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PET Scan
I have not been on here for a while. I just wanted to let everyone know Bob will be getting his PET Scan Wednesday and I have been worrying..which I am sure all of you have gone thru...I think I told you guy's we have had no support from his family. Brother's Sister's..only his Mother who has been praying daily. His 2…
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Has Anyone Heard From
Mike ( Chefdaddy) or Mick I know they were finishing up but haven't seen them in a while hoping all is well with them Dave
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You all have been so helpful!
Hi, In Jan this year my 48 yr old (non-smoking) sister was diagnosed with tonsil cancer. It had spread to lymph nodes, base of tongue, into adipose(fat)tissue, and a tumor around her juglar vein and muscle in the same area. (We discovered all this additional cancer from surgery). Upon diagnosis, it was suggested she go to…
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Double Header
Hey everyone, Had a setback on Sunday. Just got to where I couldn't control the nausea and had to go to the hospital. Boy this medicine is like fire when it comes back up. They admitted me and got me straightened out. But they stopped all treatment for Monday. I don't know what caused the problem, the rads or the chemo and…
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Callin Mike ?
Mike Where are You & how are you doing? I started a new thread as the other was getting lenghty. Hope all is well Dave
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radiation for head and neck cancer
I just had surgery for oral cancer. The cancer was under my lower front teeth. This was #4. I had wanted to have my remaining teeth pulled but was advised not to because I have a neurotic jaw. I got that because of having two years of intravenous Zometa. followed by Boniva. I was put on antibiotics to help with the pain,…
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Plasmacytoma - post radiation question
I was diagnosed with Plasmacytoma in my maxillary sinus region (after treating for over 4 months for sinus infection!)and am just one month post radiation (25 treatments). My face and mouth/tongue seem to be healing and on the road to recovery (still tastebud & soreness in my mouth) - but just last Friday my left eye…
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he's so sick of it all
well, i have to say, the day finally came when Paul has finally said that for him its pointless to tell him any more suggestions of what will help with all of these side effects that just dont seem to get better. He says he will spend no more money on anything as he has a cabinet full of suggestions that have not worked.…
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olfactory neuroblastoma
Well, I had my surgery on the 31st, and am going for my followup tomorrow. They will remove the packing left in my nose and maybe have my pathology reports. Hoping to know whether I will be having the radiation treatments. I know more than likely I will but hoping I don't. Does anyone have an opinion on different clinics.…
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soft tissue swelling in neck
well...I'm back... I read these posts every day and usually my concerns are addressed without me posting. But this one I need some imput on. My husband has finished his treatments, had a follow-up scan and scope and there are no signs of cancer. Funny when they tell you you have cancer it hits you like a brick wall...when…
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Chemo and feeding tubes
Hi I was wondering how long it takes to get chemo. My dad is going to do the chemo once a week with radiation. On the day they do the chemo does he then do the radiation later that day. Also, how long did the sickness from the chemo last days or the entire time. Did everyone lose their hair. These are things that he has…
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Amy's Yummy high protein (20 grams per 4 oz) mashed potatoes
8 each potatoes, peel and boil *8 scoops protein powder *2c. heavy cream *1c. whole milk *4 eggs Salt and Pepper to taste * Mix all ingredients together in a sauce pan. Heat in a sauce pan constantly stirring to avoided curdling and lumps. When mixture becomes warm and thin custard like remove from heat. Place potatoes in…
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So sick
I have been so sick from the Chemo, carboplatin. I have lost almost 20 pounds, the thought of eating makes me sick. I have a PEG tube so almost all of my food intake has been through the tube. 4 more weeks to go, how long does it take to get the chemo out of you system. My tongue is so sore I can hardley talk. Just whining…
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My throat is tight and hard to breath
Seems I have been waking up to take my hydroodones, to a sore throat, thick phlem, difficult to breath in the morning to eat my breakfast? I have to drink cold water to get everything going. last radiation and chemo was January 25, raspy voice still, still working through all of this, which makes it harder as well to keep…
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Tampa Bay Grouper ~ Off Topic
I know this is a bit off topic, but it's something I like to do. Since I share most everything else with you guys and gals, I thought I'd share something on the positive side. I like to fish in my spare time and being sick last year, I didn't get to do it much. April 1st in Tampa Bay (and the Gulf) opens the grouper season…
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Soreness and cramping in neck almost a year after surgery/radiation
In January of last year, at age 20, I was diagnosed with a mucoepidermoid carcinoma of the salivary gland. I had one surgery removing just the gland then a second scraping the area where the gland was and removing all the lymph nodes on the right side of my neck. I had radiation without incident - with the exception of…
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thanks for info
Hi every one My name is Denny, this is my first time to post.I want to say thank you all for all the info and support on this site.It has help me alot, I dont fill alone in my battel to victory .For you are all in the same fight.
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Sweating in the head while eating
Hi all, I am 3 months post radiation and chemo for NPC. My taste buds haven't fully returned yet. When I eat my head is sweating profusely, especially if the food has a little taste that is too strong for me (sour, spicy). This condition happens even during cold days. Anyone has similar experience? Thanks, Frank
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How Much Care Needed
Hi, I know I have asked the question already, but I would like some more input. My dad will soon be starting his treatment for IV base tongue cancer. I work 2-10 at night and am worried about being able to care for him. My mom is home and able to do some things, but can not drive. I am trying to plan if I will need to be…
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Tube out soon!!!!
I got the OK from my ENT on my Friday visit to get my tube removed. They want to keep the port in for a while until I get some more clear scans under my belt, but I go Monday to the surgeon to set up getting my tube out. WOO HOO!! My last radiation treatment was on December 17th, to give you guys some time frame. Love you…
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"Going to the chapel and we're gonna get married"
This is an old blog entry of mine, from back in 2009, and I bring it to this board because it speaks, perhaps to some of the issues we face: (Dixie Cups reference) I used the above musical reference because I wallked down the aisle with my wife this afternoon and evening. In fact, I walked down aisle after aisle after…
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Teeth after radiation and many years...
Hello, 13 years ago I survived Squamous Cell Carcinoma originating from my nasopharynx. I received a lot of regional radiation and now have a few front teeth left and struggle eating on a day to day basis. I am only 27 and have many more years of tearing food apart ahead of me. I was seen by a oral prosthetic Dr. and after…
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Last rad day. What happens? Machine breaks. No Joke.
Good Friday has been horrible. This was the day when I was to BE DONE with all the rads, which would complete my treatment altogether. But I may need to wait until Monday. I'm tired 'cause of chemo, so I'm going for a nap. Best, Mick
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Modified Citrus Pectin
MODIFIED CITRUS PECTIN Hi All, I had forgotten about this supplement till recently and started to take a dose a day. I was prescribed this not long after I had started treatment but found I could not take it due to the pain but It is fine now that I am over the post Tx burning. Curious if anyone else has been using it or…
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Input needed
Hi all - especially you veterans of CSN. I have my PET scan scheduled for 4/19. I received a call from Mt Sinai research department, and they want me to participate in a clinical study. After my PET, they want to do an MRI immediately after to develop a new machine that would combine the PET and the camera of the MRI. This…