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Head and Neck Cancer

Archives for November 2009

Dental Concerns
Hi all, I have a Dentist appointment this Friday and was wondering what kind of dental problems if any that any of you might of had from your treatment. My cancer was dicovered back in May by my Dental Hygenist during a routine cleaning and exam. (She found swollen lymph node on one side of my neck) This Friday will be my…
PEG Removal advice please
HI all, I plan to get my PEG removed next week and wanted to hear from those who have had theirs done re: what to expect in the pain side, recovery time, stitches etc. I am in my 8th week out from completing treatment which was 7 weeks of RT (70 Hits) and Once a week Erbitux. Have had the tube in since week 3 of treatment…
nanodiscs- cure for cancer?
Story is on Yahoo's front page, dated today at 4:18 PM, Eastern Time: "nanodiscs", which get implanted, and then subjected to a low magnetic field, can kill 90% of the cancer cells in just 10 minutes. They are described as tiny magnetic discs. Argonne National Laboratory in the US is involved, as one of the authors of the…
Another Day - another side effect?
Hi all! Maybe someone can help me with this one. I awoke yesterday with sharp shooting pain in back of my skull. I went to my regular MD, and he feels it may be nerve pain and suggested an anti-inflammatory. I tried over the counter (Motrin, Advil etc) to no avail. He suggested Celebrex, which I tried, but it really did…
CT Scan clear but excessive pain
Hi All, My Father got operated for tongue cancer which had spread to his lymph node. He underwent 6 cycles of chemotherapy(cisplatin was administered) and 33 days of radiation. He continously complains of excessive pain in the operated area and like lot of pressure being exerted on the jaw. he does sometimes have nasal…
Tinnitis
Hi all! I am hoping one of you many fellow survivors can help. I have been suffering with tinnitus since my chemo (cysplatin)& rad treatment ended 6 wks ago. I recently have had pain in my head and neck, which feels like a shock, but can come and go at any moment, and is continuous. My regular MD feels it is nerve pain. So…
wife of tongue cancer survivor
My husband finished his radiation treatment (33 treatments) and chemo (3 days a wk, 3 separate times) on 10/8/09. Four weeks into the radiation he began using the peg. He has about three or four ensure plus a day which in my opinion is not sufficient (lost 45 lbs.). He is just about eight weeks post treatment and can't eat…
Diabetisource
Does anyone know where you can buy Diabetisource cheap, our insurance will not pay for it? Thanks, Suzi
Loss of taste from radiation
Hi my name is Donne. My mom was diagnosed with Squamous Cell Carcinoma of the Tonsil (stage II) in mid September. She had her tonsil removed and had a feeding tube put in before her treatments began. She just started radiation/chemo November 9 and she is doing great she has really high spirits and enjoying her life and…
New Here
hi I am a 16 month cancer survivor of the tongue, it was on the side of my tongue, lesion and tumor about 2cm. My doctor removed it and he cut into my neck and it did not spread. he said the tumor was patented? What does patented mean? I'm freaking out. yes I did quit smoking 3 months after surgery and started due to…
mucositis
Hello Everyone, I am 13 rads in on 33 and 2nd chemo of three is on tuesday. Feel good except tongue hurts. I have mucositis. I can swallow but hurts. I still drink water and 3 shakes a day. I constantly rinse and gargle with water that has baking soda. Brunch often with biotine toothpaste and rinse and gargle with biotine.…
Boring times
What do you folks do to occupy your time? That is if you can't or don't feel like going out. I get so bored. You can only stand so much TV. Fishingirl (Cindy)
DCa drug to cure cancer
Has anyone heard of this drug called DCA? There is a Dr. Evangelious Michelakis, at The University of Alberta, Canada. Who claims this will cure cancer. You can google DCA and get more info. Very interesting!! But how can one get some of it? That's the big question:) Fishingirl (Cindy)
Hyperbaric Oxygen Treatments
Happy Thanksgiving to all! My question is really about hyperbaric oxygen treatments. I want to know if anyone has had any experience with them after going through radiation? I am asking because my dad is claustrophobic and is not to fond of being stuck in a little skinny tube for a couple hours each day. I have seen a…
Dead Flap???
