Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Head and Neck Cancer

Archives for June 2010

Diabetes and Cancer treatment
Do any of you have Diabetes? If so, how did your treatment impact your Diabetes control? Glenn is a Diabetic. Nothing unusual happening yet but I expect to have to make some adjustments at some point.
IrishGypsie-Report in, thats an Order : )
Irishgypsie, Just checking up on you to see how you are doing, we could use an up date on your situation. Report in as soon as you see this. That's an Order Airman : ) My Best to You and Everyone Here
CSN Map of Locations ~ Started to Update
I think I have figured a way for the CSN Locations Map using Google. I'm not exactly sure of all of the specifics as of yet. But I created one with the link below. http://maps.google.com/maps/ms?hl=en&ie=UTF8&hq=&hnear=Tampa,+Hillsborough,+Florida&oe=UTF8&msa=0&msid=108290908437938654290.0004899d469e1599afb49 If you can…
Difficulty swallowing---Needing Prayer
My mother(46 years old) is a 6 year stage 4 tonsil cancer survivor(as of may). After surgery to remove tonsils, 22 treatments of radiation, and 2 different concurrent chemotherapies, she was given the thumbs up for no cancer. However, she had been severely burnt from the inside out with sores from her lips down her…
loss of voiceand hoarseness months after treatment
Hi all I was wonder have anyone experience losing there voice for the first time months after treatment ? thats what im going through my treatments was months ago and just a few days ago my voice went out completly and returned but now im horse a little this has never happened before is this normal ? im getting kinda scared
The China Study - Author
A small world story. One of my nurse educators is teaching Neonatal Resuscitation today for some new residents who will be starting their rotations next week. One of the new residents is Thomas M. Campbell II. The co-author of The China Study! I'm waiting for them to get an afternoon break so I can talk to him.
numbness, hearing loss
Hi everyone. At the end of last week I noticed two things, 1) numbness in my hands and feet, and 2) tinnitus and hearing loss. The numbness is mainly in my pinkie fingers (mostly on my right hand) and big toes. The tinnitus is mainly in my right ear and things are sounding a bit muffled there too. I had a hearing test in…
Personality Change
My husband was diagnosed a year ago with stage 4 throat cancer including upper pallet. After Chemo and radation the Dr. diagnosed his cancer as terminal. My question is.....Has anyone seen a personality change?? He seems to get nasty verbally and then the next day sleep all day. We are going to the Dr. tomorrow but I…
Carotid Body Tumor
I'm 29 years old, 4 months pregnant, and I have just been at least preliminarily diagnosed with a carotid body tumor. I say preliminarily because the diagnosis was arrived at after an ultrasound, and I'm waiting on referrals to talk to specialists. So I guess my guess is that if it's NOT a carotid body tumor, it's…
Best radiation burn creams?
Hi guys, While hubby is doing ok nutrition wise, he has developed a pretty nasty radiation rash on his neck and upper chest/back. We have been putting on aloe from the yard - any other really good creams or ointments that anyone could suggest? Thanks so much, Jen
free cleaning service for women with cancer in treatment???
A social worker friend sent me a website for a national organization that provides four monthly house cleanings for women in treatment. Don't know if it is legit. Site looks "good." www.cleaningforareason.org. Caution: be careful with pain meds when strangers are in the home. Hope this is for real. Vince
Tinnatus-hearing aid assistance available
Howdy, for those of us who might suffer long term hearing loss accompanied by tinnatus, hearing aids are often prescribed to lessen the sound in the ear/brain. Problem is, hearing aids are very costly, $2,500 or more. There are a couple of sources for financial and fitting support available. One is the Lions Club program,…
Update on Roger Ball, questions from wife :-!
Hi all, Roger has had 8 rads and 2 chemo's and is shutting down. The Drs said that he was showing symptoms that someone much further along would normally show. He has been upset that they took his teeth away, so he will no longer eat any blended food. Now he does not like the tase of the boost, ensure or any other…
Aaaiiieeee! Late Hair Loss?
Has anyone else here experienced "late" hair loss? I am roughly five weeks out from end of radiation, and six weeks out from my last cisplatin chemo. During treatment my hair thinned to roughly half of what I normally have, but as my hair is pretty thick, I still had scalp coverage. Hair got all dry and brittle, like it…
Radiation Dosages
Can anyone tell me anything about radiation dosages? We were told Glenn would receive 6000gy on the right side and 5400gy on the left. Does anyone know what those numbers signify and what they can be compared to to have significance? In other word, is it a big dose, a medium dose.....?
