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Head and Neck Cancer

Archives for May 2010

NCP DIAGNOSIS
HELLO, I am a 41 year old mother of two small children diagnosed with Stage 3/4 on April 20th. I recently underwent a dose of cisplatin & doestaxol and I'm scheduled to see the Radiation Oncologist for chemo/radiation treatment. I am terrified of the chemo/radiation and subsequent side effects which seem endless. Has…
Big Week for us
Hey everyone, thanks for all the support! This is going to be a big week for me, Monday I have a full bone scan, Tuesday it's to my ENT doc to get scoped again, and the biggy, I think is the CT needle biopsy Thursday of my lower spine, no one wants to commit to a diagnoses yet which of course is normal. No word on the EGD…
Got firm diagnosis, has anyone had similar diagnosis?
Hi all, This is my 2nd try at writing this, went to preview the 1st one and it deleted it somehow :-( Roger was preliminarilly diagnosed with base of tongue cancer on April 28th. A Dr noted a tumor on base of tongue back in records we obtained from Oct. 2006, but never even told us it was there, so here we are 3.5 years…
Nerve Regeneration
Posting on a Saturday night...sad isn't it? I know somewhere in my readings on these boards I saw something about the timing of nerve regeneration after surgery. I think it was around the 2 week mark? Mark is experiencing an increase in pain following several days just taking tylenol extra strength and looking at driving…
underactive thyroid sufferers
Got a letter in the mail today from ONCOMAN. It states my last blood test shows my thyroid is uderactive and it's really bumming me out. He sent along a prescription for Synthroid. He also stated in the letter I'll probably be on it for life. Some general questions to anyone on thyroid medication which by the way is a…
Iffy PET scan
Hi there! Well? Yesterday, I went over my pET scan results with my surgeon. He said he is not sure if it is scarring is shows, or still cancer. It has been 7 months since my last radiation treatment, and he feels I should of been healed faster than it shows. So now I am waiting to be booked for a biopsy. I have an appt.…
Zeolite with dhq
Hi everyone! I hope all are doing well. Or as best as can be;) I'm wondering if anyone knows, or has heard of Zeolite dhq? I googled nutrition and cancer, and this website came up. I did read up on it, but it also could be a hoax. Does anyone know anything about this? Thanks, Cindy
Ugghh! Charlie Brown!!!!! :(
I'm really sad and pissed off! I had made an appt to get a massage today; I was sooooo looking forward to it. :( I had told the girl when making the appointment that i was being treated for oral cancer and getting radiation and chemo. They called back and said they couldn't see me; that people aren't suppose to get…
Teeth
Glenn had 28 teeth removed yesterday. He came through it really well. Bleeding subsided on cue and currently has only moderate pain. He ate 800 calories in soft food last evening and I had to shoo him back into the house when my son and I were cleaning/mowing the back yard. He just couldn't stop "doing" things. He amazes…
just wanted to say hi!!!
Hey, Everyone, I just wanted to say hi and that everyone on this blog is in my prayers! I tend to check here once in while; but I am also trying to to keep a positive outlook and sometimes TOOOO MUCH knowledge can have a negative effect; especially me, I tend to over analyze every little detail!! Well, I a have a week and…
swelling
I've been back to my regular cancer doctors, and have recently noticed that my neck, where i had hard radiation is swelling, not a little but alot, both the doctors have told me this is expected after radiation. Has Anyone else had this happen. I finished radiation January 26th, and I also went to the dentist, thinking…
Another SURVIVOR!
We received the most wonderful news today! Bob had Surgery on Monday on his Tognue and they cut his neck open to remove 2 suspious Masses near his Lung's...They called this afternoon with the Pathology...CANCER FREE!!!! He was Stage 4 Jaw, Tognue, pallett...the Tumor in his Jaw was the size of a Horseshoe...almost 8…
Bro
My bro is holding up- kinda -....he added some writing to his expressions page, which I thought I'd bring to the discussion table..... "THis may come across as trivial to some here but here it goes. This has been a rough week my body didn't react well to the second round of chemo and rad. Ended up in ER Tues morning b/c my…
Clear, Clear, Clear!!!!
Great news for me today everyone, I was told my last CT was negative, what ever had shown up on the previous one was no longer present. That was my 6 month CT, now just one more at the 9 month mark and then she said it would get spaced out from there, 1, then 2 years apart, something like that. THANK YOU THANK YOU THANK…
