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Big 3
Well I go for the big 3 today, ENT, Rad onco, oral surgeon. Saw my med onco yesterday. I stunned her with the Question "What can I do to help you?" Don't think anybody had ever asked her that before. If I am lucky I will get a PET done today and maybe cancel the dentist till after the surgery Friday. Onco couldn't…
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Magic mouthwash
Magic mouthwash is mentioned alot. WHAT IS THAT and do all patients get it or do you have to ask for it. Also does anyone know why they would treat with radiation only when so much is said about simultaniously administering chemo and RT. My son never mentioned being offered chemo at all. Thanks for any ideas. sally
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Fighting the BEAST alone
I just joined today. I've been reading the posts for about 2 weeks. I'm so blessed by all the love,info and encouragement here. My son in law(who is MY SON in heart)has been incarcerated since Oct.2007.He was just riding my bike and was stopped and harassed by police and unfortunately didnt co operate and landed a 4 year…
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post NPC radiation and chemo treatment
I am a 56 asian male and was diagnosed with stage 3 NPC. I finished 35 times of IMRT radiation and 4 times concurrent chemo with rad 2 weeks ago. I was treated in Kuala Lumpur, Malaysia. South East Asia countries oncologists are more familiar with NPC. I am able to eat soft food and fruits now but having lots of mucous…
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Questions
Hi everyone, Okay, meeting with med onco tomorrow. What are the most important things I need to know from her? Steve
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Anticancer
I bought this book yesterday called Anti Cancer by: David Servan-Screiber. I couldn't put it down. I don't believe everything I read but he does make some good points. I think it is worth getting a copy for yourself. Donna
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Books, websites info on nutrition
Hello everyone. I am new to this site, my brother in law has just been recently diagnosed. I must tell you that reading what we are facing through your words has been a God send. I admire each of you for the support that you give each other while facing and conquering this dreadful disease. You have helped my BIL, his wife…
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Important Clincal trials for for tongue and throat patients
Hi everyone, I have been reading this blog alot and find I have some important infor for a lot of the head and neck cancers. I hope that some of you will be able to use this info. There are two proceedures that I want to tell you all about, that I think arwe quite exciting! These proceedures were both pineered by my…
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Tongue cancer in young adults
I have a 23 years old brother. He has been complaining of neck pain for awhile and he has a small red and white lesion on his tongue. He went to a ENT doctor roughly 2 months ago. The doctor prescribed various antibiotics but they were not effective. This past Wednesday he went to the doctor again and he performed a…
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Work
Good morning everyone, Just wondering if a person can still work when going thru chemo and rad? Seems like most everyone gets pretty sick. Just a question, my mind is wandering a little this morning. Steve
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Surgery sounds Radical and Scary to me
I went for my saliva scan and test on Friday. What we have to do when we have been diagnosed with such a horrible disease. First off I was not allowed to swallow saliva for 5 minutes, then she swabbed my tongue with lemon and I had to repeat the 5-minute thing again. I was then taken to a room where saliva scans are taken.…
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Sugar cravings!
Has anyone have or gone through huge sugar cravings? I have been craving everything and anything sweet. Cakes, cookies, chocolate. All that good, but very bad for you stuff:) I have always liked sweets, but not quite like this. cindy
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Humidifier
Has anyone tried a humidifier in their bedrooms to help with dry throat and dry coughs? Cindy
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Lisa
Hi Lisa I did not get your e-mail please try again,
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New to all this
Hi everyone, just joined. I was diagnosed friday. Have a large mass on the right side of my neck. What started out as a small bump on dec 7th, has turned into this in that short length of time. Neck dissection scheduled for this coming frday. I am pretty frightened by this whole thing but I know that GOD will take care of…
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Any Idea of Recurrence Rate for my Cancer
Im having the typical freak out of "What if this doesnt work" So im tryiing to help ease my mind, and see if anyone knows what the percentage of Recurring cancer after treatments average is. I have/had a T1 Squamous Cell carcinoma that manifested itself in 1 lymph node on the right side of my neck that was removed. I…
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Radiation side effects
My husband,(Pearlspapa)has had numerous issues from the radiation. We are currrently back in the hospital for the third time since we stopped the treatments. We started Chemo/rad on November 3rd. Diagnosed on Sept. 21st after surgury to remove a lump on the left side of his neck Sept 18th. They removed his tonsils and did…
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Celebrate, Celebrate! Dance to the Music!
