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Getting started...Next line of questions?
Mark and I met with NCI Cancer Center Head and Neck doc today. 99.9% sure the primary is in the tonsil. Very good odds 80-90%. Sugery first: 3 installments: endoscopy on Monday to get tonsil biopsy and get a good look at other stuff. Tonsil removed robotically on Friday, and then 10 days later the lymph nodes in the neck…
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Mucoepidermoid Carcinoma
It has been confirmed today that I have a 2cm tumor on the base of my tounge!!! I am 25 & have to young children & just cannot believe this is happening to me. I have smoked in the past but never alot (1 or 2 a day) & not for the last 3yrs. The good news is that they Drs think it is a low grade tumor & slow growing, they…
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12 Days
Hi Everybody, I have been following along with all of the posts but not writing much and I apologize for that. I am still typing challenged (2 finger typist), and it just takes me a long time to type everything I want to say. With that being said, almost all of the posts here are gloomy and doomy. We must not let the…
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Not good news
It has been a wile since I have been on here so I will give a quick update on Burt.Since he had not been able to swallow anything at all his ent ordered a video swallow test.Had test on april 5th and they had to stop it after first try cause he could not swallow the pudding.Went to get results from ent on the 15th.He said…
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Results
Hi Everyone! Herb had his CT and PET scans moved up, and we got the results yesterday. The Dr. says all is clear ....except a spot on his tongue. He doesnt think it is cancer though, he believes it is a radiation ulcer. Has anyone else had anything like this???? I am afraid to do the Snoopy Dance just yet, as everything…
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Hyperbaric Treatment Success
I completed my hyperbaric treatments yesterday. I had my follow up (2 weeks) with my oral surgeon today. My surgery is healing great. You may recall I had 30 hyperbaric treatments prior to my surgery and 10 afterwards. It appears the treatments were very successful in restoring circulation to the damaged bone and tissue. I…
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Fatty Patty (aka pattyanny) where are you???
Hi Patty, I've been thinking about you nonstop since yesterday morning. Please post as soon as you can to let us all know how you are. Hoping to do another Happy Dance today. I went to sleep early last night so I would have plenty of energy to dance all day ;-) Stay strong my friend and remember He is always there for you.…
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more advice
My dad has always been a big sleeper, sometimes to much. I am worried the once the treatment starts that all he will want to do is sleep. The doctors really push that he needs to stay active. After he sleeps all day his mouth is really sore from drying out while sleeping. Any suggestions? I know his sleeping is not because…
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Any advice?
Hello everyone, In the last few months I have been diagnosed with melanoma, I have had two surgeries and now I'm cancer free which is excellent , but now I'm getting ready to start high dose interferon for 4 weeks and after that I've got 5 weeks of on sight radiation and then 11 months of low dose interferon. I'm scared to…
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Cannot swallow and losing voice BEFORE treatment ~HELP~ Nasopharyngeal Carcinoma Cancer
Hi, I'm looking for some info for my dad, 67 yr old, that diagnosed with Nasopharyngeal Carcinoma Cancer at stage 3/early 4 back in Oct 2009. He refused to get regular chemo and radiation treatment and now he started losing his voice and cannot swallow anything. Now, even though it seems too late, he decided to get the…
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preparation for radiation
What recommendations would you make for someone before they start radiation treatments? I am already loosing some weight (okay-that's not such a bad thing right now). But I worry about the mouth and throat sores and difficulty eating that I read about. I know sugar is something to avoid. I feel weak at times now and I want…
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Need Your Input For Caregiver
I have been browsing this discussion board for a few weeks now. I usually go to the Breast Cancer Board, as I am going through treatment for that. But my boyfriend was dx 2/10 wit throat cancer. He is T2/N2/M0/ Stage IV. He has been watching me, and being so supportive through my journey. But I am thinking he expects that…
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the blues
i am a week into radiation for tonsil cancer with lymph nodes affected. i am losing my energy and my spirits are getting low. i am afraid of what will happen if i get depressed. i need friends and suggestions of things to do to stay motivated. please help...Andy
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Question very scared :(
HI all. I went to my doc this week. I have something in the back of my mouth, up above where your tonsils are. Doc says it looks like lymph material, but he's not particularly worried about it. He did, however make me an appiontment with an ENT, can't get in until another week from Monday, but the last few days, the whole…
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I forgot I had Cancer today........
