the people that are post treatment what foods can you taste. I don't care if it's been 1 month post treatment or 10 years. Just want to see some positives of what foods people can taste! I have noticed though that there aren't too many long termer's on here. I was connected to two people who are from…
Notable Hearing Loss = Change in Chemo Plan
Mark has "notable" hearing loss and doctors are changing his chemo from Cisplatin to Carboplatin + Taxol. I know I have read of others here who experienced the same thing. Greg, was it you that finished up with Erbitux? They say Carbo-Tax is equal. I said why not do it from jump? Then they have to say they prefer the…
10 responses recieved on survey for Eagle Project to help Head and Neck patients, YOUR help URGENTLY
I have recieved 10 responses on my survey and am hoping for more Dear Patient, I need your help with My Eagle Scout Project My name is John and I am a Life Scout with Troop 511 in North West Austin, Texas. I am working on my Eagle Scout Project. My project is to create a brochure that lists foods and other comfort items…
any updates on Chefdaddy
I'm gettng really worried about Mike again. It has been a long time, does anyone have an update on Mike? Thank you in advance for replying. God Bless, debbie
One Year & Counting
I am just celebrating one year since my last treatment for stage 4 tonsil cancer. I am at a loss for words to say how much better I feel today. Even better today than a few weeks ago. I wanted to post this to give those out there some words of encouragement. A year ago I put on a good face for everyone but I really thought…
High Cholesterol--Is it time for spinach shakes?
wow--all this custard, ensure and milkshakes..Just had my cholesterol checked and it is 246!! Now what? Yikes Stacey
Dazey?
Hey Dazey! Haven't heard from you. Hope all is alright. Could you just check in? PM me if you want. Just concerned. ((HUGS)) Patty
Coffee
I just read an article that indicated that people who drank 4 cups of coffee a day were 39% less likely to get H&N cancers. I easily drank that much. Just curious about others out there? My big question though is, has anyone done much research on drinking coffee post-treatment? That is the Number 1 thing I miss! I just…
Husband had endoscopy today
Hi all: Basketcase wife again. Charlie had his endoscopy today and he does have a gastric ulcer. The gastro doc biopsied it and told us that it was slightly bleeding and was stopping. (Visit to onc. today blood counts had dramatically improved after having two units of blood last Friday). He is really a great doctor. He…
back for more!
Well, I have been very busy as all of you would expect. Not only with all the Dr.s visits hospitals and comparisons. I read almost daily posts that I find here. There is so much info and heartfelt kindness and emotion. I read with great curiosity, fear, concern and tears. I'm a 48 yo grown man and I feel like such a child.…
Time off work!
Hey folks, How we doing? I have a general question. Would like to start a list of the average time people took off of work from the initial diagnosis, to surgery, then through chemo. When this started right before surgery even before asking the nurse gave me a employment note to be off 6-7 months. Since I have surgery in…
ok some collective help is needed
I realize that i havent posted lately, and partly because of being out of town, but i am always reading what I can. What I do need is a little help. My boyfriend is really at a loss lately as to what else he can try to gain his weight. This is where he stands now: 8 months out of treatment, jaw cancer, 6 weeks rads/1 a…
Chinasilk ?
Where are you from? I am south of Joliet. I went to U of Chicago There are a couple of more Illinoisians(sp) on the site also. Kent Cass went to NorthWestern like you he is from around the Quad cities. And rattface ended up at U of C also I believe he is from the burbs somewhere closer to Chicago than me. Glad you are…
Eagle Project to help Head and Neck patients, YOUR help URGENTLY needed
Dear Patient, I need your help with My Eagle Scout Project My name is John and I am a Life Scout with Troop 511 in North West Austin, Texas. I am working on my Eagle Scout Project. My project is to create a brochure that lists foods and other comfort items that other Head and Neck Cancer Patients have found helpful and…
PEG
Hi Everyone, Well the feeding tube is gone. One more step in this process. The doc had to work at it a little to get it to deflate but once he did, it just slid right out with no pain. Pretty much uneventful. Still got it bandaged up so I don't know if it's going to look like a bullet wound or a second belly button or…
Dad finished today!
My dad had his last rad treatment today and he finished chemo last Friday. He is very glad to be done. He told me that he feels better now then when he started. All together he lost around 10 pounds, he is still eating and drinking. He is looking foward to relaxing and stating to heal from the treatment. My mom and I are…

Head and Neck Cancer

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