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Head and Neck Cancer

Archives for January 2010

Metastatic SCC just removed, now in waiting mode, quaking in fear.
I had a lymph node removed from my upper right neck on January 20th. I learned on the 27th that it was a "metastatic poorly differentiated squamous cell carcinoma." I've been scoped three times, and my ENT Doc still doesn't have any idea where the primary tumor is located. I admit that I am beginning to lose faith in him,…
ROLL CALL, January 2010
My apologies for not being on the board as often. We started this in August 2008. The purpose was to account for those who volunteered to be on Roll Call. Every six months, they were supposed to check in. You can just log in and state your presence. Update your status if there is a change. The below are the last status of…
Midwest people...
|Just wondering if anyone is from Minn...IA....Wisc..midwest. Just thinking if anyone has had Treatment at U Of Mn Hospital/Mesonic Cancer. Bob had a wonderful onc/Radiation team who treated him so well. We have a Trama Hosp. 2 miles away, but choose the U..the drive was worth it. I am so glad it's over for Bob going…
Sleep Apnea
After reading posts looking for SmithMama2 (Welcome back, Karen) I was wondering if others have been bothered with sleep apnea after treatment and if it calmed itself as time passed or if the cpap turned out to be necessary. My husband is 4 1/2 months out of treatment and has sleep apnea something fierce. As a light…
Tongue and Mouth Ulcers
I am currently going through radiation for tongue cancer (only 11 treatments left!) and I was wondering if anyone had any suggestions on how to stave off mouth ulcers or how to control them. About two weeks ago, at the end of my third week of radiation, I had an outbreak of sores. They covered 2/3 of my tongue, my lips and…
tonsils
Hey everybody, Just wanted to ask a question. Is there anyone over 50 that had their tonsils removed and been through chemo and rads who think the tonsils may be the worst part of all this? The reason I am asking is that since my surgery last Friday, my throat has just been a total wreck.I have been unable to eat, the…
soccerfreaks
I just wanted to tell you how much I admire you and what you have been thru.I read your profile..or whatever it is called and it took me quite a while, but after what you have gone thru and the way you wrote it is absolutly amazing. You still have humor, wit, and told your story in an incredible way. You have been thru so…
First CT scan results
Hi friends. I just joined this site a few days ago and have been reading all of the wonderful interaction and helpful information shared by the members. Now I need your help. My boyfriend who finished treatment in September just had his first CT scan yesterday. His doctor emailed him with the results. In the email which…
Husband had neck dissection with tonsil removal on Tuesday.
Hello everyone, I am new to this site and wanted to share my story and get feedback. My husband found a mass in his neck and after biopsy was told it was SCC. He had surgery on Tuesday and had it removed along with his tonsils. He is still in the hospital and is struggling with the pain management. We were told 2-3 day…
Thank you to everyone on this board...
My Husband of 25 years was diagnosed Sept 29 2009. He has/had stage 4 Squamus cell in throat togune tonsils pallette and jaw. We were told the tumor in his Jaw was the size of a Horseshoe. It has been a rough ride for both of us and our adult children. Yesterday Bob had his last Radiation treatment. He had 4 rounds of…
New member - history & intro - may have been underestimating!
I'm starting a thread here, although I actually just posted this on another (PEG Tube one), as I didn't understand the system - sorry for the repeat. The background: Since @ Oct been going through the diagnosis process. Starting with maybe a little acid reflux causing voice box burn...through left cord T1a small cancer…
Amiphostine
I've been through one chemo--Cisplatin--and a week of radiation treatments at this point. My worse reaction to anything at this early stage of treatment was to the IM injections of Amiphostine that I got for two days prior to radiation. Amiphostine is given to increase and prolong the life of the salivary glands. Some…
SmithMama2 We lost track of you
Karen It has been a while I hope everything is going OK God be with you
treatment plan
Hi everyone. I spoke with the rad oncologist today and he recommended rads of the mucosa (all my throat because of unknown primary) and the site where they found nodes in my neck and the other side of my neck where there was no evidence of disease. I addition he's recommending 3 courses of chemo (beginning of rads, middle,…
Possible Side Effect Assistance (Head, Neck and Sinus)