Happy Father's Day
to all the courageous Dads out there! Hope you enjoy your day as best as you can!
Here's a calendar
Hi everyone, here is an available calendar I've added a title to. I have three websites, and I could see about tacking one onto the end of one of my sites if this doesn't work. This is one I've used for different groups before, and is hosted by calendars.net. I've left the permissions wide open, so anyone can change…
Boost Boost Boost and a Map?
Hello All, Boost After having a diet of Boost/Ensure for the last 3 months practically 24/7, I am curious about how others feel..do you prefer Boost or Ensure..or something else? (I prefer Boost, but Costco only sold ensure..I tried Scandishakes, which were 600 cals and very yummy but too expensive) Where is the cheapest…
Chemo brain is very real!
Hi Friends, Just opened my email ACS News Letter "New Connections". It recognizes & discusses the "mental fog" many survivors have complained about after chemo. http://www.newconnections-cancer.org/issue_33/01.html At least someone is acknowledging the connection. It's a start! Love & Prayers, Patty
One week through
Hi Folks Just finished the 1st week of Rads and 1st of 3 cistplatin treatments. Everything fine so far, only complaint is the almost-constant bloated feeling. I think its most likely from me eating as much as I can and all the water I'm taking in. I stayed in the hospital for 2 nights during the chemo treatment. They…
Update
Hi all again: Basketcase wife here again! Hubby got his two units of blood today - no problems and what a difference it has made. Also saw the gastro today and endoscopy is scheduled for next Thursday at 1 or 2. He is leaning towards an ulcer and when I asked him (he's so nice) could this be late side effect of…
Tinnitus
Hello everyone, Been off the board awhile while I got my body regulated. I got dependent on the pain meds and had to stop them. My question for anyone out there who is post treatment is, did anyone develop a sound in the ears for a temporary or permanent time after treatment? I lost a little hearing from the chemo, but…
share your stories to give me hope?
hi all. my dad is currently in a fight for his life, radical neck dissection for squamous cell carcinoma in April failed to remove all of the cancer. The surgeon told my family that his illness was terminal, the cancer had spread to the chest wall and possibly to the vertabrae. He's been going through daily radiation and…
Feeding supplies delivered
The durable medical equipment company delivered 11 cases of Glucerna, an IV pole and a box of gravity bags to the house yesterday afternoon. The visiting nurse comes on Monday afternoon to teach Glenn how to use it all. His Nutritionist wants him to take 9 cans a day (down from 12 originally) because she doesn't want him…
Radiation tips? - parotid gland and fertility ?
Hello! Two months ago I had a tumor removed from my parotid gland that turned out to be cancer- acinic cell carcenomia. It didnt spread to lymphnoids or anything but one margin was really close to my nerves so they suggested radiation. Getting my mask fitted sucked! For those of you who had radiation, any tips you wish you…
PEG
Hi everyone, First, thanks for all the responses to my other post about the timing of scans. This Tuesday I get my peg out and was wondering what to expect. Do they just deflate the thing and put their foot on your gut and yank or what? Does it hurt or is it bearable? Just heard some strange stories about removal and was…
Hubby saw onc. today
Hi all: Basketcase wife here again. Just wanted to update y'all what the onc. told Charlie today. He is doing some slight internal bleeding not a lot but enough to push those blood counts down and causing the fatigue and headaches. So tomorrow morning he goes for two units of blood and then tomorrow afternoon to the gastro…
Radiation and Chemo
I will not see my Oncologist until the end of the month and he will prescribe treatment for Squamous Cell Carcinoma, from what I was told at prior appoints it will be radiation and chem (Cisplatin IV). Has anyone finished treatment with a minimum of side effects and after what week of treatment did you need another driver…
PET/CT came back dirty
Had my PET/CT this week, the doctors are concerened with the back of my tongue, they scheduled a biopsy under anistisia. To see if the cancer is dying or what. Then they will decide if I have another surgery. Makes me nervous if I can beat this beast. Brad
New Meds for Depression
it's been a real long haul for alot of us, I needed help, for the depression. i am taking something that seems to knock me sock off this morning, nervous as a cat, citroplam is what i was given, and if you think your getting something to help, it is not.....let you guys know, I can't handle it!. More depressed than ever,…

Head and Neck Cancer

Discussion List