Soccerfreaks
Where are you at Joe?
Sleep
Nearly 5 months post treatment, 12-30-09, and after getting off meds in February I developed insomnia for the first time. I have been prescribed Lunesta(did not work), Edluar (worked somewhat), Ambien CR (worked somewhat), and now am taking Trazodone. Started Trazodone this week and seems to work the best. I have seen some…
Update on Tim
Hi Everyone Been a while. So, Tim was able to speak to the Chief of Oncology at Dana Farber Cancer Institute, Dr. P, he recommended a different second course than the one Tim's oncologist, Dr. R, wanted to go with. Dr. P spoke to Dr. R and she agreed to run his suggested treatment instead. Tim's cancer has spread to his…
I would like to chat with other Laryngectomy's ....... * not many of us out there *
Most times I feel so alone and have no one to talk to about being a total Laryngectomy .It would be nice to meet someone with same .I had vocalcord cancer and this June 9 will be my 1 yr surgery date .I have alot of anxiety attaches , which keep me homebound .I am single and use to be fairly active ...So if your out there…
phlem medication at drugstore
Somebody mention a over the counter drug to help dry up mucus, can you please give me the name again. Thanks Dennis
Too Soon?
Hey everyone, Just a quick question. I finished my rads April 9th. My ent has a pet scheduled for next week the 28th. Does this sound too soon, I mean is it at this point just gonna show a bunch of bad spots. What do you guys think? Thanks, Steve
trach what to expect
i m haveing surgery 5-25-10 and i will be on a trach for 2 to 3 weeks i already had 3 laser surgery he said it s down deep and cant get laser down that far and already had vocal cord on left side remove now its down deeper and tumor on left side i been dealing with this for a year i was wonder what to expect when i wake up…
Pet Scan results
I hope this isn't posting twice but I didn't see the first one post up. The doctor called me this morning on my way to work, had to pull over, he said the pet scan did not show anything suspious and looked good. He said that there was some iregularities in the neck area but said it is most likely from the surgery and…
Update on my dad
I just wanted to give everyone an update on my dad. He has just completed two weeks of treatment and is doing great. Once we got over the issue of dehydration things started to improve. He has not had any problems so far with chemo and the side effects from the rads have been tough but not horrible yet. Also, did any of…
HELP!!
Just got off the phone with my bro. They ended up giving him IV fluids and Zofran (after he threw up)...is having appt this a.m. with Chemo doc. Said he couldn't brush teeth because gums were all torn up....I told him that one of you had posted about using baking soda and water, he was going to go try it. He is ready to…
hurry up and wait
Saw my oncologist yesterday, to discuss Pet Scan hot spots.Three of the five spots are not able to be biopsied, because they are to close to major blood vessles. The only one they can get to ,is in my lower spine. They are also doing a full bone scan Monday, and a upper GI. She still believes that this should be orginating…
Hiya Sweetblood.......
Hiya Sweet....Just wanted to tell you how wonderful your new pic is!!! God Bless!!! Jess
Swollen eyes.....?
Hi everyone, my bro went to ER today and as of this moment (10:30 ish EST) is still there. He has the sunburn that comes from the radiation. I know I posted about this kinda before, but was wondering about any advise for alleaviating his pain/swelling in that particular area. He would have posted himself except that he can…
prayers please
I am having my first follow-up PET scan tomorrow. Please pray that everything turns out OK Thank you and god bless all of you.
Laryngeal cancer question
My husband has end stage laryngeal cancer. Trach tube put in September to help with breathing. Well now the breathing is getting more difficult and he's taking hydrocodone for pain. There is a lesion/tumor behind the trach plate that has grown in the last month. This lesion bleeds on occasion, is tender and painful. When…
Our heads are spinning
Glenn and I met with his treatment team last Wednesday from 1pm to 430pm. We left there totally unable to process any more information. He is TxN2M0 (unknown primary). Chemo is on the table but he's squarely in the middle of the algorythm that helps Drs. determine a treatment plan. His nodes were cystic making it difficult…

Head and Neck Cancer

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