My left wrist was taken last year for a flap, no problem, this year's surgery for recurrence a flap was graphed from my right thigh. I was told yesterday, by ENT that this was dying, no more blood flow. They want to do another graph from left leg. What happens if I don't? I am scared and tired of surgeries, I just got out…
%age of clear slate
Does anyone have an idea what the percentage is on that you are clear and free of cancer after your treatments? I go for my first follow up ith my Oncologist Dec. 7. And I'm starting to worry. For no reason, I sure:) Fishingirl (Cindy)
TPF neoadjuvant or Cisplatin w/radiation
Just found this site; hope you can help. From what I seen in the last hour of reading, there are some marvoulous people here. Diagnosed as Stage 4; t-4;n-1;m -0, on November 16th. basal tongue squamous cell carcinoma. Now that the raging fear and panic has subsided and I only want to throw up every hour when I think about…
Ambertose by Manatek
I read in a discussion on saliva about Hondo using Ambertose at one point. I'm wondering how that did for you Hondo and would like to hear from anyone else who may have used it. A friend's husband takes it for arthritis and they thought it might help my husband who is 10 weeks post treatment for H&N squamous cell, occult…
Friend that refuses treatment
I would like to know answers to some important topics. I am now a 13 month survivor of stage 4 tongue based squamus cell cancer. A life log friend was recently diagnosed with stage 2-3 of the same thing. I completed the full operation/chemo/radiation treatment. My friend just decided to refuse normal treatment and go to a…
difficulty swallowing after radiation for throat cancer
I am looking for anyone who has experience in this area.My husband was diagnosed on July 1,2009. He finished chemo & radiation Sept.10 and is still unable to swallow. He still has very thick mucous that he has to spit out & this keeps him awake most of the night. There is also still alot of blood coughed up. Has been tube…
Canada
Are there any other people on this forum from Canada? Out of curiousity:) Cindy
Category "About Oneself"
I entered a few hrs. ago and I don't think it worked. Anyway...how does one go about telling people "About Oneself" on the blog? Thanks, Cindy
Me again
I am the small older one in this pic. The other is my Sis!! Cindy
Phlem:(
Hi Everybody! Hope everyone is on their way to wellness:( I have a question about spitting up phlem. I had my last radiation treatment 24 days ago, and I had not stopped spitting up phlem!!! It is constant. Does anyone have any idea how long this goes on for? It's one thing that is keeping me home. No one wants to hear and…
Scarred for Life?
On December 2, 2009, I am going to have the cancer on my tongue removed, as well as a selective neck dissection. This may be vain, but I am worried about the scar that the selective neck dissection will leave. I'm twenty three years old and the thought of waking up every day to a reminder of the cancer scares me. My…
Hope for the extreme cases
For all who question their chances- their hope, I submit the true story of a former co-worker. His stepson told me what I now tell you, and what I believe is true, from what I have seen and heard. The subject is still alive and well. This co-worker, who I will refer to as FS, went thru radiation treatment for oral cancer…
Nasopharyngeal- treatment specifics
A big hello to everyone- I just joined this forum minutes ago. A year ago I took the two tumors on the left side of my neck to my regular Dr. By the time the biopsy and Pet Scan was done, and chemo and rad were started, it was early February of 2009: 34 radiation zappings-20 places per session, during which I carried two…
when is roll call typically done each year?
I have seen several roll call posts in the past on this list. Is there a certain time this is done? What is the procedure and who might be in charge of doing this from time to time?
Carcinoid Tumor
I am a caregiver and my husband was diagnosed with this and he had 2 tumors in his throat. They removed them on Oct 1st with a tube through the mouth and said he needed his voice box removed and some lymph nodes in the neck even though all tests did not show any cancer after the surgery. The tumors were below the voice…
When does the black cloud start to lift
I have been reading the message board since July of 2008 when my husband was first diagnosed with SCC lVa, base of tongue. He had 3 rounds of induction chemo and 35 radiation treatments. His last radiation treatment was in 12/08. He had a neck dissection with no sign of cancer in nodes, just scar tissue. That was in…

Head and Neck Cancer

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