I really struggled since my last Rad on December 17th, nausea and sickness, fatigue, all the eating issues, sensitive tongue, blah blah blah. Today, I went to the beach, I have been feeling better as of late, and today, as I sat in my beach chair on Tybee Island in Savannah,Ga, I was drinking a beer, and I actually had a…
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Making a wise decision
Hi. My dad was diagnosis with tongue cancer stage three and is metastic down to the neck. My father went through chemo and radiation. His last radiation treatment was Feb 15. 2010. The Dr believed that the treatment actually worked. Unfortunately, two month later, they discover a new firm mass in the same location. I asked…
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Chemo sickness
How long after Chemo ends, carboplatin does the sickness end. I have two more left and I have been so sick all week. Take my pills and throw them back up. Brad
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Need to do the Happy Dance!
Hi all! Yes, once again I am asking for support. On Monday I have my 6 month PET scan, and am getting VERY anxious. I know I have been healed by His stripes, yet anticipation really stinks! I am going to do the PET, then go for the Gemini/MRI scan. I am so happy for all the good news that has been posted on this site. I…
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Acupuncture to help with salivation etc?
Does anyone remember the conversation about acupuncture for increasing salivation, etc? It seems that there was a reference made to an article? Can any acupuncturist do this, or is special training required?? Thanks All! stacey
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vegetable Supplements
Have any of you heard of a product called Juice Plus? it is a vegetable and fruit supplement... any thoughts on it? Thanks
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Glenna?
Hi Glenna - You are in my prayers, as I know you are awaiting results. Praying for the best possible outcome, and awaiting your post. Remember - "I can do all things through Christ..." He never lets go Glenna. God Bless! Love, Patty
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divorce
How many people do you know that go through a separation or divorce during this? My husband is jealous of my older daughter caring for me. He doesn't want to do it. He has mental issues already and I had to have him leave because he was starting to scare me and the kids. Now he is hospitalized for another suicide attempt.…
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Newly diagnosed...need advice.
Hello everyone, My partner of 6 years was diagnosed yesterday with metastatic squamous cell carcinoma, suspected origin left tonsil. It was the lump in his neck that was biopsied, so I am assuming that is the lymph node and malignant cells are present there. So we are looking at Stage 4. At best 3, although we have not…
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Something Good to Eat
I thought this was something that many of you would find helpful. My favorite thing to make for my dad was pie. With his mouth being sore the crust was to hard for him to eat. I have started making him homemade custard pies without the crust. They bake perfect and come out in perfect slices. Since custard pies have a lot…
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chronic ear infection and hyperbaric?
I am 1 year post rad for parotid cancer, and have had problems with an ear infection for the past 5 months (the ear was in the radiated field) Have taken countless antibiotics, which are becoming fairly ineffective. Also have a perforated ear drum which is not healing. Just wondering if anyone thinks hyperbaric might be…
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My Dental Issues
Hi everyone, I had a dental visit today. I have been having very throbbing pain in my lower(especially back) teeth. They are also uber sensitive to hot and cold. I am taking about 6 extra strength tylenol at this point, 2 in the morning, 2 after work, 2 before bed to keep the pain down. Anyways, I thought it was rad…
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You OK, Sweetblood?
Everything OK with you? Haven't seen you around in a while. --Jim in Delaware
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nothing new really
Hi all. I am still waiting for positive change to happen now +11 days post treatment. Mucus is still public enemy #1 and mouth sores still keep me awake at night (along with the mucus). I'm telling the Dr next week that I want my mouth issues to be reevaluated because I'm not happy with where I am. If I need to be doing…
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Sore Throat
Hi everyone. I am now 6 months post treatment (33 rads, 3 chemo sessions for SCC BOT) and was wondering if anybody at similar timeline was still experiencing a sore throat occasionally? Things will go along very well for many weeks and then all of a sudden I will experience some discomfort/ache in my throat when I swallow.…
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Chefdaddy New Up-date on Mike 5-30-10
Hi everyone I just got off the phone with Chefdaddy, he is in the hospital having problems with a blood disorder. He is not doing very well so please keep him and his children in your prayers and your thoughts. He has had a very hard time going through treatment and is only 11 days post, radiation burns to the skin on his…