"Oh Lord my God, I cried out to You, And You healed me." (Psalm 30) Thank you Jesus! Hello everyone, I finally had my first PET & CT scan after my chemo and radiation for neck cancer. (Undiagnosed Primary) The Pet showed NO increase in glucose, and NOTHING lit up! The left lymph node has returned to normal, and the right…
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Three year since Diagnosis Petscan says...No hotspots!!!
Last Tuesday I had a Pet Scan completed and the following Friday I had an appointment with my ENT. The results confirmed what I had hoped and I am proud to say that I am free of any hotspots and continue to survive free of cancer. It was made even more special when I met and talked with another Tongue Cancer victim that…
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Full removal of tongue any one experiencing this?
HI I am looking for anyone that has more then 90% of there tongue removed due to cancer. My husband was first diagnosed in Jan 2009 with stage 1 cancer and had his first surgery Feb 2009. He had a small portion removed followed by 6wks of radiation to his neck because they also took out his lypmh nodes. He had a peg tube…
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New Treatment Plan
We met with our oncologist this morning and have a new treatment plan for my husband. We saw the PET and it showed small areas in the lymph nodes in the chest (nothing in the lungs). It is SCC which was originally in the neck. Neck is now clean. We will start erbitux next friday, every week for six to twelve weeks, with…
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Surgery tomorrow!
Met with the tumor board today and everybody was very excited about my chances. The Drs were all saying if the tumors are encapsulated and if there is a clear margin, I may not need rads/chemo - that's how confident they are, and these guys do not sugar anything. My wife and my brother went with me and that was great…
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Post Treatment Nerve Damage
Hello Everybody, I hope this post finds people doing well and fighting hard to beat this ugly head and neck cancer. the surgery, chemo, and radiation were just debilitating and brutal. I finished treatments for tonsil cancer 11/1/09. I had a neck dissection surgery 7/24, not radical. Immediately after surgery, my left…
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Jestawoman how are you
I have tried to contact you by e-mail and did not get an answer, I hope and pray that everything is ok, please let me know how you and your brother are doing
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Port Removal or Not
If I may, I'd like to give a little background before I ask my question. I was treated for breast cancer in 2003 - chemo, lumpectomy and radiation. I developed lymphadema about a year after treatment. I am not allowed to have any vitals taken on my right side and cannot have blood drawn from my right arm. I didn't have a…
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Newly diagnosed, scared and confused
I went to my GP in July and complained about a large lump on the left side of my neck. He prescribed antibiotics. In October I went back and the lump was larger than ever so he referred to an ENT and ordered a CT scan and ultra-sound. The ENT placed me on antibiotics and biopsied the lump. (the CT-Scan results showed a…
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Lisa
Very sorry to hear about your husband having trouble, again. Please keep us informed on how he is doing, and if he needs any advice. I'm 14-month, NPC. I, too, fear having to do another battle with C. Hondo is the authority with experience, and others know far more than I do about head and neck. Please stay active in this…
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Suggestion for skin issues from radiation
Hi, Just wanted to share what I used to deal with the irritated flaky skin from the radiation. They didnt want me to use anything before my treatments, didnt want anything blocking the radiation rays, but one of the nurses suggested to me a product called Badger Balm, I know this stuff sounds weird, but it worked wonders…
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My story Info welcome and appreciated
Sept, 08, I noticed a lump on the right side of my neck, at the time I had been sick a lot, I have a daughter who attended day care and daddy always got what she brought home. But after about 2 months, and the lump still existed, I had suspicions that this was more than just a swollen lymph node from being sick. I went to…
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Power of Positive Thinking
Good Morning Y'all: Thank you all for the great comments and prayers regarding our minor setback in my husbands battle with this animal. I truly believe in the power of prayer and that God only wants the best for us. I know our future is in God's hands and I will allow him to fight the battle for us. However, we can choose…