Possible Side Effect Assistance Head, Neck and Sinus It's been 3 years since my radiation and chemo treatments ended and I was pronounced amazingly healed for the moment, as we all have learned to avoid the CURED word! Since then, like many of us have suffered with post treatment side effects. Mine are constant dry mouth,…
Tooth care after radiation
When I was undergoing treatment for Stage III tonsil SCC at Johns Hopkins (Cisplatin, rads and surgery) I had a dentist, a specialist in this field, assigned to my case. Among the things he told me was to instruct my local dentist and dental hygienist to always remove the plaque from my teeth manually (manual scaling, they…
Blood Pressure Problems
Has anyone has problems with blood pressure being too low. I am a little more then 4 ½ years passed my last treatment and just started having blood pressure problems. As normal the doctors are puzzled as to why and are running all kinds of test. Radiation killed the thyroid and I had to start taking medication to adjust…
PEG Tube 8 years after treatment
I have had problems swallowing; it appears that my food goes into the Trachea instead of the Esophagous (sp). So, 8 years after treatment, I am once again using a PEG tube. Don't know yet if this is forever or jsut a short while (it's been 5 months now). Has anyone had this experience?
feeding tube
I was wondering if anyone has/had a problem with the hole in their stomach where the feeding tube soes into the stomach stinking? My tube has an awful smell that never goes away. It is and always has drained and I believe that is the probelm but I've seen the doctor about it 2 times and he says that is nothing wrong. I…
No Peg question, thank you all for your feedback
Thank you all for the tremendous response, I will get PEG, I guess you can't go by that you think your tough and can handle it. This appears to be something you do not want to take as a challenge. Thanks again to all.
Your Fast Food Favorites?
Hi everyone. So how many of you tell the counter person at McDonalds you are a cancer patient and need two syrups to get those hotcakes down. Luckily they don't normally give me a hard time. I imagine that most of us have had to change their eating habits while eating out as the lack of saliva and swallowing issues becomes…
Distant Mets-Mick
Mick, My husband origianally had tumor on right tonsil with one lymph node involved.(Diagnosed 6/4/2009) He did 35 rads and two rounds of Cisplatin. All the cancer in the neck is gone but on his first PET they found some activity in a lymph node in his chest area. So now he is doing erbitux, carboplatin, & 5-FU for six to…
I made it
Hi everybody Just wanted to you to know, I made it through the surgery Friday, and the primary was found (right tonsil) and I am doing pretty good. OTO said a very successful surgery!! Praise God!! Thanks to everyone for all the prayers. Steve
Need update Kurt (doitforoj)
Hey Kurt, how are you doing? Starting to feel better I hope. Please let us know. Mike
Encouraging news.....finally!!
I haven't visited this site much lately, I have been worried and a little depressed lately and couldn't respond to anyone's posts because I didn't want to bring others down with my negative thoughts. First a little background, in March '09 I was diagnosed with inoperable NSCLC adenocarcinoma in my left lung and Squamous…
No PEG when having radiation on neck
Wondering if anyone has feed-back on how they did not using the PEG feeding tube during treatment. I had tonsils removed now they are going to start chemo & radiation. I cannot imagine pain in throat could be worse than what I just went through?
distant mets opinion FINAL PATHOLOGY UPDATE!!!
UPDATE: just got this email from my Dr: "Your interpretation is correct [I asked him to clarify what I heard the day before, see below]. It is uncommon to survive distant mets although people do. No 100%'s in medicine. Regional mets (what you have) is a different story. I expect you to do very well and continue to come…
Need some tips on helping husband eat
Hello Eveyone, My husband is just finishing his 4th week of radiation 5 days a week/Erbitux 1 per week treatment for throat and neck cancer. Now has significant mucus build up which keeps him up at night coughing and has interfered in swallowing. Has been drinking Carnation VHC drinks and mils shakes but wondering if the…
endostatin plus quick update
I just saw the Nova report 'Cancer Warrior' (2001) on the work of Dr Judah Folkman. His studies and perseverance found a molecule that prevented cancer cells from recruiting blood vessels (a process called angiogenesis) for food/survival. I accessed the research area of my college library and found a couple of older…
Sore throat still
I know there is no "normal" when it comes to cancer...but...does it seem right, to still have a sore throat after 3 months out of treatment? I do have an appt. for my first MRI on Feb.4. I am anxious, nervous, scared and all the rest:) It's not sore all of the time, and there is no rhyme or reason for when it is sore. Is…

Head and Neck Cancer

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